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Nonprofiteer
← NATIONAL ALOPECIA AREATA FOUNDATION

Form 990 for tax year 2025

Filed by NATIONAL ALOPECIA AREATA FOUNDATION.

Totals

Total revenue
$3,998,061
Total expenses
$3,850,182
Contributions and grants received
$2,444,229
Grants paid
$337,673
Program service revenue
$228,385
Investment income
$116,285
Other revenue
$1,209,162
Total assets, end of year
$4,739,437
Total liabilities, end of year
$715,745
Net assets or fund balances, end of year
$4,023,692
Program services expenses (Part IX)
$2,804,461
Management and general expenses
$422,265
Fundraising expenses
$623,456
Program service expenses (Part III)
$2,804,461

Program services were 72.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $2,444,229

  • 2a · Program service revenue: TDP Services

    total $107,758 · unrelated business $0 · excluded $0

  • 2b · Program service revenue: Conference Registration Fees

    total $78,127 · unrelated business $0 · excluded $0

  • 2c · Program service revenue: Publications and Community Services

    total $42,500 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $116,285 · unrelated business $0 · excluded $116,285

  • 8a · Fundraising events: gross income

    $1,465,149

  • 8b · Fundraising events: direct expenses

    $323,242

  • 8c · Net income from fundraising events

    total $1,141,907 · unrelated business $0 · excluded $1,141,907

  • 11a · Other revenue: Other Income

    total $67,255 · related or exempt $67,255 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $67,255

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $337,673 · program services $337,673

  • 5 · Compensation of officers, directors and key employees

    total $1,137,732 · program services $910,186 · management and general $56,886 · fundraising $170,660

  • 7 · Other salaries and wages

    total $609,070 · program services $487,256 · management and general $30,454 · fundraising $91,360

  • 8 · Pension plan contributions

    total $78,278 · program services $62,622 · management and general $3,914 · fundraising $11,742

  • 9 · Other employee benefits

    total $117,460 · program services $93,968 · management and general $5,873 · fundraising $17,619

  • 10 · Payroll taxes

    total $117,816 · program services $94,252 · management and general $5,892 · fundraising $17,672

  • 11g · Fees: other

    total $478,941 · program services $176,597 · management and general $249,424 · fundraising $52,920

  • 16 · Occupancy

    total $23,147 · program services $17,780 · management and general $2,033 · fundraising $3,334

  • 17 · Travel

    total $83,585 · program services $66,868 · management and general $4,179 · fundraising $12,538

  • 19 · Conferences, conventions and meetings

    total $180,759 · program services $160,493 · management and general $19,519 · fundraising $747

  • 23 · Insurance

    total $15,718 · program services $12,574 · management and general $786 · fundraising $2,358

  • 24a · Other expenses: Advocacy

    total $85,779 · program services $85,779 · management and general $0 · fundraising $0

  • 24b · Other expenses: Scholarships

    total $16,333 · program services $16,333 · management and general $0 · fundraising $0

  • 24c · Other expenses: Supplies and Equipment

    total $16,503 · program services $8,240 · management and general $6,399 · fundraising $1,864

  • 24d · Other expenses: Technology and Software

    total $123,702 · program services $98,962 · management and general $6,185 · fundraising $18,555

  • 24e · All other expenses

    total $427,686 · program services $174,878 · management and general $30,721 · fundraising $222,087

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $431,830 · end of year $412,367

  • 2 · Savings and temporary cash investments

    beginning of year $2,669,305 · end of year $1,787,000

  • 4 · Accounts receivable

    end of year $35,850

  • 9 · Prepaid expenses and deferred charges

    beginning of year $89,193 · end of year $80,535

  • 10c · Land, buildings and equipment, net

    beginning of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $1,038,076 · end of year $2,363,643

  • 15 · Other assets

    beginning of year $85,952 · end of year $60,042

  • 17 · Accounts payable and accrued expenses

    beginning of year $143,756 · end of year $124,697

  • 19 · Deferred revenue

    beginning of year $325,000 · end of year $530,000

  • 25 · Other liabilities

    beginning of year $86,035 · end of year $61,048

  • 27 · Net assets without donor restrictions

    beginning of year $3,345,731 · end of year $3,681,645

  • 28 · Net assets with donor restrictions

    beginning of year $413,834 · end of year $342,047

Mission and programs · 2025

Mission

NAAF drives research to find a cure and accessible treatments for alopecia areata, supports those those impacted, and educates the public about the disease.

