IMMUNE DEFICIENCY FOUNDATION

As filed

Subsection

03

NTEE code

H9CZ

Classification

1200

Street

7550 TEAGUE RD STE 220

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

• IMMUNE DEFICIENCY FOUNDATION PROVIDED EDUCATIONAL PROGRAMS AND SERVICES FOR PATIENTS AND FAMILIES LIVING WITH PRIMARY IMMUNODEFICIENCIES (PI). IN 2025, APPROXIMATELY 34,030 INDIVIDUALS WERE PROVIDED WITH EDUCATION AND SUPPORT THROUGH PUBLICATIONS, WEBINARS, VIDEOS AND PODCAST EPISODES, GET CONNECTED GROUP MEETINGS, AND TEEN AND YOUNG ADULT ACTIVITIES. THERE WERE 2 MILLION WEBSITE VISITORS, OVER 480,000 VIEWS ON YOUTUBE AND 2,600 COMPROMISED DOCUMENTARY SCREENING REQUESTS. SINCE THE LAUNCH, MORE THAN 14,000 PEOPLE HAVE UTILIZED THE IMMUNE SYSTEM SELF-ASSESSMENT TOOL ON OUR WEBSITE.

  Expenses $2,949,291 · Grants $355,206

• THE PI COMMUNITY RELIES ON INDIVIDUAL ASSISTANCE INCLUDING BUT NOT LIMITED TO ANSWERING INSURANCE QUESTIONS, LOCATING A SPECIALIST IN THEIR AREA, FINDING TREATMENT INFORMATION, AND LEARNING MORE ABOUT THEIR DIAGNOSIS. OUR PATIENT ADVOCACY SPECIALISTS PROVIDED ANSWERS TO OVER 2,200 QUESTIONS FROM INDIVIDUALS SEEKING EDUCATION, INFORMATION, AND ASSISTANCE. THE ORGANIZATION ALSO WORKS AT THE FEDERAL AND STATE LEVELS TO EDUCATE LAWMAKERS AND THE PUBLIC ABOUT ISSUES SUCH AS VACCINE ACCESS AND INSURANCE COVERAGE CHALLENGES, THAT IMPACT THOSE WHO ARE IMMUNOCOMPROMISED. A STRONG VOLUNTEER GRASSROOTS ADVOCACY NETWORK, INCLUDING HEALTH ACCESS ADVOCATE VOLUNTEERS, INFORM POLICYMAKERS ABOUT ISSUES AFFECTING THOSE WITH PI. IN 2025, THERE WERE MORE THAN 3,650 LETTERS AND MESSAGES SENT TO LEGISLATORS AND EXECUTIVE OFFICIALS TO ENSURE THAT PEOPLE WITH PI CAN LIVE HEALTHY AND PRODUCTIVE LIVES WITH EXCELLENT TREATMENT OPTIONS AND ACCESS TO THE MOST APPROPRIATE HEALTHCARE AVAILABLE.

  Expenses $1,555,717

• TO IMPROVE THE DIAGNOSIS, TREATMENT, AND QUALITY OF LIFE OF THOSE AFFECTED BY PI, THERE ARE SEVERAL INITIATIVES TO PROVIDE RESOURCES DIRECTLY TO THE MEDICAL COMMUNITY, INCLUDING ATTENDING FOURTEEN MEDICAL CONFERENCES, PROVIDING INFORMATION, EDUCATION AND RESOURCES TO OVER 14,000 HEALTHCARE PROFESSIONALS, AND ADMINISTERING A CONSULTING IMMUNOLOGIST PROGRAM THAT ALLOWS CLINICIANS TO CONSULT WITH AN EXPERT CLINICAL IMMUNOLOGIST TO OBTAIN VALUABLE DIAGNOSTIC, TREATMENT, AND DISEASE MANAGEMENT INFORMATION. IN 2025 WE LAUNCHED AN ACCREDITED CONTINUING MEDICAL EDUCATION (CME) PROGRAM TO EQUIP HEALTHCARE PROFESSIONALS WITH EDUCATION AND STRATEGIES FOR EARLY PI DETECTION, PERSONALIZED CARE AND OVERCOMING ACCESS BARRIERS. BECAUSE MEDICAL RESEARCH IS A PRIORITY, THE RESEARCH GRANT PROGRAM FUNDED FOUR RESEARCH GRANTS FOR PI RELATED RESEARCH IN 2025, TOTALING OVER 200,000.

