Form 990 for tax year 2023
Filed by CYSTINOSIS RESEARCH FOUNDATION.
Totals
- Total revenue
- $3,187,305
- Total expenses
- $4,157,212
- Contributions and grants received
- $2,739,787
- Grants paid
- $3,106,189
- Program service revenue
- $0
- Investment income
- $447,518
- Other revenue
- $0
- Total assets, end of year
- $10,415,384
- Total liabilities, end of year
- $2,669,293
- Net assets or fund balances, end of year
- $7,746,091
- Program services expenses (Part IX)
- $3,690,815
- Management and general expenses
- $216,877
- Fundraising expenses
- $232,872
- Program service expenses (Part III)
- $3,690,815
Program services were 88.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$328,131
-
1f · All other contributions, gifts and grants
$2,411,656
-
3 · Investment income
total $282,656 · related or exempt $282,656
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7a · Gross sales of assets other than inventory
securities $164,862
-
7c · Gain or loss
securities $164,862
-
7d · Net gain or loss
total $164,862 · related or exempt $164,862
-
8a · Fundraising events: contributions included on line 1c
$328,131
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $1,504,851 · program services $1,504,851
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $1,601,338 · program services $1,601,338
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $0
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $62,792 · program services $18,336 · management and general $43,933 · fundraising $523
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $0
-
10 · Payroll taxes
total $5,154 · program services $1,403 · management and general $3,555 · fundraising $196
-
11a · Fees: management
total $1,392 · management and general $1,392
-
11b · Fees: legal
total $44,295 · program services $13,104 · management and general $31,191
-
11c · Fees: accounting
total $88,876 · program services $12,745 · management and general $65,752 · fundraising $10,379
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $0
-
12 · Advertising and promotion
total $115,487 · program services $43,218 · fundraising $72,269
-
13 · Office expenses
total $0
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $0
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $16,648
-
23 · Insurance
total $12,122 · management and general $12,122
-
24a · Other expenses: EDUCATION
total $498,111 · program services $498,111
-
24b · Other expenses: MAGAZINE
total $142,751 · program services $50,188 · fundraising $92,563
-
24c · Other expenses: OUTSIDE SERVICES
total $84,000 · program services $64,500 · management and general $1,500 · fundraising $18,000
-
24d · Other expenses: RENT
total $32,088 · program services $8,865 · management and general $11,529 · fundraising $11,694
-
24e · All other expenses
total -$52,693 · program services -$125,844 · management and general $45,903 · fundraising $27,248
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
end of year $0
-
2 · Savings and temporary cash investments
beginning of year $6,005,918 · end of year $5,144,486
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $18,797 · end of year $48,476
-
10a · Land, buildings and equipment: cost or other basis
$160,958
-
10b · Land, buildings and equipment: accumulated depreciation
$143,835
-
10c · Land, buildings and equipment, net
beginning of year $35,010 · end of year $17,123
-
11 · Investments: publicly traded securities
beginning of year $4,212,457 · end of year $5,140,525
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
beginning of year $33,484 · end of year $64,774
-
17 · Accounts payable and accrued expenses
beginning of year $14,203 · end of year $31,780
-
18 · Grants payable
beginning of year $1,592,637 · end of year $2,572,904
-
25 · Other liabilities
beginning of year $36,310 · end of year $64,609
-
27 · Net assets without donor restrictions
beginning of year $8,662,516 · end of year $7,746,091
Mission and programs · 2023
Mission
CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding better treatments, including a cure, for our adults and children living with cystinosis.
Activities or mission (Part I)
Cystinosis Research Foundation's (CRF) mission is to support bench, clinical and translational research to find better treatments and a cure for cystinosis. CRF is dedicated to funding research that will improve the quality of life for those with cystinosis and to find a cure for this devastating disease.
-
Withheld by Nonprofiteer: this text may name a private individual.
Expenses $3,690,815
As filed on the 2023 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.
Listed in Part VII
-
Nancy J StackNANCY J STACK
CHAIR - TRUSTEE
- Total calculated
- $0
- Hours/week
- 40
-
Geoffrey StackGEOFFREY STACK
VICE CHAIR-TTEE
- Total calculated
- $0
- Hours/week
- 0
-
Donald L SolsbyDONALD L SOLSBY
TREASURER - TTE
- Total calculated
- $0
- Hours/week
- 2
-
Marcu AlexanderMARCU ALEXANDER
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Stephanie Cherqui PhDSTEPHANIE CHERQUI PHD
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Bruce CrairBRUCE CRAIR
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Jill Emerson CPAJILL EMERSON CPA
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Denice FlerchingerDENICE FLERCHINGER
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Clay Emerson PhD PE CfmCLAY EMERSON PHD PE CFM
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Angela KirchoffANGELA KIRCHOFF
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Stephen L JenkinsSTEPHEN L JENKINS
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
David W MossmanDAVID W MOSSMAN
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Kevin PartingtonKEVIN PARTINGTON
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Teresa PartingtonTERESA PARTINGTON
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Kristen MurrayKRISTEN MURRAY
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Brian SturgisBRIAN STURGIS
Trustee
- Total calculated
- $0
- Hours/week
- 0
-
Barbara KulykBARBARA KULYK
Trustee
- Total calculated
- $0
- Hours/week
- 0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$437,778
MEDICAL RESEARCH
-
$394,192
MEDICAL RESEARCH
-
$357,047
MEDICAL RESEARCH
-
$165,834
MEDICAL RESEARCH
-
$150,000
MEDICAL RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 9 December 2024
- IRS schema version
- 2023v5.1
- Source object
- 202443449349301124
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