  • Awareness and support - provided emotional support and medical updates for persons suffering from Alopecia Areata. Services provided include monthly live webinars, a youth mentor program, support groups for parents and people living with alopecia areata, a robust website with resources including but not limited to patient brochures, school advisory toolkit as well as resources for insurance and finding local doctors who treat alopecia areata. Sponsored annual patient conference which featured support sessions, and which was attended by persons from the US and other countries. Walk For Alopecia held in September during Alopecia Areata Awareness month to raise funds and awareness of Alopecia areata. NAAFs Treatment Development programs funded medical research to find safe and effective treatments or cure for alopecia areata.

    Expenses $2,804,461 · Grants $337,673 · Revenue $228,385

As filed on the 2025 return.

Listed in Part VII

  • Ann Hollins

    Chair

    Total calculated
    $0
    Hours/week
    4

  • Bonnie Chong

    Director

    Total calculated
    $0
    Hours/week
    4

  • Jonelle Massey

    Director

    Total calculated
    $0
    Hours/week
    2

  • Jim OConnell

    Chief Financial Officer

    Total calculated
    $0
    Hours/week
    4

  • Tyrone Folliard-Olson

    Vice Chair

    Total calculated
    $0
    Hours/week
    4

  • Simon Rubenstein

    Director

    Total calculated
    $0
    Hours/week
    2

  • Maureen McGettigan

    Secretary

    Total calculated
    $0
    Hours/week
    4

  • Ron Saca

    Director

    Total calculated
    $0
    Hours/week
    2

  • Dr Brett King

    Director

    Total calculated
    $0
    Hours/week
    2

  • Shamsha Damani

    Director

    Total calculated
    $0
    Hours/week
    2

  • David Granson

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lisa Bard Levine

    Director

    Total calculated
    $0
    Hours/week
    2

  • Ruth Rama-Witt

    Director

    Total calculated
    $0
    Hours/week
    2

  • Shawn Borisoff

    Director

    Total calculated
    $0
    Hours/week
    2

  • Nicole Friedland

    President & CEO

    Total calculated
    $352,349
    From this org
    $327,697
    From related orgs
    $0
    Other
    $24,652
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $327,697
    Bonus
    $62,000
    Other
    $0
    Deferred
    $22,932
    Nontaxable benefits
    $1,630
    Filer's total
    $414,259

  • Laura Maciag

    Chief Operating Officer

    Total calculated
    $220,640
    From this org
    $203,975
    From related orgs
    $0
    Other
    $16,665
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $204,975
    Bonus
    $20,000
    Other
    $0
    Deferred
    $14,342
    Nontaxable benefits
    $2,323
    Filer's total
    $241,640

  • Robert Baker III

    Chief Growth Officer

    Total calculated
    $205,741
    From this org
    $192,125
    From related orgs
    $0
    Other
    $13,616
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $194,125
    Bonus
    $12,000
    Other
    $0
    Deferred
    $13,587
    Nontaxable benefits
    $29
    Filer's total
    $219,741

  • Lisa Anderson

    Vice President of Research and Education

    Total calculated
    $154,306
    From this org
    $144,156
    From related orgs
    $0
    Other
    $10,150
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $144,156
    Bonus
    $10,000
    Other
    $0
    Deferred
    $10,087
    Nontaxable benefits
    $63
    Filer's total
    $164,306

  • George Gondo

    Chief Mission Officer

    Total calculated
    $163,166
    From this org
    $159,517
    From related orgs
    $0
    Other
    $3,649
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $160,017
    Bonus
    $0
    Other
    $0
    Deferred
    $2,333
    Nontaxable benefits
    $1,316
    Filer's total
    $163,666

  • Jenna Smith

    Marketing and Communications Director

    Total calculated
    $111,319
    From this org
    $110,262
    From related orgs
    $0
    Other
    $1,057
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
9 March 2026
IRS schema version
2025v4.1
Source object
202621189349302472

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