Totals
- Total revenue
- $10,131,702
- Total expenses
- $9,612,798
- Contributions and grants received
- $9,567,648
- Grants paid
- $564,056
- Program service revenue
- $15,870
- Investment income
- $548,184
- Other revenue
- $0
- Total assets, end of year
- $18,802,131
- Total liabilities, end of year
- $1,362,276
- Net assets or fund balances, end of year
- $17,439,855
- Program services expenses (Part IX)
- $7,109,733
- Management and general expenses
- $1,428,464
- Fundraising expenses
- $1,074,601
- Program service expenses (Part III)
- $7,109,733
Program services were 74.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1e · Government grants (contributions)
$15,072
-
1f · All other contributions, gifts and grants
$9,552,576
-
1g · Noncash contributions included above
$25,276
-
2a · Program service revenue: SURVEY INCOME
total $15,800 · related or exempt $15,800
-
2b · Program service revenue: OTHER INCOME
total $70 · related or exempt $70
-
3 · Investment income
total $551,898 · excluded $551,898
-
7a · Gross sales of assets other than inventory
securities $10,736,626
-
7b · Less cost or other basis and sales expenses
securities $10,740,340
-
7c · Gain or loss
securities -$3,714
-
7d · Net gain or loss
total -$3,714 · excluded -$3,714
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $231,936 · program services $231,936
-
2 · Grants to domestic individuals
total $332,120 · program services $332,120
-
5 · Compensation of officers, directors and key employees
total $520,074 · program services $262,914 · management and general $223,047 · fundraising $34,113
-
7 · Other salaries and wages
total $3,455,322 · program services $2,248,235 · management and general $698,756 · fundraising $508,331
-
8 · Pension plan contributions
total $118,438 · program services $71,456 · management and general $31,977 · fundraising $15,005
-
9 · Other employee benefits
total $399,742 · program services $240,184 · management and general $109,785 · fundraising $49,773
-
10 · Payroll taxes
total $294,189 · program services $188,372 · management and general $63,904 · fundraising $41,913
-
11b · Fees: legal
total $24,983 · program services $23,207 · management and general $632 · fundraising $1,144
-
11c · Fees: accounting
total $25,340 · program services $23,538 · management and general $641 · fundraising $1,161
-
11d · Fees: lobbying
total $230,600 · program services $230,600
-
11f · Fees: investment management
total $71,539 · management and general $71,539
-
11g · Fees: other
total $493,107 · program services $441,651 · management and general $18,309 · fundraising $33,147
-
12 · Advertising and promotion
total $96,089 · program services $84,512 · management and general $3,146 · fundraising $8,431
-
13 · Office expenses
total $115,003 · program services $61,634 · management and general $36,008 · fundraising $17,361
-
14 · Information technology
total $176,313 · program services $163,777 · management and general $4,461 · fundraising $8,075
-
16 · Occupancy
total $103,489 · program services $69,994 · management and general $20,194 · fundraising $13,301
-
17 · Travel
total $373,537 · program services $324,713 · management and general $23,902 · fundraising $24,922
-
19 · Conferences, conventions and meetings
total $1,750,630 · program services $1,573,383 · management and general $21,457 · fundraising $155,790
-
22 · Depreciation, depletion and amortization
total $143,768 · program services $108,436 · management and general $20,541 · fundraising $14,791
