Form 990 for tax year 2024
Filed by AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC.
Totals
- Total revenue
- $51,876
- Total expenses
- $170,625
- Contributions and grants received
- $21,980
- Grants paid
- $152,707
- Program service revenue
- $0
- Investment income
- $29,896
- Other revenue
- $0
- Total assets, end of year
- $873,074
- Total liabilities, end of year
- $90,000
- Net assets or fund balances, end of year
- $783,074
- Program services expenses (Part IX)
- $161,736
- Management and general expenses
- $8,889
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $161,736
Program services were 94.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$21,980
-
3 · Investment income
total $29,896 · excluded $29,896
Functional expenses
Part IX, the statement of functional expenses.
-
3 · Grants to foreign organizations and individuals
total $152,707 · program services $152,707
-
11b · Fees: legal
total $130 · management and general $130
-
11c · Fees: accounting
total $1,400 · management and general $1,400
-
11g · Fees: other
total $2,789 · management and general $2,789
-
13 · Office expenses
total $1,779 · management and general $1,779
-
14 · Information technology
total $720 · management and general $720
-
23 · Insurance
total $1,764 · management and general $1,764
-
24a · Other expenses: Website
total $9,029 · program services $9,029
-
24b · Other expenses: Licenses and permits
total $307 · management and general $307
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $145,620 · end of year $68,695
-
2 · Savings and temporary cash investments
beginning of year $553,454 · end of year $203,947
-
11 · Investments: publicly traded securities
beginning of year $292,749 · end of year $600,432
-
18 · Grants payable
beginning of year $0 · end of year $90,000
-
29 · Capital stock, trust principal or current funds
beginning of year $0 · end of year $0
-
30 · Paid-in or capital surplus, or land, building or equipment fund
beginning of year $0 · end of year $0
-
31 · Retained earnings, endowment or other funds
beginning of year $991,823 · end of year $783,074
Mission and programs · 2024
Mission
The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life.
Activities or mission (Part I)
Fund biomedical research on fibromyalgia and empower patients through education.
-
With research grants from AFSA (typically $85,000 each), scientists advance the understanding of fibromyalgia. Our focus is on causes, treatments, and developing biomarkers for the disease. In the current year, AFSA funded 2 projects and approved the funding for a third project that is pending IRB approval. Project 1: Nicholas Fallon, Ph.D., and Andreas Goebel, M.D., Ph.D., at the University of Liverpool (U.K.) are investigating the processes involved in causing fibromyalgia symptoms to flare, with emphasis on the brain and immunological functions. Award amount is $78,058 (U.S. funds).Project 2: Shafaqq Sikandar, Ph.D., at Queen Mary University of London (U.K.) is examining how neutrophils are different in fibromyalgia and will determine if these cells can be used as a biomarker for the disease. Award amount is $74,649 (U.S. funds).Project 3: Katherine Martucci, Ph.D., at Duke University (U.S.) is conducting a treatment trial using transcranial magnetic stimulation (TMS) to treat the pain, fatigue and cognitive symptoms of fibromyalgia with an accelerated protocol targeting the medial prefrontal cortex. Project was approved in June of 2025 for $90,000 and funding is expected in October 2025.
Expenses $152,707 · Grants $152,707
-
As part of our patient-education mission, we maintain a website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, lifestyle changes, coping strategies, advances in treatments and research, and descriptions of projects funded by AFSA. We added 20 new pages to the site (it grew from 83 to 103 pages) and the number of new people visiting the site for information was 65,000 during the fiscal year.
Expenses $9,029
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Kristin Thorson
President
- Total calculated
- $0
- Hours/week
- 40
-
Steve Thorson
Vice President & Secretary
- Total calculated
- $0
- Hours/week
- 15
-
Jennifer E Randle
Chief Financial Officer
- Total calculated
- $0
- Hours/week
- 0.2
-
Brent Songer
Director
- Total calculated
- $0
- Hours/week
- 0.2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 11 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202503169349307570
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.