Form 990 for tax year 2024
Filed by EPILEPSY FOUNDATION OF AMERICA.
Totals
- Total revenue
- $16,178,770
- Total expenses
- $18,974,202
- Contributions and grants received
- $16,885,704
- Grants paid
- $327,949
- Program service revenue
- $438,780
- Investment income
- $150,675
- Other revenue
- -$1,296,389
- Total assets, end of year
- $19,977,394
- Total liabilities, end of year
- $2,086,893
- Net assets or fund balances, end of year
- $17,890,501
- Program services expenses (Part IX)
- $14,421,542
- Management and general expenses
- $2,844,839
- Fundraising expenses
- $1,707,821
- Program service expenses (Part III)
- $14,421,542
Program services were 76.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$2,945,668
-
1e · Government grants (contributions)
$3,575,845
-
1f · All other contributions, gifts and grants
$10,364,191
-
1g · Noncash contributions included above
$50,110
-
2a · Program service revenue: AFFILIATE FEES
total $338,780 · related or exempt $338,780
-
2b · Program service revenue: ELHS MEMBERSHIP
total $100,000 · related or exempt $100,000
-
3 · Investment income
total $588,026 · excluded $588,026
-
7a · Gross sales of assets other than inventory
securities $6,460,427
-
7b · Less cost or other basis and sales expenses
securities $6,897,778
-
7c · Gain or loss
securities -$437,351
-
7d · Net gain or loss
total -$437,351 · excluded -$437,351
-
8a · Fundraising events: gross income
$0
-
8a · Fundraising events: contributions included on line 1c
$2,945,668
-
8b · Fundraising events: direct expenses
$1,296,389
-
8c · Net income from fundraising events
total -$1,296,389 · excluded -$1,296,389
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $202,949 · program services $202,949
-
3 · Grants to foreign organizations and individuals
total $125,000 · program services $125,000
-
5 · Compensation of officers, directors and key employees
total $1,174,434 · program services $815,276 · management and general $266,562 · fundraising $92,596
-
7 · Other salaries and wages
total $7,364,936 · program services $5,851,819 · management and general $911,183 · fundraising $601,934
-
8 · Pension plan contributions
total $412,418 · program services $335,925 · management and general $43,387 · fundraising $33,106
-
9 · Other employee benefits
total $854,285 · program services $674,699 · management and general $106,403 · fundraising $73,183
-
10 · Payroll taxes
total $333,037 · program services $259,090 · management and general $44,559 · fundraising $29,388
-
11b · Fees: legal
total $157,108 · program services $111,676 · management and general $28,762 · fundraising $16,670
-
11c · Fees: accounting
total $79,089 · program services $56,218 · management and general $14,479 · fundraising $8,392
-
11e · Fees: professional fundraising services
total $290,397 · fundraising $290,397
-
11f · Fees: investment management
total $61,147 · management and general $61,147
-
11g · Fees: other
total $4,988,215 · program services $3,719,868 · management and general $999,087 · fundraising $269,260
-
13 · Office expenses
total $842,589 · program services $461,978 · management and general $215,340 · fundraising $165,271
-
16 · Occupancy
total $117,146 · program services $114,219 · management and general $1,366 · fundraising $1,561
-
17 · Travel
total $1,484,124 · program services $1,280,641 · management and general $117,042 · fundraising $86,441
-
21 · Payments to affiliates
total $307,500 · program services $303,400 · fundraising $4,100
-
22 · Depreciation, depletion and amortization
total $24,146 · program services $14,488 · management and general $4,829 · fundraising $4,829
-
23 · Insurance
total $155,682 · program services $94,296 · management and general $30,693 · fundraising $30,693
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,992,628 · end of year $2,202,848
-
2 · Savings and temporary cash investments
beginning of year $166,430 · end of year $165,141
-
3 · Pledges and grants receivable
beginning of year $287,746 · end of year $924,073
-
4 · Accounts receivable
beginning of year $277,284
-
7 · Other notes and loans receivable
beginning of year $7,603 · end of year $984
-
9 · Prepaid expenses and deferred charges
beginning of year $600,787 · end of year $252,358
-
10a · Land, buildings and equipment: cost or other basis
$770,087
-
10b · Land, buildings and equipment: accumulated depreciation
$575,672
-
10c · Land, buildings and equipment, net
beginning of year $27,524 · end of year $194,415
-
11 · Investments: publicly traded securities
beginning of year $13,901,746 · end of year $11,923,338
-
12 · Investments: other securities
beginning of year $295,054 · end of year $97,911
-
15 · Other assets
beginning of year $3,723,134 · end of year $4,216,326
-
17 · Accounts payable and accrued expenses
beginning of year $1,270,845 · end of year $2,001,668
-
19 · Deferred revenue
beginning of year $154,165 · end of year $43,142
-
25 · Other liabilities
beginning of year $32,297 · end of year $42,083
-
27 · Net assets without donor restrictions
beginning of year $13,562,818 · end of year $12,479,614
-
28 · Net assets with donor restrictions
beginning of year $6,259,811 · end of year $5,410,887
Mission and programs · 2024
Mission
TO IMPROVE THE LIVES OF PEOPLES AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.
