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LYMELIGHT FOUNDATION INC

EIN 61-1645660 BURLINGAME, CA

Largest nonprofits in California

Revenue 2025
$1,014,954
Expenses 2025
$1,592,437

Program services were 90.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
P20
Classification
1000
Street
1229 BURLINGAME AVE STE 205

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

Our mission is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication as well as raising awareness about Lyme disease.

Activities or mission (Part I)

Provide grants to children and young adults with Lyme disease who cannot afford treatment.

  • LymeLight foundation provides medical grants up to $10,000 (cumulative) to Lyme infected children and young adults who cannot pay for necessary medication and therapies. Grants cover doctor visits, medications, supplements, lab testing, alternative therapies, and transportation to out of the area physicians. In 2025, 250 total grants were awarded: 151 to new individuals and 99 to existing recipients. As most insurance companies do not cover the treatment of chronic Lyme disease, families are typically left on their own to battle the disease, often incurring extreme medical debt. By providing critical treatment, LymeLight bridges the gap of enormous unmet need. Since its inception in 2011, LymeLight has awarded grants totaling $11,426,200 to 1,583 individuals in all 50 states.

    Expenses $1,440,820 · Grants $1,194,250

  • LymeLight Foundation is dedicated to education the public on the truth and misconceptions about identifying, contracting and fighting Lyme disease. LymeLight Foundation hosts and participates in several Lymeawareness and fundraising events including Dart for Art. Active supporters include Grammy singer-song writer Avril Lavigne. LymeLight benefitted from fundraisers and awareness events hosted by supporters in 29 states.

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Scott Bedford

    Chairman

    Total calculated
    $0
    Hours/week
    10

  • Scott Forsgren

    Board Member

    Total calculated
    $0
    Hours/week
    5

  • Nora Thomas

    Board Member/Program Mgr.

    Total calculated
    $0
    Hours/week
    5

  • Phyllis Bedford

    Executive Director

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $1,014,954
    Expenses
    $1,592,437
    Contributions
    $1,031,431
    Grants paid
    $1,194,250
  • 2024
    Revenue
    $1,113,961
    Expenses
    $1,529,037
    Contributions
    $1,212,788
    Grants paid
    $1,131,580
  • 2023
    Revenue
    $822,194
    Expenses
    $1,430,110
    Contributions
    $870,869
    Grants paid
    $1,060,600
  • 2022
    Revenue
    $931,726
    Expenses
    $1,372,276
    Contributions
    $724,671
    Grants paid
    $1,008,700

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,631,644
    Expenses
    $1,360,144
    Assets (EOY)
    $2,941,168

  • 2020 · 990

    Revenue
    $2,581,166
    Expenses
    $1,381,360
    Assets (EOY)
    $2,766,909

  • 2019 · 990

    Revenue
    $646,761
    Expenses
    $1,349,885
    Assets (EOY)
    $1,523,698

  • 2018 · 990

    Revenue
    $559,814
    Expenses
    $1,280,995
    Assets (EOY)
    $2,159,247

  • 2017 · 990

    Revenue
    $667,730
    Expenses
    $1,346,895
    Assets (EOY)
    $2,948,139

  • 2016 · 990

    Revenue
    $506,780
    Expenses
    $1,117,221
    Assets (EOY)
    $3,652,068

  • 2015 · 990

    Revenue
    $4,327,444
    Expenses
    $728,714
    Assets (EOY)
    $4,257,134

  • 2014 · 990

    Revenue
    $1,048,690
    Expenses
    $730,395
    Assets (EOY)
    $745,423

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.