Totals
- Total revenue
- $680,029
- Total expenses
- $738,905
- Contributions and grants received
- $677,391
- Grants paid
- $191,718
- Program service revenue
- $1,297
- Investment income
- $837
- Other revenue
- $504
- Total assets, end of year
- $185,108
- Total liabilities, end of year
- $77,436
- Net assets or fund balances, end of year
- $107,672
- Program services expenses (Part IX)
- $690,099
- Management and general expenses
- $48,806
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $690,099
Program services were 93.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$677,391
-
2a · Program service revenue: MEETING REVENUE
total $1,297 · related or exempt $1,297
-
3 · Investment income
total $837 · excluded $837
-
11a · Other revenue: MISCELLANEOUS REVENUE
total $504 · related or exempt $504
-
11e · Other revenue, total
$504
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $191,718 · program services $191,718
-
7 · Other salaries and wages
total $245,804 · program services $236,035 · management and general $9,769
-
11g · Fees: other
total $149,712 · program services $137,260 · management and general $12,452
-
13 · Office expenses
total $1,031 · program services $1,000 · management and general $31
-
19 · Conferences, conventions and meetings
total $6,377 · program services $5,716 · management and general $661
-
24a · Other expenses: STIPENDS/ADVISORY GROUP
total $65,086 · program services $65,086
-
24b · Other expenses: SUBCONTRACT
total $53,487 · program services $39,820 · management and general $13,667
-
24c · Other expenses: SOFTWARE AND SUBSCRIPTI
total $9,424 · program services $3,538 · management and general $5,886
-
24d · Other expenses: LAB PROCESSING
total $5,671 · program services $5,671
-
24e · All other expenses
total $10,595 · program services $4,255 · management and general $6,340
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $174,549 · end of year $135,298
-
2 · Savings and temporary cash investments
beginning of year $86,756 · end of year $0
-
3 · Pledges and grants receivable
beginning of year $20,000 · end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $1,330 · end of year $1,369
-
10a · Land, buildings and equipment: cost or other basis
$8,352
-
10b · Land, buildings and equipment: accumulated depreciation
$8,352
-
10c · Land, buildings and equipment, net
beginning of year $0 · end of year $0
-
11 · Investments: publicly traded securities
beginning of year $40,645 · end of year $48,441
-
17 · Accounts payable and accrued expenses
beginning of year $101,621 · end of year $11,915
-
18 · Grants payable
beginning of year $64,310 · end of year $65,521
-
27 · Net assets without donor restrictions
beginning of year $157,349 · end of year $107,672
Mission and programs · 2023
Mission
PXE INTERNATIONAL INC. INITIATES AND CONDUCTS RESEARCH, EDUCATES CLINICIANS, AND SUPPORTS INDIVIDUALS AFFECTED BY PSEUDOXANTHOMA ELASTICUM (PXE).
-
PXE INTERNATIONAL INITIATES, CONDUCTS, AND SUPPORTS RESEARCH ON PSEUDOXANTHOMA ELASTICUM (PXE). WE MANAGE A REGISTRY AND BIOBANK, AN EPIDEMIOLOGICAL STUDY, AND A NUMBER OF OTHER BIOMEDICAL STUDIES. WE RECRUIT FOR CLINICAL TRIALS.
Expenses $547,743 · Grants $191,718
-
PXE INTERNATIONAL SUPPORTS AFFECTED INDIVIDUALS AND THEIR FAMILIES BY OFFERING CLEAR, CONCISE, AND UP-TO-DATE INFORMATION. WE USE REGIONAL MEETINGS, WEBINARS, OUR WEBSITE, YOUTUBE, TWITTER, FACEBOOK, BIENNIAL CONFERENCES, AND A GOOGLE GROUPS CHAT LIST TO ENABLE A ROBUST, INTERACTIVE NETWORK OF SUPPORT. WE ALSO OFFER CONTACT INFORMATION FOR OTHERS WITH PXE WHO HAVE AGREED TO BE CONTACTED, A 24-HOUR ACCESS PHONE LINE, AND A ONE-WAY ANNOUNCEMENTS NEWSLETTER EMAIL LIST.
Expenses $142,356
As filed on the 2023 return.
Listed in Part VII
-
Lionel BercovitchLIONEL BERCOVITCH
MEDICAL DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Joseph MaasJOSEPH MAAS
TREASURER
- Total calculated
- $0
- Hours/week
- 4
-
Barbara DrewiczBARBARA DREWICZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 6
-
Jessica HarperJESSICA HARPER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Kathy HerseyKATHY HERSEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Sam HarperSAM HARPER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Claire DriscollCLAIRE DRISCOLL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
Sharon TerrySHARON TERRY
CEO
- Total calculated
- $0
- Hours/week
- 20
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$191,718
TO SUPPORT RESEARCH STAFF AND FACILITIES FOR THE ESTABLISHMENT OF THE PXE INTERNATIONAL CENTER OF EXCELLENCE IN RESEARCH AND CLINICAL CARE.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 15 July 2025
- IRS schema version
- 2023v6.0
- Source object
- 202501979349301220
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.