-
ADVOCACY AND SERVICES FOR INDIVIDUALS, FAMILIES, AND COMMUNITIES - DESIGNED TO ENSURE THAT ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURE DISORDERS, AND THIER FAMILIES AND COMMUNITIES, RECEIVE THE BEST POSSIBLE SERVICES AND CARE. THE FOUNDATION DEVELOPS NATIONWIDE PROGRAMS AVAILABLE THROUGH ITS NETWORK OF NEARLY FIFTY LOCAL EPILEPSY FOUNDATIONS AND CAN ALSO BE FOUND ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND ADULTS ON IMPROVING THEIR QUALITY OF LIFE. THE FOUNDATION ALSO HAS PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IMPROVING OVERALL WELLNESS. THE PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS.
Expenses $10,433,192 · Revenue $338,780
-
PUBLIC HEALTH, EDUCATION, AND AWARENESS - PROVIDES EDUCATIONAL AND SUPPORTING SERVICES THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY. THE PROGRAM UTILIZES TRADITIONAL AND DIGITAL MEDIA CHANNELS INCLUDING SOCIAL MEDIA AND THROUGH THE DIRECT MAIL PROGRAM WHICH SERVE THE DUAL PURPOSE OF RAISING FUNDS FOR THE FOUNDATION AND INCREASING AWARENESS OF THE FOUNDATION'S CAUSE. THE FOUNDATION EDUCATES THROUGH ENGAGEMENT WITH MEDIA SOURCES, AND PARTNERSHIPS WITH OTHER NON-PROFITS AND PROFESSIONAL AND GOVERNMENT ORGANIZATIONS. IN ADDITION, THE FOUNDATION ESTABLISHED THE EPILEPSY LEARNING HEALTHCARE SYSTEM (ELHS) NETWORK, WHICH IS A PUBLIC HEALTH INITIATIVE TO DRIVE QUALITY HEALTH SERVICES RESEARCH TO IMPROVE MEDICAL OUTCOMES FOR PEOPLE WITH EPILEPSY.
Expenses $2,739,509 · Revenue $100,000
-
RESEARCH, INNOVATION, AND NEW THERAPIES - ACCELERATES THE DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF EPILEPSIES, AND SEEKS TO ADDRESS THE GAP IN THE RESEARCH AND COMMERCIALIZATION CONTINUUM. THE MAIN OBJECTIVE IS TO DEVELOP AN EPILEPSY RESEARCH ECOSYSTEM THAT COVERS ALL PARTS OF THERAPY, FROM IDEA TO MARKET. THE FOUNDATION'S RESEARCH INITIATIVES INCLUDE: INNOVATION PROGRAMS THAT TEST NEW IDEAS AND FOLLOW NEW RESEARCH LEADS AND ENGAGEMENT PROGRAMS THAT IMPROVE COMMUNICATION BETWEEN PEOPLE WITH EPILEPSY, THEIR FAMILIES, ADVOCATES, RESEARCHERS, AND INVESTORS. DIGITAL TOOLS THAT SUPPORT RESEARCH INFRASTRUCTURE. FUNDING THAT SUPPORTS YOUNG RESEARCHERS TO BRING THEIR IDEAS TO LIFE. PRACTICE SOLUTIONS TO ERADICATE SUDDEN AND UNEXPECTED DEATH IN EPILEPSY (SUDEP).
Expenses $1,248,841 · Grants $327,949
As filed on the 2024 return.
