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Nonprofiteer
← LYMELIGHT FOUNDATION INC

Form 990 for tax year 2022

Filed by LYMELIGHT FOUNDATION INC.

Totals

Total revenue
$931,726
Total expenses
$1,372,276
Contributions and grants received
$724,671
Grants paid
$1,008,700
Program service revenue
$0
Investment income
$1,897
Other revenue
$205,158
Total assets, end of year
$2,497,590
Total liabilities, end of year
$22,333
Net assets or fund balances, end of year
$2,475,257
Program services expenses (Part IX)
$1,179,166
Management and general expenses
$86,769
Fundraising expenses
$106,341
Program service expenses (Part III)
$1,179,166

Program services were 85.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $477,896

  • 1f · All other contributions, gifts and grants

    $246,775

  • 3 · Investment income

    total $1,897 · excluded $1,897

  • 8a · Fundraising events: gross income

    $310,688

  • 8a · Fundraising events: contributions included on line 1c

    $477,896

  • 8b · Fundraising events: direct expenses

    $106,157

  • 8c · Net income from fundraising events

    total $204,531 · excluded $204,531

  • 11a · Other revenue: MERCHANDISE SALES

    total $627 · excluded $627

  • 11e · Other revenue, total

    $627

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $1,008,700 · program services $1,008,700

  • 5 · Compensation of officers, directors and key employees

    total $20,742 · program services $15,557 · management and general $4,148 · fundraising $1,037

  • 10 · Payroll taxes

    total $1,815 · program services $1,361 · management and general $363 · fundraising $91

  • 11c · Fees: accounting

    total $42,132 · management and general $42,132

  • 11g · Fees: other

    total $239,121 · program services $112,387 · management and general $21,521 · fundraising $105,213

  • 13 · Office expenses

    total $18,275 · management and general $18,275

  • 14 · Information technology

    total $6,600 · program services $6,600

  • 17 · Travel

    total $2,394 · program services $2,394

  • 24a · Other expenses: AWARENESS AND EDUCATION

    total $25,861 · program services $25,861

  • 24b · Other expenses: OTHER EXPENSES

    total $5,170 · program services $4,840 · management and general $330

  • 24c · Other expenses: SUPPLIES

    total $1,466 · program services $1,466

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,023,079 · end of year $859,709

  • 2 · Savings and temporary cash investments

    beginning of year $297,908 · end of year $299,805

  • 3 · Pledges and grants receivable

    beginning of year $1,435,677 · end of year $1,160,283

  • 8 · Inventories for sale or use

    beginning of year $10,950 · end of year $12,150

  • 9 · Prepaid expenses and deferred charges

    beginning of year $755 · end of year $755

  • 11 · Investments: publicly traded securities

    beginning of year $172,799 · end of year $164,888

  • 17 · Accounts payable and accrued expenses

    beginning of year $17,450 · end of year $22,333

  • 27 · Net assets without donor restrictions

    beginning of year $1,002,189 · end of year $1,230,972

  • 28 · Net assets with donor restrictions

    beginning of year $1,921,529 · end of year $1,244,285

Mission and programs · 2022

Mission

OUR MISSION IS TO PROVIDE GRANTS TO ENABLE ELIGIBLE CHILDREN AND YOUNG ADULTS WITH LYME DISEASE TO RECEIVE PROPER TREATMENT AND MEDICATION AS WELL AS RAISING AWARENESS ABOUT LYME DISEASE.

Activities or mission (Part I)

PROVIDE GRANTS TO CHILDREN AND YOUNG ADULTS WITH LYME DISEASE WHO CANNOT AFFORD TREATMENT.

  • LYMELIGHT FOUNDATION PROVIDES MEDICAL GRANTS UP TO $10,000 ( CUMULATIVE) TO LYME INFECTED CHILDREN AND YOUNG ADULTS WHO CANNOT PAY FOR NECESSARY MEDICATION AND THERAPIES. GRANTS FUNDS COVER DOCTOR VISITS, MEDICATIONS, SUPPLEMENTS, LAB TESTING, ALTERNATIVE THERAPIES AND TRANSPORTATION TO OUT OF AREA PHYSICIANS. IN 2022, 226 TOTAL GRANTS WERE AWARDED; 135 TO NEW INDIVIDUALS AND 91 TO EXISTING RECIPIENTS. AS MOST INSURANCE COMPANIES DO NOT COVER THE TREATMENT OF CHRONIC LYME DISEASE, FAMILIES ARE TYPICALLY LEFT ON THEIR OWN TO BATTLE THE DISEASE, OFTEN INCURRING EXTREME MEDICAL DEBT. BY PROVIDING CRITICAL TREATMENT, LYMELIGHT BRIDGES THE GAP OF ENORMOUS UNMET NEED. SINCE ITS INCEPTION IN 2011, LYMELIGHT HAS AWARDED GRANTS TOTALING $8,039,770 TO 1,148 INDIVIDUALS IN 49 STATES.

    Expenses $1,008,700 · Grants $1,008,700

  • LYMELIGHT FOUNDATION IS DEDICATED TO EDUCATING THE PUBLIC ON THE TRUTH AND MISCONCEPTIONS ABOUT IDENTIFYING, CONTRACTING AND FIGHTING LYME DISEASE. LYMELIGHT FOUNDATION HOSTS AND PARTICIPATES IN SEVERAL LYME AWARENESS AND FUNDRAISING EVENTS INCLUDING DART FOR ART. ACTIVE SUPPORTERS INCLUDE SINGER-SONG WRITER AVRIL LAVIGNE AND AUXILIARY AND FUNDRAISING EVENTS IN 27 STATES.

    Expenses $170,466

  • LYMELIGHT FOUNDATION CONTINUES TO PROMOTE AND UTILIZE THE VIDEO SERIES CALLED PATIENT TALK. LYMELIGHT COLLABORATED WITH OTHER ORGANIZATIONS TO PRODUCE THE SERIES IN 2017 WHERE REAL PATIENTS TELL THEIR STORIES IN ADDRESSING THE PRACTICAL, PHYSICAL AND EMOTIONAL ISSUES THEY FACED WHEN DEALING WITH A LIFE CHANGING LYME DISEASE MEDICAL DIAGNOSIS. THESE EDUCATIONAL MEDICAL VIDEOS DETAIL THE LONG AND DIFFICULT JOURNEYS FACED BY THOSE WITH LYME DISEASE. THE VIDEOS ALSO PROVIDE IMPORTANT INFORMATION ABOUT DIAGNOSIS AND TREATMENT PROTOCOLS. THE VIDEO SERIES HAS BEEN EXTREMELY WELL RECEIVED BY BOTH THE LYME COMMUNITY AND BY THE BROADER AUDIENCE OF THE GENERAL PUBLIC. IT HAS BECOME A KEY EDUCATIONAL TOOL.

As filed on the 2022 return.

Listed in Part VII

  • Scott Bedford

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    10

  • Scott Forsgren

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    5

  • Nora Thomas

    BOARD MEMBER/PROGRAM MGR.

    Total calculated
    $20,742
    From this org
    $20,742
    From related orgs
    $0
    Other
    $0
    Hours/week
    5

  • Phyllis Bedford

    EXECUTIVE DIRECTOR

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
9 November 2023
IRS schema version
2022v5.0
Source object
202323189349307362

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