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CYSTINOSIS RESEARCH FOUNDATION

EIN 32-0067668 NEWPORT BEACH, CA

Browse the largest nonprofits in California

Revenue 2024
$3,177,424
Expenses 2024
$3,438,007

Program services were 89.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H80
Classification
1000
Street
3501 AMBOREE RD STE 6100 N TOWER

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new, cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding better treatments, including a cure, for our adults and children living with cystinosis.

Activities or mission (Part I)

Cystinosis Research Foundation's (CRF) mission is to support bench, clinical, and translational research to find better treatments and a cure for cystinosis. CRF is dedicated to funding research that will improve the quality of life for those with cystinosis and to find a cure for this devastating disease.

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $3,072,586

As filed on the 2024 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Nancy J Stack

    CHAIR - TRUSTEE

    Total calculated
    $0
    Hours/week
    40

  • Geoffrey Stack

    VICE CHAIR-TTEE

    Total calculated
    $0
    Hours/week
    0

  • Donald L Solsby

    TREASURER - TTE

    Total calculated
    $0
    Hours/week
    2

  • Marcu Alexander

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Stephanie Cherqui PhD

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Bruce Crair

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Jill Emerson CPA

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Denice Flerchinger

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Clay Emerson PhD PE Cfm

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Angela Kirchoff

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Stephen L Jenkins

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • David W Mossman

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Kevin Partington

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Teresa Partington

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Kristen Murray

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Brian Sturgis

    Trustee

    Total calculated
    $0
    Hours/week
    0

  • Barbara Kulyk

    Trustee

    Total calculated
    $0
    Hours/week
    0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $3,177,424
    Expenses
    $3,438,007
    Contributions
    $2,445,467
    Grants paid
    $2,203,637
  • 2023
    Revenue
    $3,187,305
    Expenses
    $4,157,212
    Contributions
    $2,739,787
    Grants paid
    $3,106,189
  • 2022
    Revenue
    $3,244,975
    Expenses
    $2,871,720
    Contributions
    $2,894,123
    Grants paid
    $1,648,127

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $3,589,447
    Expenses
    $3,072,713
    Assets (EOY)
    $10,168,657

  • 2020 · 990

    Revenue
    $3,809,513
    Expenses
    $3,470,840
    Assets (EOY)
    $10,349,578

  • 2019 · 990

    Revenue
    $4,308,424
    Expenses
    $3,362,690
    Assets (EOY)
    $9,847,694

  • 2018 · 990

    Revenue
    $5,402,719
    Expenses
    $5,870,413
    Assets (EOY)
    $9,691,493

  • 2017 · 990

    Revenue
    $4,655,704
    Expenses
    $4,270,333
    Assets (EOY)
    $9,121,015

  • 2016 · 990

    Revenue
    $4,857,558
    Expenses
    $3,037,548
    Assets (EOY)
    $6,325,183

  • 2015 · 990

    Revenue
    $3,282,703
    Expenses
    $2,798,362
    Assets (EOY)
    $4,779,733

  • 2014 · 990

    Revenue
    $3,439,384
    Expenses
    $3,103,620
    Assets (EOY)
    $4,481,739

  • 2013 · 990

    Revenue
    $3,299,549
    Expenses
    $2,447,190
    Assets (EOY)
    $3,700,806

  • 2012 · 990

    Revenue
    not reported
    Expenses
    $3,206,982
    Assets (EOY)
    $3,287,069

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.