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HEART VALVE VOICE US

EIN 81-4459237 WASHINGTON, DC

Browse the largest nonprofits in District of Columbia

Revenue 2024
$233,521
Expenses 2024
$234,377

Program services were 58.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G19
Classification
1000
Street
100 M ST SE STE 600

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

4 other organizations in the IRS Business Master File list the same street address. matched by us

This address is a suite or unit (STE 600). Organizations that share one are often clients of the same office-services firm, accountant or registered agent rather than related to each other.

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2024

Mission

HEART VALVE VOICE US IS A NONPROFIT PATIENT ADVOCACY ORGANIZATION. WE ADVOCATE FOR EARLY DETECTION, MEANINGFUL SUPPORT, AND TIMELY ACCESS TO APPROPRIATE TREATMENT FOR ALL PEOPLE AFFECTED BY HEART VALVE DISEASE.

  • PATIENT COMMUNITY BUILDING AND AWARENESS: HEART VALVE VOICE BUILT THE MY VALVE MY VOICE PATIENT COMMUNITY AND DEVELOPED RELATED SOCIAL MEDIA, VIDEO, AND OTHER CAMPAIGNS TO ENGAGE PATIENTS AND RAISE AWARENESS OF HEART VALVE DISEASE. THIS WAS FUNDED BY AN EVERY HEARTBEAT MATTERS GRANT FROM THE EDWARDS LIFESCIENCES FOUNDATION.VALVE IN RESEARCH: WITH A EUGENE WASHINGTON ENGAGEMENT AWARD FROM THE PATIENT CENTERED OUTCOMES RESEARCH INSTITUTE. HEART VALVE VOICE US INITIATED A VIRTUAL TRAINING PROGRAM FOR PATIENTS TO BECOME RESEARCH ADVISORS.

    Expenses $137,804 · Grants $1,000 · Revenue $86,900

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Donnette Smith

    CHAIR

    Total calculated
    $0
    Hours/week
    2
  • Teresa Wright-Johnson

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2
  • Sue Peschin Thru 624

    SECRETARY

    Total calculated
    $0
    Hours/week
    2
  • Norm Linsky Thru 624

    TREASURER

    Total calculated
    $0
    Hours/week
    2
  • Christina Rekash

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Chandra Branham

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Elizabeth Perpetua Dnp

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • David Andelman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Wayne Batchelor

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Donald May

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Mark Russo MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Marilyn Serafini

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Vinod Thourani

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2
  • Lindsay Videnieks

    EXECUTIVE DIRECTOR (THRU SEP 2024)

    Total calculated
    $0
    Hours/week
    2
  • Karissa Charles

    EXECUTIVE DIRECTOR (FROM OCT 2024)

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $233,521
    Expenses
    $234,377
    Contributions
    $146,621
    Grants paid
    $1,000
  • 2023
    Revenue
    $256,261
    Expenses
    $232,389
    Contributions
    $256,261
    Grants paid
    $0
  • 2022
    Revenue
    $358,043
    Expenses
    $373,741
    Contributions
    $334,168
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $257,825
    Expenses
    $522,798
    Assets (EOY)
    $140,549
  • 2020 · 990

    Revenue
    $755,631
    Expenses
    $567,761
    Assets (EOY)
    $408,580
  • 2019 · 990

    Revenue
    $422,986
    Expenses
    $360,019
    Assets (EOY)
    $221,262
  • 2018 · 990

    Revenue
    $323,405
    Expenses
    $194,643
    Assets (EOY)
    $156,728
  • 2017 · 990

    Revenue
    $353,500
    Expenses
    $177,577
    Assets (EOY)
    $175,923

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2016

Tax period
1 January 2016 to 31 December 2016
Principal officer
Chris May
Mailing address
700 5TH ST NW 2ND FLOORWASHINGTON DC 20001
Website
http://www.heartvalvevoice-us.org/

As filed, from the IRS e-Postcard file of 2 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

No itemized grant names this organization as a recipient. Only grants over $5,000 are itemized, and only by filers of the full Form 990.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.