AMERICAN FIBROMYALGIA SYNDROME ASSOCIATION INC

As filed

Subsection

03

NTEE code

H99Z

Classification

1000

Street

PO BOX 32698

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

• With research grants from AFSA (typically $85,000 each), scientists advance the understanding of fibromyalgia. Our focus is on causes, treatments, and developing biomarkers for the disease. In the current year, AFSA funded 2 projects and approved the funding for a third project that is pending IRB approval. Project 1: Nicholas Fallon, Ph.D., and Andreas Goebel, M.D., Ph.D., at the University of Liverpool (U.K.) are investigating the processes involved in causing fibromyalgia symptoms to flare, with emphasis on the brain and immunological functions. Award amount is $78,058 (U.S. funds).Project 2: Shafaqq Sikandar, Ph.D., at Queen Mary University of London (U.K.) is examining how neutrophils are different in fibromyalgia and will determine if these cells can be used as a biomarker for the disease. Award amount is $74,649 (U.S. funds).Project 3: Katherine Martucci, Ph.D., at Duke University (U.S.) is conducting a treatment trial using transcranial magnetic stimulation (TMS) to treat the pain, fatigue and cognitive symptoms of fibromyalgia with an accelerated protocol targeting the medial prefrontal cortex. Project was approved in June of 2025 for $90,000 and funding is expected in October 2025.

  Expenses $152,707 · Grants $152,707

• As part of our patient-education mission, we maintain a website to serve as a go-to resource for patients and their healthcare providers. The site includes sections on both drug and nondrug treatments, lifestyle changes, coping strategies, advances in treatments and research, and descriptions of projects funded by AFSA. We added 20 new pages to the site (it grew from 83 to 103 pages) and the number of new people visiting the site for information was 65,000 during the fiscal year.

  Expenses $9,029

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $51,876

  Expenses

  $170,625

  Contributions

  $21,980

  Grants paid

  $152,707

• 2023

  Revenue

  $139,716

  Expenses

  $160,961

  Contributions

  $114,222

  Grants paid

  $137,080

• 2022

  Revenue

  $34,799

  Expenses

  $5,488

  Contributions

  $32,312

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $57,608

  Expenses

  $8,446

  Assets (EOY)

  $978,928

• 2020 · 990

  Revenue

  $60,145

  Expenses

  $10,138

  Assets (EOY)

  $929,766

• 2019 · 990

  Revenue

  $73,242

  Expenses

  $271,275

  Assets (EOY)

  $879,759

• 2018 · 990

  Revenue

  $24,005

  Expenses

  $304,256

  Assets (EOY)

  $1,077,792

• 2017 · 990

  Revenue

  $43,958

  Expenses

  $9,818

  Assets (EOY)

  $1,358,043

• 2016 · 990

  Revenue

  $134,619

  Expenses

  $7,622

  Assets (EOY)

  $1,323,903

• 2015 · 990

  Revenue

  $35,080

  Expenses

  $7,136

  Assets (EOY)

  $1,196,906

• 2014 · 990

  Revenue

  $59,076

  Expenses

  $8,564

  Assets (EOY)

  $1,168,962

• 2013 · 990

  Revenue

  $26,906

  Expenses

  -$49,936

  Assets (EOY)

  $1,118,450

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $8,626

  Assets (EOY)

  $1,051,908

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

• Foundation for Atlanta Veterans Education and Research Inc

  $39,230

  2023 · Fibromyalgia Research

Where these grants went next →

Grants received

No itemized grant names this organization as a recipient. Only grants over $5,000 are itemized, and only by filers of the full Form 990.

Other IRS files