Skip to content
Nonprofiteer
← KENNEDYS DISEASE ASSOCIATION

Form 990 for tax year 2024

Filed by KENNEDYS DISEASE ASSOCIATION.

Totals

Total revenue
$679,008
Total expenses
$669,795
Contributions and grants received
$686,608
Grants paid
$578,162
Program service revenue
$0
Investment income
$22,680
Other revenue
-$30,280
Total assets, end of year
$879,080
Total liabilities, end of year
$328,952
Net assets or fund balances, end of year
$550,128
Program services expenses (Part IX)
$654,630
Management and general expenses
$15,165
Fundraising expenses
$0
Program service expenses (Part III)
$654,630

Program services were 97.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $185,261

  • 1f · All other contributions, gifts and grants

    $501,347

  • 3 · Investment income

    total $22,680 · excluded $22,680

  • 8a · Fundraising events: contributions included on line 1c

    $185,261

  • 8b · Fundraising events: direct expenses

    $30,280

  • 8c · Net income from fundraising events

    total -$30,280

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $296,775 · program services $296,775

  • 3 · Grants to foreign organizations and individuals

    total $281,387 · program services $281,387

  • 11c · Fees: accounting

    total $8,500 · program services $8,500

  • 11f · Fees: investment management

    total $65 · management and general $65

  • 13 · Office expenses

    total $4,301 · management and general $4,301

  • 14 · Information technology

    total $3,711 · program services $3,711

  • 19 · Conferences, conventions and meetings

    total $64,257 · program services $64,257

  • 23 · Insurance

    total $1,572 · management and general $1,572

  • 24a · Other expenses: BANK CHARGES

    total $6,279 · management and general $6,279

  • 24b · Other expenses: LICENSE & FEES

    total $2,648 · management and general $2,648

  • 24c · Other expenses: MEMBERSHIPS

    total $300 · management and general $300

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $309,824 · end of year $354,435

  • 10a · Land, buildings and equipment: cost or other basis

    $3,295

  • 10b · Land, buildings and equipment: accumulated depreciation

    $3,295

  • 11 · Investments: publicly traded securities

    beginning of year $452,031 · end of year $524,645

  • 17 · Accounts payable and accrued expenses

    beginning of year $40 · end of year $1,065

  • 18 · Grants payable

    beginning of year $245,900 · end of year $327,887

  • 27 · Net assets without donor restrictions

    beginning of year $515,915 · end of year $527,128

  • 28 · Net assets with donor restrictions

    end of year $23,000

Mission and programs · 2024

Mission

TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).

  • TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL BULBAR ATROPHY).

    Expenses $534,887 · Grants $534,887

  • TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL BULBAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS.

    Expenses $19,880

  • TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL BULBAR ATROPHY).

    Expenses $99,863 · Grants $43,275

As filed on the 2024 return.

Listed in Part VII

  • Terry Thompson

    PRESIDENT

    Total calculated
    $0
    Hours/week
    20

  • Jameson Parker

    VICE PRESIDE

    Total calculated
    $0
    Hours/week
    5

  • John Lauber

    TREASURER

    Total calculated
    $0
    Hours/week
    12

  • Kathy Thompson

    SECRETARY

    Total calculated
    $0
    Hours/week
    20

  • Steven Rittmaster

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • Ron Moffett

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    3

  • Simon Hill

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    6

  • Dale Traxler

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • Joan Sorensen

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    4

  • Randy Soo Hoo

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    6

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
14 May 2025
IRS schema version
2024v5.0
Source object
202531359349313703

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.