-
23 · Insurance
total $39,610 · program services $29,404 · management and general $5,585 · fundraising $4,621
-
24a · Other expenses: DUES & SUBSCRIPTIONS
total $218,329 · program services $158,311 · management and general $35,050 · fundraising $24,968
-
24b · Other expenses: BANK FEES
total $177,280 · program services $115,915 · management and general $30,124 · fundraising $31,241
-
24c · Other expenses: PRINTING & COPYING
total $98,013 · program services $51,282 · management and general $312 · fundraising $46,419
-
24d · Other expenses: POSTAGE & SHIPPING
total $85,957 · program services $48,363 · management and general $1,457 · fundraising $36,137
-
24e · All other expenses
total $37,390 · program services $25,796 · management and general $7,637 · fundraising $3,957
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,346,127 · end of year $1,395,606
-
2 · Savings and temporary cash investments
beginning of year $2,374,122 · end of year $2,942,049
-
3 · Pledges and grants receivable
beginning of year $79,899 · end of year $83,166
-
4 · Accounts receivable
beginning of year $18,506
-
9 · Prepaid expenses and deferred charges
beginning of year $281,164 · end of year $218,864
-
10a · Land, buildings and equipment: cost or other basis
$249,760
-
10b · Land, buildings and equipment: accumulated depreciation
$62,522
-
10c · Land, buildings and equipment, net
beginning of year $204,524 · end of year $187,238
-
11 · Investments: publicly traded securities
beginning of year $11,924,537 · end of year $13,010,733
-
14 · Intangible assets
beginning of year $214,663 · end of year $114,192
-
15 · Other assets
beginning of year $911,675 · end of year $850,283
-
17 · Accounts payable and accrued expenses
beginning of year $308,172 · end of year $298,983
-
19 · Deferred revenue
beginning of year $26,695
-
25 · Other liabilities
beginning of year $1,103,601 · end of year $1,063,293
-
27 · Net assets without donor restrictions
beginning of year $14,001,757 · end of year $16,554,151
-
28 · Net assets with donor restrictions
beginning of year $1,914,992 · end of year $885,704
Mission and programs · 2024
Mission
THE IMMUNE DEFICIENCY FOUNDATION IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE FOR EVERY PERSON AFFECTED BY PRIMARY IMMUNODEFICIENCY. WE FOSTER A COMMUNITY THAT IS CONNECTED, ENGAGED, AND EMPOWERED THROUGH ADVOCACY, EDUCATION, AND RESEARCH.
Activities or mission (Part I)
THE IMMUNE DEFICIENCY FOUNDATION IMPROVES THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF PEOPLE AFFECTED BY PRIMARY IMMUNODEFICIENCY THROUGH FOSTERING A COMMUNITY EMPOWERED BY ADVOCACY, EDUCATION, AND RESEARCH.
-
IMMUNE DEFICIENCY FOUNDATION (IDF) PROVIDED EDUCATIONAL PROGRAMS AND SERVICES FOR PATIENTS AND FAMILIES LIVING WITH PRIMARY IMMUNODEFICIENCIES (PI). IN 2024, APPROXIMATELY 30,700 INDIVIDUALS WERE PROVIDED WITH EDUCATION AND SUPPORT THROUGH PUBLICATIONS, WEBINARS, VIDEOS AND PODCAST EPISODES, IDF GET CONNECTED GROUP MEETINGS, TEEN AND YOUNG ADULT ACTIVITIES AND THE IDF PI CONFERENCE. THERE WERE 997 ATTENDEES AT THE PI CONFERENCE (THE FIRST IN-PERSON PI CONFERENCE SINCE 2019), WHERE IDF DEBUTED OUR DOCUMENTARY, "COMPROMISED: LIFE WITHOUT IMMUNITY". IDF PROVIDED MORE THAN 265 HOTEL ROOM AND FLIGHT SCHOLARSHIPS FOR PI CONFERENCE ATTENDEES. MORE THAN 1.3 MILLION IDF WEBSITE SESSIONS WERE ACCESSED FOR INFORMATION, EVENTS, PODCASTS AND SUPPORT AND MORE THAN 625 IMMUNE SYSTEM SELF- ASSESSMENTS WERE SUBMITTED VIA THE WEBSITE.
