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THE DOWN SYNDROME CONNECTION OF THE BAY AREA

EIN 91-1904304 DANVILLE, CA

Largest nonprofits in California

Revenue 2024
$1,204,470
Expenses 2024
$1,177,133

Program services were 79.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G25
Classification
1200
Street
101 TOWN AND COUNTRY DR STE J

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

Our mission is to empower, inspire and support people with Down Syndrome, their families and the community that serves them, while fostering awareness and acceptance in all areas of life.

  • In 2024, DSCBA provided the following services, support, and events:(i) Together Happy Respected Independent Valued Empowered (THRIVE):THRIVE is a unique program for individuals with Down syndrome. THRIVE is conducted by age group with a focus on developing strong core strength, gross and fine motor, executive functioning, and social and friendship-building skills. These sessions embody a unique combination of strengthening cognitive skills and social/behavioral interactions, all while fostering lifelong friendships and having fun.(ii) Music Therapy:Music therapy takes the joy and power of music and combines it with the goals of a traditional therapy session. Music therapy interventions such as singing, instrument playing, music improvisation, songwriting, music and movement, and musical games are used to address speech, physical, academic, cognitive, and behavioral goals. It can also strengthen family connections, as caretakers are encouraged to participate. Music therapy sessions are available for members from infancy to adulthood.(iii) New and Ongoing Family Support:Support services for families from the prenatal and/or postnatal diagnosis stage through childhood, school years, and adulthood. DSCBA offers Early Connections groups, where our families and their young children can bring their questions, connect, socialize, and learn. New families can be connected with a mentor family for additional connection and support. As DSCBA members grow older, DSCBA continues to support them with their needs in group settings and one-on-one support as needed. (iv) Connection Groups:DSCBAs Connection Groups offer opportunities for families to meet with those who have similar interests and are seeking peer support. Connection Groups available were Early Connections (0-3 years old), Parents with School Aged Children, Spanish Speaking, Parents/Caregivers of Adults with Symptoms of Dementia, Grandparents Group, Dual Diagnosis (Down syndrome and autism spectrum disorder), Moms Chat and Dads Night. The majority, but not all, of DSCBAs support groups were conducted virtually in 2024.(v) Webinars and Workshops:Throughout the year, DSCBA provided webinars and workshops to members on a variety of topics for all age groups. Webinars included topics such as education, mental health, caregiver self-care, and safety.(vi) Communication Readiness Program (CRP):A six-week intensive summer program for children ages 47 with complex communication needs stemming from Down syndrome or dual diagnoses such as Down syndrome and autism. CRP incorporates reading, writing, art, music, obstacle courses, speech, and socialization with communication and school-readiness skills at the programs core. Students are introduced to alternative ways to communicate so they can successfully participate in school, and parents and educational teams are provided with instruction, training, and ongoing support to facilitate successful communication. (vii) iCan Shine Bike Camp:During the summer, DSCBA hosts its weeklong iCan Bike Camp. Riders learn to balance, pedal, steer and take off on their own, by attending 5 days for 75 minutes each day. It is an adapted approach to each individual rider based on the accommodations they may need to benefit the most from the program. The success rate of riders independently riding a bicycle (at least 75 feet with no assistance) by the end of DSCBAs iCan Bike program is approximately 80% and all riders progress and gain skills during the week.(viii) Mental Health Alliance Pilot Program:The Mental Health Alliance (MHA) is a pilot program that began in 2021. The goal of the MHA is to train and support the mental health community in serving those with IDD so that people with Down syndrome and other IDD can better access high-quality mental health services. DSCBA provides training to mental health professionals in working with families with a child with Down syndrome, as well as the communication supports and training clinicians need to effectively serve this population, along with an array of treatment modalities.(ix) Medical Outreach:Partnership with dozens of Bay Area hospitals and hundreds of healthcare providers that serve people with Down syndrome. The alliance provides accurate, current information about Down syndrome to medical practitioners in new parent packets (in English and Spanish) they can share with their families welcoming a child with Down syndrome. The alliance also provides in-person trainings for doctors, genetic counselors, geneticists, nurses, social workers, and other healthcare workers covering how to deliver a Down syndrome diagnosis, how to support and form a strong team with families who have a member with Down syndrome, the abilities of people with Down syndrome, and the local and national resources available.(x) Down Syndrome Education Alliance:Partnership with dozens of Bay Area schools and districts to provide training, resources, and support for teachers and educational staff who serve students with Down syndrome. The DSEA offers direct training, ability awareness presentations, consultation, research-based materials, and an Alternative and Augmentative Communication (AAC) lending library.(xi) Ability Awareness Presentations:DSCBAs ability awareness presentations are a unique way to educate students about Down syndrome and allow them to ask questions. These presentations not only spread awareness in the DSCBA community but also allows us all to learn that we are more alike than different.(xii) Inclusion Resources:DSCBA Inclusion Resource Directory provides families and educators with resources to guide them to meaningful inclusion.(xiii) Expression Connection:Expression Connection is a program of the DSCBA Educational Alliance. Through this program, DSCBA ensures that children who have communication and speech difficulty due to Down syndrome have access to Augmentative Alternative Communication systems (AAC). It is DSCBAs goal to make sure every individual is empowered and has the ability to communicate. DSCBA offers a lending library for AAC devices, consultations and training presentations. In addition to the lending library, DSCBA offers a Low-Tech Library containing a variety of communication boards.(xiv) Lending Library:The DSCBA Lending Library contains a vast selection of books and learning resources. Books include topics on prenatal diagnosis, raising a child with Down syndrome, education, Down syndrome and autism spectrum disorder, and so much more. Through DSCBAs Lending Library, learning resources and kits are available to families including Handwriting Without Tears, Whole Child Reading and more.(xvi) Resource Directory:A variety of resource directories are available to members through Padlet. Resources listed on the directories are recommendations from members and local disability organizations. Directories available are general resource directories and recreation programs. (xvii) Community Events: Throughout the year, DSCBA hosted the following community events for and to benefit DSCBAs members:(a) World Down Syndrome Day Dance Party - In 2024, DSCBA hosted a Dance Party to celebrate WDSD. It is a free event for all DSCBA members and their families.(b) Holiday Parties - In 2024, the DSCBA hosted three Holiday Parties across different locations. All three celebrations were free for all DSCBA members and their families.

