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← LUPUS AND ALLIED DISEASES ASSOCIATION INC

Form 990 for tax year 2023

Filed by LUPUS AND ALLIED DISEASES ASSOCIATION INC.

Totals

Total revenue
$1,076,141
Total expenses
$744,720
Contributions and grants received
$990,000
Grants paid
$562,390
Program service revenue
$0
Investment income
$86,141
Other revenue
$0
Total assets, end of year
$2,577,966
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$2,577,966
Program services expenses (Part IX)
$741,849
Management and general expenses
$2,327
Fundraising expenses
$544
Program service expenses (Part III)
$741,849

Program services were 99.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $402

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $172,681

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $816,917

  • 1g · Noncash contributions included above

    $0

  • 3 · Investment income

    total $86,141 · related or exempt $86,141 · unrelated business $0 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6a · Gross rents

    real property $0 · personal property $0

  • 6b · Less rental expenses

    real property $0 · personal property $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $0 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $0 · other assets $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 7d · Net gain or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $29,391

  • 8a · Fundraising events: contributions included on line 1c

    $172,681

  • 8b · Fundraising events: direct expenses

    $29,391

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $562,390 · program services $562,390

  • 2 · Grants to domestic individuals

    total $0 · program services $0

  • 3 · Grants to foreign organizations and individuals

    total $0 · program services $0

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 10 · Payroll taxes

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11a · Fees: management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11b · Fees: legal

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11c · Fees: accounting

    total $3,000 · program services $1,500 · management and general $1,500 · fundraising $0

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $0 · fundraising $0

  • 11f · Fees: investment management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11g · Fees: other

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 12 · Advertising and promotion

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 13 · Office expenses

    total $5,267 · program services $4,741 · management and general $263 · fundraising $263

  • 14 · Information technology

    total $2,821 · program services $2,539 · management and general $141 · fundraising $141

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 17 · Travel

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 20 · Interest

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $172 · program services $146 · management and general $17 · fundraising $9

  • 23 · Insurance

    total $2,619 · program services $2,357 · management and general $131 · fundraising $131

  • 24a · Other expenses: Education

    total $47,182 · program services $47,182 · management and general $0 · fundraising $0

  • 24b · Other expenses: Advocacy

    total $70,111 · program services $70,111 · management and general $0 · fundraising $0

  • 24c · Other expenses: Awareness

    total $50,883 · program services $50,883 · management and general $0 · fundraising $0

  • 24d · Other expenses: Charity Registration

    total $275 · program services $0 · management and general $275 · fundraising $0

  • 24e · All other expenses

    total $0 · program services $0 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $301,604 · end of year $546,988

  • 2 · Savings and temporary cash investments

    beginning of year $1,944,624 · end of year $2,029,934

  • 10a · Land, buildings and equipment: cost or other basis

    $6,298

  • 10b · Land, buildings and equipment: accumulated depreciation

    $5,254

  • 10c · Land, buildings and equipment, net

    beginning of year $317 · end of year $1,044

  • 17 · Accounts payable and accrued expenses

    beginning of year $0 · end of year $0

  • 18 · Grants payable

    beginning of year $0 · end of year $0

  • 19 · Deferred revenue

    beginning of year $0 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $2,246,545 · end of year $2,577,966

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $0

Mission and programs · 2023

Mission

The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life.

Activities or mission (Part I)

To enhance quality of life for those affected by lupus and allied diseases by providing education and empowerment programs and wielding the patient voice as a catalyst to improve healthcare and treatment access, advance research and promote advocacy and awareness initiatives.

  • 1. The organization supported lupus research to improve methods of diagnosis and treatment by funding a $150,000 grant to the the Lupus Research Alliance to support Noninvasive Imaging of Lupus Nephritis and B Cells in Thrombosis and Fetal Loss. 2. The organization supported pediatric lupus research to study Neuropsychiatric SLE and Genetics to Advance Precision Medicine in the pediatric population by funding a $106,790 grant to the Childhood Arthritis and Rheumatology Research Alliance. 3. The organization also supported $50,000 to support the Michael Jon Barlin Childhood Pediatric Research Program to improve the quality of life for the pediatric population with lupus at the Lupus Foundation of America. 4. The organization funded the Marc R. Chevrier, MD, PhD, FACR, Lupus Research Memorial Fund at the Rheumatology Research Foundation by supporting a $25,600 preceptorship grant and a separate $30,000 grant to support Innovative Lupus Research. 5. The organization supported lupus research by funding a $200,000 grant to the Masonic Medical Research Institute to provide $50,000 to support a study on Gain-of-function mutations in SHP2 enhance inflammatory macrophage activation in SLE, $50,000 for Cell Activation in Murine Venous Thromboembolism, $50,000 for Delivery of Bifunctional Immunosuppressive Agents to the Renal Endothelium in Lupus Nephritis, and $50,000 for Identification of Novel Genes in Lupus Nephritis Development.

    Expenses $562,390 · Grants $562,390

  • The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life.

    Expenses $124,815

  • The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones.

    Expenses $54,644

As filed on the 2023 return.

Listed in Part VII

  • Kathleen A Arntsen

    President and CEO

    Total calculated
    $0
    Hours/week
    20

  • Lori A Vogel

    Treasurer

    Total calculated
    $0
    Hours/week
    14

  • David L Arntsen

    Secretary

    Total calculated
    $0
    Hours/week
    12

  • Sandra M Frear

    1st Vice President

    Total calculated
    $0
    Hours/week
    8

  • Anne M Zablotowicz

    2nd Vice President

    Total calculated
    $0
    Hours/week
    10

  • Jane M Porter

    Director

    Total calculated
    $0
    Hours/week
    8

  • Jacqueline L Taylor

    Director

    Total calculated
    $0
    Hours/week
    5

  • Dina Thachet

    Director

    Total calculated
    $0
    Hours/week
    8

  • Meghan P Valadez

    Director

    Total calculated
    $0
    Hours/week
    4

  • Brian J Vogel

    Director

    Total calculated
    $0
    Hours/week
    4

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
23 January 2025
IRS schema version
2023v6.0
Source object
202540249349300804

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