Skip to content
Nonprofiteer
← All organizations

CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE

EIN 46-4152355 WASHINGTON, DC

Revenue 2024
$9,591,717
Expenses 2024
$10,591,561

Program services were 85.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G51
Classification
1000
Street
1050 CONNECTICUT AVE NW STE 500

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • ROBERT COLBERT MD PHD

    PAST PRESIDENT

    Total calculated
    $35,000
    From this org
    $35,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    10

  • EMILY VON SCHEVEN MD MAS

    PAST PRESIDENT

    Total calculated
    $33,723
    From this org
    $33,723
    From related orgs
    $0
    Other
    $0
    Hours/week
    10

  • STACY ARDOIN MD

    PRESIDENT

    Total calculated
    $62,208
    From this org
    $62,208
    From related orgs
    $0
    Other
    $0
    Hours/week
    15

  • CHRISTY SANDBORG MD

    CHAIR-SECRETARY

    Total calculated
    $0
    Hours/week
    3

  • JAY MEHTA MD MS

    VICE PRESIDENT

    Total calculated
    $51,899
    From this org
    $51,899
    From related orgs
    $0
    Other
    $0
    Hours/week
    10

  • CAROL WALLACE MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • HARRY SAAL PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • LEIGH WHITE JD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DANIEL SOLOMON MD PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JOHN SUNDY MD PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • ROBERT FUHLBRIGGE MD PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • AIMEE HERSH

    FINANCE CHAIR

    Total calculated
    $21,546
    From this org
    $21,546
    From related orgs
    $0
    Other
    $0
    Hours/week
    10

  • RICK GOULBURN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DIEGO MCDONALD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MATHIEU NELESSEN

    CEO

    Total calculated
    $377,109
    From this org
    $310,597
    From related orgs
    $0
    Other
    $66,512
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $310,597
    Bonus
    $0
    Other
    $0
    Deferred
    $16,878
    Nontaxable benefits
    $49,634
    Filer's total
    $377,109

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $9,591,717
    Expenses
    $10,591,561
    Contributions
    $876,245
    Grants paid
    $1,917,390
  • 2023
    Revenue
    $10,841,004
    Expenses
    $11,534,351
    Contributions
    $525,959
    Grants paid
    $1,281,542
  • 2022
    Revenue
    $10,561,848
    Expenses
    $11,144,720
    Contributions
    $648,501
    Grants paid
    $2,002,352

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.