  Expenses $1,363,676 · Grants $254,139 · Revenue $38,600

• Revenue $7,056

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $11,404,598

  Expenses

  $8,377,069

  Contributions

  $10,651,366

  Grants paid

  $609,595

• 2024

  Revenue

  $10,131,702

  Expenses

  $9,612,798

  Contributions

  $9,567,648

  Grants paid

  $564,056

• 2023

  Revenue

  $8,985,857

  Expenses

  $7,402,254

  Contributions

  $8,657,179

  Grants paid

  $244,104

• 2022

  Revenue

  $8,852,448

  Expenses

  $7,936,471

  Contributions

  $8,654,145

  Grants paid

  $158,570

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $9,938,471

  Expenses

  $8,023,615

  Assets (EOY)

  $14,287,227

• 2020 · 990

  Revenue

  $6,782,778

  Expenses

  $6,532,541

  Assets (EOY)

  $12,389,861

• 2019 · 990

  Revenue

  $9,460,017

  Expenses

  $8,601,612

  Assets (EOY)

  $11,518,997

• 2018 · 990

  Revenue

  $6,350,758

  Expenses

  $6,409,783

  Assets (EOY)

  $9,299,139

• 2017 · 990

  Revenue

  $8,261,050

  Expenses

  $8,349,918

  Assets (EOY)

  $10,160,762

• 2016 · 990

  Revenue

  $7,604,690

  Expenses

  $6,872,104

  Assets (EOY)

  $9,403,278

• 2015 · 990

  Revenue

  $7,958,072

  Expenses

  $8,028,597

  Assets (EOY)

  $8,670,010

• 2014 · 990

  Revenue

  $7,071,963

  Expenses

  $6,043,642

  Assets (EOY)

  $8,950,816

• 2013 · 990

  Revenue

  $6,497,886

  Expenses

  $5,918,638

  Assets (EOY)

  $7,911,797

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $4,578,724

  Assets (EOY)

  $7,009,757

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

• THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES

  $50,000

  2023 · RESEARCH

• JOHNS HOPKINS UNIVERSITY

  $50,000

  2023 · RESEARCH

• THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES

  $50,000

  2024 · RESEARCH

• BAYLOR COLLEGE OF MEDICINE

  $50,000

  2022 · RESEARCH

• COLUMBIA UNIVERSITY

  $50,000

  2025 · RESEARCH

• ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI

  $50,000

  2025 · RESEARCH

• THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES

  $50,000

  2025 · RESEARCH

• SEATTLE CHILDREN'S RESEARCH INSTITUTE

  $49,856

  2025 · RESEARCH

• CHILDREN'S NATIONAL MEDICAL CENTER

  $45,500

  2024 · RESEARCH

• STANFORD UNIVERSITY

  $45,000

  2023 · RESEARCH

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

• THE CHILDRENS HOSPITAL OF PHILADELPHIA

  $58,894

  2022 · RESEARCH

• AMERICAN ONLINE GIVING FOUNDATION INC

  $45,454

  2024 · GENERAL SUPPORT

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $44,576

  2023 · For grant recipient's exempt purposes

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $32,800

  2022 · For grant recipient's exempt purposes

• VANGUARD CHARITABLE ENDOWMENT PROGRAM

  $26,500

  2022 · FOR RECIPIENT'S EXEMPT PURPOSE

• PAYPAL CHARITABLE GIVING FUND

  $25,078

  2024 · GENERAL SUPPORT

• VANGUARD CHARITABLE ENDOWMENT PROGRAM

  $25,000

  2023 · FOR RECIPIENT'S EXEMPT PURPOSE

• DONOR ADVISED CHARITABLE GIVING

  $23,050

  2024 · HEALTH

• AMERICAN ONLINE GIVING FOUNDATION INC

  $22,354

  2023 · GENERAL SUPPORT

• THE CHILDRENS HOSPITAL OF PHILADELPHIA

  $21,245

  2023 · RESEARCH

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files