- Revenue 2024
- $16,178,770
- Expenses 2024
- $18,974,202
Program services were 76.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G54Z
- Classification
- 1000
- Street
- 3540 CRAIN HWY STE 675
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
COURTNEY CAPUTO
CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
MARK THEEUWES
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
DAVID HAWK
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
JOSH GOLDEN
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
JEFF PARENT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JOHN LANNEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ELI CORBETT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DARYL DRABINSKY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JEANNINE GARAB
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
WASIM MALIK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAVID MOORE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
NOAH RICHMOND
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ANGELICA ROIZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
MARY WELDON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BERNICE LEE
CHIEF EXECUTIVE OFFICER
- Total calculated
- $481,358
- From this org
- $451,255
- From related orgs
- $0
- Other
- $30,103
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $365,750
- Bonus
- $85,505
- Other
- $0
- Deferred
- $18,640
- Nontaxable benefits
- $11,463
- Filer's total
- $481,358
-
BRANDY FUREMAN
CHIEF OUTCOMES OFFICER
- Total calculated
- $299,735
- From this org
- $259,791
- From related orgs
- $0
- Other
- $39,944
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $249,791
- Bonus
- $10,000
- Other
- $0
- Deferred
- $18,185
- Nontaxable benefits
- $21,759
- Filer's total
- $299,735
-
LAURA WEIDNER
CHIEF ADVOCACY AND GOVERNMENT RELATIONS OFFICER
- Total calculated
- $247,755
- From this org
- $225,000
- From related orgs
- $0
- Other
- $22,755
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $215,000
- Bonus
- $10,000
- Other
- $0
- Deferred
- $15,450
- Nontaxable benefits
- $7,305
- Filer's total
- $247,755
-
RAHEL ROSNER UNTIL SEPT 2024
CHIEF FINANCIAL OFFICER
- Total calculated
- $173,273
- From this org
- $156,345
- From related orgs
- $0
- Other
- $16,928
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $156,345
- Bonus
- $0
- Other
- $0
- Deferred
- $8,534
- Nontaxable benefits
- $8,394
- Filer's total
- $173,273
-
WANDA COOK BEG NOV 2024
CHIEF FINANCIAL OFFICER
- Total calculated
- $52,941
- From this org
- $49,855
- From related orgs
- $0
- Other
- $3,086
- Hours/week
- 35 + 0.1 related
-
NATHAN DEVAULT
VP MARKETING AND COMMUNICATIONS
- Total calculated
- $212,168
- From this org
- $178,423
- From related orgs
- $0
- Other
- $33,745
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $174,923
- Bonus
- $3,500
- Other
- $0
- Deferred
- $7,137
- Nontaxable benefits
- $26,608
- Filer's total
- $212,168
-
KATHLEEN FARRELL
VP PUBLIC HEALTH OUTCOMES
- Total calculated
- $207,153
- From this org
- $162,248
- From related orgs
- $0
- Other
- $44,905
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $158,748
- Bonus
- $3,500
- Other
- $0
- Deferred
- $11,357
- Nontaxable benefits
- $33,548
- Filer's total
- $207,153
-
DANIELLE SOLOMON
VP HUMAN RESOURCES
- Total calculated
- $184,589
- From this org
- $161,710
- From related orgs
- $0
- Other
- $22,879
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $158,210
- Bonus
- $3,500
- Other