Listed in Part VII
-
COURTNEY CAPUTO
CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
MARK THEEUWES
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
DAVID HAWK
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
JOSH GOLDEN
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
JEFF PARENT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JOHN LANNEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ELI CORBETT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DARYL DRABINSKY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JEANNINE GARAB
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
WASIM MALIK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAVID MOORE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
NOAH RICHMOND
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ANGELICA ROIZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MARY WELDON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BERNICE LEE
CHIEF EXECUTIVE OFFICER
- Total calculated
- $481,358
- From this org
- $451,255
- From related orgs
- $0
- Other
- $30,103
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $365,750
- Bonus
- $85,505
- Other
- $0
- Deferred
- $18,640
- Nontaxable benefits
- $11,463
- Filer's total
- $481,358
-
BRANDY FUREMAN
CHIEF OUTCOMES OFFICER
- Total calculated
- $299,735
- From this org
- $259,791
- From related orgs
- $0
- Other
- $39,944
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $249,791
- Bonus
- $10,000
- Other
- $0
- Deferred
- $18,185
- Nontaxable benefits
- $21,759
- Filer's total
- $299,735
-
LAURA WEIDNER
CHIEF ADVOCACY AND GOVERNMENT RELATIONS OFFICER
- Total calculated
- $247,755
- From this org
- $225,000
- From related orgs
- $0
- Other
- $22,755
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $215,000
- Bonus
- $10,000
- Other
- $0
- Deferred
- $15,450
- Nontaxable benefits
- $7,305
- Filer's total
- $247,755
-
RAHEL ROSNER UNTIL SEPT 2024
CHIEF FINANCIAL OFFICER
- Total calculated
- $173,273
- From this org
- $156,345
- From related orgs
- $0
- Other
- $16,928
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $156,345
- Bonus
- $0
- Other
- $0
- Deferred
- $8,534
- Nontaxable benefits
- $8,394
- Filer's total
- $173,273
-
WANDA COOK BEG NOV 2024
CHIEF FINANCIAL OFFICER
- Total calculated
- $52,941
- From this org
- $49,855
- From related orgs
- $0
- Other
- $3,086
- Hours/week
- 35 + 0.1 related
-
NATHAN DEVAULT
VP MARKETING AND COMMUNICATIONS
- Total calculated
- $212,168
- From this org
- $178,423
- From related orgs
- $0
- Other
- $33,745
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $174,923
- Bonus
- $3,500
- Other
- $0
- Deferred
- $7,137
- Nontaxable benefits
- $26,608
- Filer's total
- $212,168
-
KATHLEEN FARRELL
VP PUBLIC HEALTH OUTCOMES
- Total calculated
- $207,153
- From this org
- $162,248
- From related orgs
- $0
- Other
- $44,905
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $158,748
- Bonus
- $3,500
- Other
- $0
- Deferred
- $11,357
- Nontaxable benefits
- $33,548
- Filer's total
- $207,153
-
DANIELLE SOLOMON
VP HUMAN RESOURCES
- Total calculated
- $184,589
- From this org
- $161,710
- From related orgs
- $0
- Other
- $22,879
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $158,210
- Bonus
- $3,500
- Other
- $0
- Deferred
- $11,215
- Nontaxable benefits
- $11,664
- Filer's total
- $184,589
-
CAITLIN GRZESKOWIAK
CHIEF RESEARCH AND INNOVATION OFFICER
- Total calculated
- $177,397
- From this org
- $165,792
- From related orgs
- $0
- Other
- $11,605
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $162,292
- Bonus
- $3,500
- Other
- $0
- Deferred
- $11,605
- Nontaxable benefits
- $0
- Filer's total
- $177,397
-
GREGG FORT
VP REGIONAL OPERATIONS
- Total calculated
- $170,080
- From this org
- $147,826
- From related orgs
- $0
- Other
- $22,254
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $144,326
- Bonus
- $3,500
- Other
- $0
- Deferred
- $10,348
- Nontaxable benefits
- $11,906
- Filer's total
- $170,080
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Compensation committee
- 3 · Independent compensation consultant
- 3 · Form 990 of other organizations
- 3 · Written employment contract
- 3 · Compensation survey or study
- 3 · Approval by the board or compensation committee
- 4a · Severance or change-of-control payment
Answered no
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
The filer's explanations (Part III)
- PART I, LINE 4A
- RAHEL ROSNER RECEIVED A SEVERANCE PAYMENT OF 34,435
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
$75,000
SHARK TANK WINNER
-
$50,000
SUPPORT THE CLINICAL RESEARCH TRAINING SCHOLARSHIP
-
$12,500
SHARK TANK WINNER
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
501(C)(3) · RESEARCH · MD
Directly controlled by EPILEPSY FOUNDATION OF AMERICA
-
EPILEPSY SERVICES OF WEST CENTRAL FLORIDA
501(C)(3) · RESEARCH · FL
Directly controlled by EPILEPSY FOUNDATION OF AMERICA
Taxable family on this return
Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.
Disregarded entities
Part I: entities that legally are the filer and file no return of their own.
-
EPILEPSY VENTURES FUND LLC
EPILEPSY INVESTMENTS · DE
Directly controlled by EPILEPSY FOUNDATION OF AMERICA
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 17 April 2026
- IRS schema version
- 2024v5.5
- Source object
- 202611079349300326
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