Totals
- Total revenue
- $233,521
- Total expenses
- $234,377
- Contributions and grants received
- $146,621
- Grants paid
- $1,000
- Program service revenue
- $86,900
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $139,817
- Total liabilities, end of year
- $2,500
- Net assets or fund balances, end of year
- $137,317
- Program services expenses (Part IX)
- $137,804
- Management and general expenses
- $51,672
- Fundraising expenses
- $44,901
- Program service expenses (Part III)
- $137,804
Program services were 58.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$146,621
-
2a · Program service revenue: SERVICES REVENUE
total $86,900 · related or exempt $86,900
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $1,000 · program services $1,000
-
11a · Fees: management
total $126,000 · program services $75,600 · management and general $25,200 · fundraising $25,200
-
11b · Fees: legal
total $8,700 · program services $5,220 · management and general $1,740 · fundraising $1,740
-
11c · Fees: accounting
total $10,000 · management and general $10,000
-
11g · Fees: other
total $38,047 · program services $28,620 · management and general $7,778 · fundraising $1,649
-
12 · Advertising and promotion
total $1,946 · program services $1,141 · management and general $432 · fundraising $373
-
13 · Office expenses
total $3,537 · program services $2,076 · management and general $785 · fundraising $676
-
14 · Information technology
total $25,366 · program services $12,634 · management and general $1,481 · fundraising $11,251
-
16 · Occupancy
total $2,022 · program services $1,186 · management and general $449 · fundraising $387
-
17 · Travel
total $12,386 · program services $7,176 · management and general $2,614 · fundraising $2,596
-
19 · Conferences, conventions and meetings
total $1,968 · program services $1,154 · management and general $437 · fundraising $377
-
23 · Insurance
total $3,405 · program services $1,997 · management and general $756 · fundraising $652
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $108,326 · end of year $118,854
-
9 · Prepaid expenses and deferred charges
beginning of year $43,606 · end of year $20,963
-
17 · Accounts payable and accrued expenses
beginning of year $13,759 · end of year $2,500
-
27 · Net assets without donor restrictions
beginning of year $138,173 · end of year $137,317
Mission and programs · 2024
Mission
HEART VALVE VOICE US IS A NONPROFIT PATIENT ADVOCACY ORGANIZATION. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE.
-
PATIENT COMMUNITY BUILDING AND AWARENESS: HEART VALVE VOICE BUILT THE MY VALVE MY VOICE PATIENT COMMUNITY AND DEVELOPED RELATED SOCIAL MEDIA, VIDEO, AND OTHER CAMPAIGNS TO ENGAGE PATIENTS AND RAISE AWARENESS OF HEART VALVE DISEASE. THIS WAS FUNDED BY AN EVERY HEARTBEAT MATTERS GRANT FROM THE EDWARDS LIFESCIENCES FOUNDATION.VALVE IN RESEARCH: WITH A EUGENE WASHINGTON ENGAGEMENT AWARD FROM THE PATIENT CENTERED OUTCOMES RESEARCH INSTITUTE. HEART VALVE VOICE US INITIATED A VIRTUAL TRAINING PROGRAM FOR PATIENTS TO BECOME RESEARCH ADVISORS.
Expenses $137,804 · Grants $1,000 · Revenue $86,900
As filed on the 2024 return.
Listed in Part VII
-
Donnette SmithDONNETTE SMITH
CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Teresa Wright-JohnsonTERESA WRIGHT-JOHNSON
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 2
-
Sue Peschin Thru 624SUE PESCHIN THRU 624
SECRETARY
- Total calculated
- $0
- Hours/week
- 2
-
Norm Linsky Thru 624NORM LINSKY THRU 624
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
Christina RekashCHRISTINA REKASH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Chandra BranhamCHANDRA BRANHAM
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Elizabeth Perpetua DnpELIZABETH PERPETUA DNP
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
David AndelmanDAVID ANDELMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Wayne BatchelorWAYNE BATCHELOR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Donald MayDONALD MAY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Mark Russo MDMARK RUSSO MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Marilyn SerafiniMARILYN SERAFINI
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Vinod ThouraniVINOD THOURANI
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
Lindsay VidenieksLINDSAY VIDENIEKS
EXECUTIVE DIRECTOR (THRU SEP 2024)
- Total calculated
- $0
- Hours/week
- 2
-
Karissa CharlesKARISSA CHARLES
EXECUTIVE DIRECTOR (FROM OCT 2024)
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 11 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202503159349302890
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