- $0
- Deferred
- $11,215
- Nontaxable benefits
- $11,664
- Filer's total
- $184,589
-
CAITLIN GRZESKOWIAK
CHIEF RESEARCH AND INNOVATION OFFICER
- Total calculated
- $177,397
- From this org
- $165,792
- From related orgs
- $0
- Other
- $11,605
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $162,292
- Bonus
- $3,500
- Other
- $0
- Deferred
- $11,605
- Nontaxable benefits
- $0
- Filer's total
- $177,397
-
GREGG FORT
VP REGIONAL OPERATIONS
- Total calculated
- $170,080
- From this org
- $147,826
- From related orgs
- $0
- Other
- $22,254
- Hours/week
- 35 + 0.1 related
Schedule J breakdown matched by us
- Base
- $144,326
- Bonus
- $3,500
- Other
- $0
- Deferred
- $10,348
- Nontaxable benefits
- $11,906
- Filer's total
- $170,080
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $16,178,770
- Expenses
- $18,974,202
- Contributions
- $16,885,704
- Grants paid
- $327,949
-
2023
- Revenue
- $15,593,499
- Expenses
- $16,514,182
- Contributions
- $15,124,954
- Grants paid
- $433,621
-
2022
- Revenue
- $17,841,214
- Expenses
- $15,981,333
- Contributions
- $18,834,892
- Grants paid
- $356,078
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
$237,494
2022 SEIZURE GAUGE GRANT
-
$150,000
2023 SUPPORT MEDIA AND PUBLIC AWARENESS FOR SOCIALLY MINDED ORGANIZATIONS
-
$75,000
2024 SHARK TANK WINNER
-
$50,000
2022 SUPPORT A YOUNG RESEARCHER IN THE FIELD OF EPILEPSY
-
$50,000
2022 SUPPORT THE CLINICAL RESEARCH TRAINING SCHOLARSHIP
-
$50,000
2023 SUPPORT A YOUNG RESEARCHER IN THE FIELD OF EPILEPSY
-
$50,000
2024 SUPPORT THE CLINICAL RESEARCH TRAINING SCHOLARSHIP
-
$49,917
2023 SUPPORT THE CLINICAL RESEARCH TRAINING SCHOLARSHIP
-
$12,500
2024 SHARK TANK WINNER
-
$10,000
2022 SUPPORT THE GORDON RESEARCH CONFERENCE
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
DONOR ADVISED CHARITABLE GIVING
$897,071
2024 HEALTH
-
$390,914
2024 GENERAL SUPPORT
-
$248,025
2023
-
DONOR ADVISED CHARITABLE GIVING
$244,088
2022 HEALTH
-
2024 GENERAL SUPPORT
-
2022 GENERAL SUPPORT
-
2023 GENERAL SUPPORT
-
2024 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$116,809
2023 HEALTH
-
$110,000
2024 DISEASE/DISORDER
The 10 largest by cash amount. The API serves every itemized grant.
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared on its 2024 return
-
501(C)(3) · RESEARCH · MD
-
EPILEPSY SERVICES OF WEST CENTRAL FLORIDA
501(C)(3) · RESEARCH · FL
Declared as related by
-
EPILEPSY FOUNDATION OF GREATER LOS ANGELES
On its 2024 return
-
EPILEPSY SERVICES OF WEST CENTRAL FLORIDA INC
On its 2024 return
California fundraising campaigns
Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.
-
TVI INC.
$44,787,041 in sales
2023 CF Thrift Store - Cost of Goods
$805,310 to charity
-
TVI INC.
$38,804,704 in sales
2022 CF Thrift Store - Cost of Goods
$862,860 to charity
-
TVI INC.
$31,936,639 in sales
2021 CF Thrift Store - Cost of Goods
$760,362 to charity
-
CREATIVE GENIUS LLC
$38,722 in sales
2021 Commercial Coventurer
$4,782 to charity
-
AUTOMOTIVE RECOVERY SERVICES INC
$36,600 raised
2021 CF Vehicle Donation Program
$31,379 to charity
-
TVI INC.
$19,450,585 in sales
2020 CF Thrift Store - Cost of Goods
$577,179 to charity
-
TVI INC.
$1,465,199 in sales
2020 CF Thrift Store - Cost of Goods
$32,576 to charity
-
AUTOMOTIVE RECOVERY SERVICES INC
$65,075 raised
2020 CF Vehicle Donation Program
$53,904 to charity
-
AUTOMOTIVE RECOVERY SERVICES INC
$39,175 raised
2019 CF Vehicle Donation Program
$27,576 to charity
Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.