Expenses $4,918,677 · Grants $318,142
-
THE PI COMMUNITY TURNS TO IDF FOR INDIVIDUAL ASSISTANCE INCLUDING BUT NOT LIMITED TO ANSWERING INSURANCE QUESTIONS, LOCATING A SPECIALIST IN THEIR AREA, FINDING TREATMENT INFORMATION, AND LEARNING MORE ABOUT THEIR DIAGNOSIS. IDF'S PATIENT ADVOCACY SPECIALISTS PROVIDED ANSWERS TO OVER 1,900 QUESTIONS ON 300 DIFFERENT TOPICS FROM INDIVIDUALS SEEKING EDUCATION, INFORMATION, AND ASSISTANCE. IDF ALSO WORKS AT THE FEDERAL AND STATE LEVELS TO EDUCATE LAWMAKERS AND THE PUBLIC ABOUT ISSUES THAT IMPACT THOSE WHO ARE IMMUNOCOMPROMISED. A STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK, INCLUDING HEALTH ACCESS ADVOCATE VOLUNTEERS, INFORM POLICYMAKERS ABOUT ISSUES AFFECTING THOSE WITH PI. IN 2024, 850 INDIVIDUALS MET WITH AND SENT MORE THAN 2,700 LETTERS AND MESSAGES TO LEGISLATORS AND EXECUTIVE OFFICIALS TO ENSURE THAT PEOPLE WITH PI CAN LIVE HEALTHY AND PRODUCTIVE LIVES WITH EXCELLENT TREATMENT OPTIONS AND ACCESS TO THE MOST APPROPRIATE HEALTHCARE AVAILABLE.
Expenses $1,143,977
-
TO IMPROVE THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF THOSE AFFECTED BY PI, IDF HAS SEVERAL INITIATIVES TO PROVIDE RESOURCES DIRECTLY TO THE MEDICAL COMMUNITY, INCLUDING EXHIBITING AT TEN MEDICAL CONFERENCES IN 2024, PROVIDING INFORMATION AND RESOURCES TO HEALTHCARE PROFESSIONALS, AND ADMINISTERING A CONSULTING IMMUNOLOGIST PROGRAM THAT ALLOWS CLINICIANS TO CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST ABOUT PATIENT-SPECIFIC QUESTIONS TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT, AND DISEASE MANAGEMENT INFORMATION. IDF CONDUCTS NATIONAL SURVEYS AND FOCUS GROUPS OF PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS, BUILDING A COLLECTION OF QUANTIFIABLE DATA RELATED TO PRIMARY IMMUNODEFICIENCY. IN 2024, OVER 1,000 INDIVIDUALS PARTICIPATED IN AN IDF PATIENT SURVEY TO GATHER DATA ON IG TREATMENT. THERE WERE FOUR PUBLICATIONS IN 2024 USING USIDNET DATA. BECAUSE MEDICAL RESEARCH IS A PRIORITY, THE IDF RESEARCH GRANT PROGRAM FUNDED FOUR RESEARCH GRANTS FOR PI RELATED RESEARCH IN 2024, TOTALING OVER 159,000.
Expenses $1,047,079 · Grants $245,914 · Revenue $15,800
-
Revenue $70
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Jorey BerryJOREY BERRY
PRESIDENT &
- Total calculated
- $347,267
- From this org
- $291,976
- From related orgs
- $0
- Other
- $55,291
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $245,156
- Bonus
- $46,820
- Other
- not reported
- Deferred
- $35,276
- Nontaxable benefits
- $20,015
- Filer's total
- $347,267
-
Aimee SimpsonAIMEE SIMPSON
VP INSTITUTI
- Total calculated
- $177,935
- From this org
- $157,876
- From related orgs
- $0
- Other
- $20,059
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $153,492
- Bonus
- $4,384
- Other
- not reported
- Deferred
- $6,290
- Nontaxable benefits
- $13,769
- Filer's total
- $177,935
-
Sarah RoseSARAH ROSE
CFO
- Total calculated
- $172,807
- From this org
- $147,965
- From related orgs
- $0
- Other
- $24,842
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $143,581
- Bonus
- $4,384
- Other
- not reported
- Deferred
- $6,060
- Nontaxable benefits
- $18,782
- Filer's total
- $172,807
-
Brian LloydBRIAN LLOYD
CTO
- Total calculated
- $172,587
- From this org
- $143,863
- From related orgs
- $0
- Other
- $28,724
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $139,589
- Bonus
- $4,274
- Other
- not reported
- Deferred
- $5,860
