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← AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC

Form 990 for tax year 2024

Filed by AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC.

Totals

Total revenue
$51,876
Total expenses
$170,625
Contributions and grants received
$21,980
Grants paid
$152,707
Program service revenue
$0
Investment income
$29,896
Other revenue
$0
Total assets, end of year
$873,074
Total liabilities, end of year
$90,000
Net assets or fund balances, end of year
$783,074
Program services expenses (Part IX)
$161,736
Management and general expenses
$8,889
Fundraising expenses
$0
Program service expenses (Part III)
$161,736

Program services were 94.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $21,980

  • 3 · Investment income

    total $29,896 · excluded $29,896

Functional expenses

Part IX, the statement of functional expenses.

  • 3 · Grants to foreign organizations and individuals

    total $152,707 · program services $152,707

  • 11b · Fees: legal

    total $130 · management and general $130

  • 11c · Fees: accounting

    total $1,400 · management and general $1,400

  • 11g · Fees: other

    total $2,789 · management and general $2,789

  • 13 · Office expenses

    total $1,779 · management and general $1,779

  • 14 · Information technology

    total $720 · management and general $720

  • 23 · Insurance

    total $1,764 · management and general $1,764

  • 24a · Other expenses: Website

    total $9,029 · program services $9,029

  • 24b · Other expenses: Licenses and permits

    total $307 · management and general $307

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $145,620 · end of year $68,695

  • 2 · Savings and temporary cash investments

    beginning of year $553,454 · end of year $203,947

  • 11 · Investments: publicly traded securities

    beginning of year $292,749 · end of year $600,432

  • 18 · Grants payable

    beginning of year $0 · end of year $90,000

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $991,823 · end of year $783,074

Mission and programs · 2024

Mission

The American Fibromyalgia Syndrome Association's (AFSA's) two missions are: (1) fund superior quality studies on fibromyalgia and (2) educate patients about this disease so that they can seek improved healthcare and achieve a better quality of life.

Activities or mission (Part I)

Fund biomedical research on fibromyalgia and empower patients through education.

  • With research grants from AFSA (typically $85,000 each), scientists advance the understanding of fibromyalgia. Our focus is on causes, treatments, and developing biomarkers for the disease. In the current year, AFSA funded 2 projects and approved the funding for a third project that is pending IRB approval. Project 1: Nicholas Fallon, Ph.D., and Andreas Goebel, M.D., Ph.D., at the University of Liverpool (U.K.) are investigating the processes involved in causing fibromyalgia symptoms to flare, with emphasis on the brain and immunological functions. Award amount is $78,058 (U.S. funds).Project 2: Shafaqq Sikandar, Ph.D., at Queen Mary University of London (U.K.) is examining how neutrophils are different in fibromyalgia and will determine if these cells can be used as a biomarker for the disease. Award amount is $74,649 (U.S. funds).Project 3: Katherine Martucci, Ph.D., at Duke University (U.S.) is conducting a treatment trial using transcranial magnetic stimulation (TMS) to treat the pain, fatigue and cognitive symptoms of fibromyalgia with an accelerated protocol targeting the medial prefrontal cortex. Project was approved in June of 2025 for $90,000 and funding is expected in October 2025.

    Expenses $152,707 · Grants $152,707

  • As part of our patient-education mission, we maintain a website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, lifestyle changes, coping strategies, advances in treatments and research, and descriptions of projects funded by AFSA. We added 20 new pages to the site (it grew from 83 to 103 pages) and the number of new people visiting the site for information was 65,000 during the fiscal year.

    Expenses $9,029

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Kristin Thorson

    President

    Total calculated
    $0
    Hours/week
    40
  • Steve Thorson

    Vice President & Secretary

    Total calculated
    $0
    Hours/week
    15
  • Jennifer E Randle

    Chief Financial Officer

    Total calculated
    $0
    Hours/week
    0.2
  • Brent Songer

    Director

    Total calculated
    $0
    Hours/week
    0.2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
11 November 2025
IRS schema version
2024v5.2
Source object
202503169349307570

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