- Revenue 2024
- $692,622
- Expenses 2024
- $596,418
Program services were 93.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G80
- Classification
- 2000
- Street
- 26400 WOODFIELD RD UNIT 189
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Other organizations at this address
1 other organization in the IRS Business Master File lists the same street address. matched by us
This address is a suite or unit (UNIT 189). Organizations that share one are often clients of the same office-services firm, accountant or registered agent rather than related to each other.
We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.
-
GENETIC ALLIANCE INC
EIN 52-1571905
Mission and programs · 2024
Mission
PXE INTERNATIONAL INC. INITIATES AND CONDUCTS RESEARCH, EDUCATES CLINICIANS, AND SUPPORTS INDIVIDUALS AFFECTED BY PSEUDOXANTHOMA ELASTICUM (PXE).
-
PXE INTERNATIONAL INITIATES, CONDUCTS, AND SUPPORTS RESEARCH ON PSEUDOXANTHOMA ELASTICUM (PXE). WE MANAGE A REGISTRY AND BIOBANK, AN EPIDEMIOLOGICAL STUDY, AND A NUMBER OF OTHER BIOMEDICAL STUDIES. WE RECRUIT FOR CLINICAL TRIALS.
Expenses $438,201 · Grants $223,378
-
PXE INTERNATIONAL SUPPORTS AFFECTED INDIVIDUALS AND THEIR FAMILIES BY OFFERING CLEAR, CONCISE, AND UP-TO-DATE INFORMATION. WE USE REGIONAL MEETINGS, WEBINARS, OUR WEBSITE, YOUTUBE, TWITTER, FACEBOOK, BIENNIAL CONFERENCES, AND A GOOGLE GROUPS CHAT LIST TO ENABLE A ROBUST, INTERACTIVE NETWORK OF SUPPORT. WE ALSO OFFER CONTACT INFORMATION FOR OTHERS WITH PXE WHO HAVE AGREED TO BE CONTACTED, A 24-HOUR ACCESS PHONE LINE, AND A ONE-WAY ANNOUNCEMENTS NEWSLETTER EMAIL LIST.
Expenses $119,246
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Lionel BercovitchLIONEL BERCOVITCH
MEDICAL DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Joseph MaasJOSEPH MAAS
TREASURER
- Total calculated
- $0
- Hours/week
- 4
-
Barbara DrewiczBARBARA DREWICZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 6
-
Jessica HarperJESSICA HARPER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Kathy HerseyKATHY HERSEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Sam HarperSAM HARPER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Claire DriscollCLAIRE DRISCOLL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
Sharon TerrySHARON TERRY
CEO
- Total calculated
- $0
- Hours/week
- 20
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $692,622
- Expenses
- $596,418
- Contributions
- $689,780
- Grants paid
- $223,378
-
2023
- Revenue
- $680,029
- Expenses
- $738,905
- Contributions
- $677,391
- Grants paid
- $191,718
-
2022
- Revenue
- $615,098
- Expenses
- $501,093
- Contributions
- $611,179
- Grants paid
- $65,610
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $594,224
- Expenses
- $698,189
- Assets (EOY)
- $422,744
-
2020 · 990
- Revenue
- $400,017
- Expenses
- $593,578
- Assets (EOY)
- $348,262
-
2019 · 990
- Revenue
- $874,889
- Expenses
- $627,882
- Assets (EOY)
- $747,877
-
2018 · 990
- Revenue
- $440,553
- Expenses
- $610,580
- Assets (EOY)
- $198,658
-
2017 · 990
- Revenue
- $284,383
- Expenses
- $402,503
- Assets (EOY)
- $295,041
-
2016 · 990
- Revenue
- $601,102
- Expenses
- $784,409
- Assets (EOY)
- $446,202
-
2015 · 990
- Revenue
- $842,253
- Expenses
- $386,735
- Assets (EOY)
- $547,016
-
2014 · 990
- Revenue
- $310,940
- Expenses
- $299,188
- Assets (EOY)
- $86,771
-
2013 · 990
- Revenue
- $292,876
- Expenses
- $293,486
- Assets (EOY)
- $72,671
-
2012 · 990
- Revenue
- not reported
- Expenses
- $230,921
- Assets (EOY)
- $51,933
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
$223,378
2024 TO SUPPORT RESEARCH STAFF AND FACILITIES FOR THE ESTABLISHMENT OF THE PXE INTERNATIONAL CENTER OF EXCELLENCE IN RESEARCH AND CLINICAL CARE.
-
$191,718
2023 TO SUPPORT RESEARCH STAFF AND FACILITIES FOR THE ESTABLISHMENT OF THE PXE INTERNATIONAL CENTER OF EXCELLENCE IN RESEARCH AND CLINICAL CARE.
Grants received
-
DONOR ADVISED CHARITABLE GIVING
$325,000
2024 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$214,500
2023 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$155,600
2022 HEALTH
-
THE AYCO CHARITABLE FOUNDATION
$20,000
2022 MEDICAL / PUBLIC SERVICES
-
2022 For grant recipient's exempt purposes
-
2022 GENERAL SUPPORT
-
THE AYCO CHARITABLE FOUNDATION
$10,000
2023 MEDICAL / PUBLIC SERVICES
-
THE AYCO CHARITABLE FOUNDATION
$10,000
2024 MEDICAL / PUBLIC SERVICES
-
2023 GENERAL SUPPORT
-
2024 GENERAL SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.