- Nontaxable benefits
- $22,864
- Filer's total
- $172,587
-
Tammy BlackTAMMY BLACK
VP COMMUNICA
- Total calculated
- $170,734
- From this org
- $151,684
- From related orgs
- $0
- Other
- $19,050
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $147,371
- Bonus
- $4,313
- Other
- not reported
- Deferred
- $5,977
- Nontaxable benefits
- $13,073
- Filer's total
- $170,734
-
Lynn AlbizoLYNN ALBIZO
VP PUBLIC PO
- Total calculated
- $165,587
- From this org
- $142,625
- From related orgs
- $0
- Other
- $22,962
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $138,545
- Bonus
- $4,080
- Other
- not reported
- Deferred
- $5,690
- Nontaxable benefits
- $17,272
- Filer's total
- $165,587
-
Christopher DuckettCHRISTOPHER DUCKETT
DIRECTOR OF
- Total calculated
- $156,337
- From this org
- $126,700
- From related orgs
- $0
- Other
- $29,637
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $122,831
- Bonus
- $3,869
- Other
- not reported
- Deferred
- $5,289
- Nontaxable benefits
- $24,348
- Filer's total
- $156,337
-
Jason AngelosJASON ANGELOS
FINANCE CHAI
- Total calculated
- $0
- Hours/week
- 1
-
Pete AthertonPETE ATHERTON
FUTURES CHAI
- Total calculated
- $0
- Hours/week
- 1
-
Colleen DansereauCOLLEEN DANSEREAU
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Charlene GrabowskiCHARLENE GRABOWSKI
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Seth KaufmanSETH KAUFMAN
BOARD VICE C
- Total calculated
- $0
- Hours/week
- 1
-
Kate Sullivan MDKATE SULLIVAN MD
MAC CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
Adrian MolloADRIAN MOLLO
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Andy RobinsANDY ROBINS
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Stella SafoSTELLA SAFO
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
Tracy A ShawTRACY A SHAW
BOARD CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
Sonia VohnoutSONIA VOHNOUT
BOARD SECRET
- Total calculated
- $0
- Hours/week
- 1
-
Peter WangPETER WANG
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Compensation committee
- 3 · Written employment contract
- 3 · Compensation survey or study
- 3 · Approval by the board or compensation committee
- 4b · Supplemental nonqualified retirement plan
Answered no
- 4a · Severance or change-of-control payment
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
The filer's explanations (Part III)
- SCHEDULE J, PART III
- AT PRESENT, ONLY THE CEO PARTICIPATES IN THE NONQUALIFIED DEFERRED COMPENSATION PLAN. ELIGIBILITY MAY BE EXTENDED TO OTHER MANAGEMENT OR HIGHLY COMPENSATED EMPLOYEES. THE ELIGIBLE EMPLOYEE(S) WOULD BE DETERMINED BY THE BOARD OR A COMMITTEE OF THE BOARD IN CONJUNCTION WITH THE PRESIDENT/CEO. THE POTENTIAL CONTRIBUTION AMOUNT IS DETERMIEND JUST PRIOR TO EACH BUDGET YEAR BY THE BOARD/BOARD COMMITTEE AND VOTED ON WITHIN THE BUDGET APPROVAL. AT THE END OF THAT YEAR, THE BOARD OR COMMITTEE DETERMINES THE EXACT AMOUNT TO ALLOW AND THAT AMOUNT IS TRANSFERRED TO THE PARTICIPANT'S ACCOUNT SHORTLY THEREAFTER.
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
RESEARCH
-
RESEARCH
-
$39,000
RESEARCH
-
RESEARCH
-
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
$25,000
RESEARCH
-
$24,161
RESEARCH
-
$15,000
MEETING PARTICIPATIO
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 26 June 2025
- IRS schema version
- 2024v5.0
- Source object
- 202531899349301003
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.