    Expenses $940,895 · Grants $6,000

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Teresa Devincenzi

    Executive Dir.

    Total calculated
    $113,160
    From this org
    $113,160
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Mike Lin

    Chairman

    Total calculated
    $0
    Hours/week
    2

  • Steven Pugsley

    Treasurer

    Total calculated
    $0
    Hours/week
    2

  • Erick Montgomery

    Treasurer

    Total calculated
    $0
    Hours/week
    2

  • Julie Sodestrom

    Secretary

    Total calculated
    $0
    Hours/week
    2

  • Jean Johnston

    Vice Chair

    Total calculated
    $0
    Hours/week
    2

  • Jonas Kriksciunus

    Director

    Total calculated
    $0
    Hours/week
    1

  • Clay Mauritson

    Director

    Total calculated
    $0
    Hours/week
    1

  • Frank Benavidez

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $1,204,470
    Expenses
    $1,177,133
    Contributions
    $415,547
    Grants paid
    $6,000
  • 2023
    Revenue
    $3,000,131
    Expenses
    $1,313,714
    Contributions
    $2,191,225
    Grants paid
    $105,000
  • 2022
    Revenue
    $1,267,009
    Expenses
    $1,267,554
    Contributions
    $575,022
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,097,068
    Expenses
    $1,097,068
    Assets (EOY)
    $705,430

  • 2020 · 990

    Revenue
    $1,107,161
    Expenses
    $1,015,856
    Assets (EOY)
    $882,654

  • 2019 · 990

    Revenue
    $1,028,763
    Expenses
    $1,005,620
    Assets (EOY)
    $568,226

  • 2018 · 990

    Revenue
    $942,824
    Expenses
    $897,326
    Assets (EOY)
    $613,896

  • 2017 · 990

    Revenue
    $911,901
    Expenses
    $789,374
    Assets (EOY)
    $563,393

  • 2016 · 990

    Revenue
    $816,529
    Expenses
    $807,946
    Assets (EOY)
    $390,048

  • 2015 · 990

    Revenue
    $820,906
    Expenses
    $820,990
    Assets (EOY)
    $384,201

  • 2014 · 990

    Revenue
    $659,846
    Expenses
    $640,961
    Assets (EOY)
    $311,899

  • 2013 · 990

    Revenue
    $700,123
    Expenses
    $676,187
    Assets (EOY)
    $324,734

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

California fundraising campaigns

Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.

  • CAR DONATION SERVICES INC

    $5,600 raised

    2024 CF Vehicle Donation Program

    $2,115 to charity

  • RITEWAY CHARITY SERVICES INC.

    $635 raised

    2024 CF Vehicle Donation Program

    $294 to charity

  • CAR DONATION SERVICES INC

    $14,400 raised

    2023 CF Vehicle Donation Program

    $6,877 to charity

  • CAR DONATION SERVICES INC

    $9,250 raised

    2022 CF Vehicle Donation Program

    $4,892 to charity

  • CAR DONATION SERVICES INC

    $9,000 raised

    2021 CF Vehicle Donation Program

    $3,443 to charity

  • CAR DONATION SERVICES INC

    $44,373 raised

    2020 CF Vehicle Donation Program

    $26,331 to charity

  • CAR DONATION SERVICES INC

    $12,723 raised

    2019 CF Vehicle Donation Program

    $6,728 to charity

Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.