Totals
- Total revenue
- $1,014,954
- Total expenses
- $1,592,437
- Contributions and grants received
- $1,031,431
- Grants paid
- $1,194,250
- Program service revenue
- $0
- Investment income
- $22,166
- Other revenue
- -$38,643
- Total assets, end of year
- $1,210,459
- Total liabilities, end of year
- $64,382
- Net assets or fund balances, end of year
- $1,146,077
- Program services expenses (Part IX)
- $1,440,820
- Management and general expenses
- $51,518
- Fundraising expenses
- $100,099
- Program service expenses (Part III)
- $1,440,820
Program services were 90.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$756,974
-
1f · All other contributions, gifts and grants
$274,457
-
3 · Investment income
total $22,166 · excluded $22,166
-
8a · Fundraising events: gross income
$196,301
-
8a · Fundraising events: contributions included on line 1c
$756,974
-
8b · Fundraising events: direct expenses
$235,293
-
8c · Net income from fundraising events
total -$38,992 · excluded -$38,992
-
10a · Gross sales of inventory
$349
-
10b · Cost of goods sold
$0
-
10c · Net income from sales of inventory
total $349 · excluded $349
Functional expenses
Part IX, the statement of functional expenses.
-
2 · Grants to domestic individuals
total $1,194,250 · program services $1,194,250
-
11c · Fees: accounting
total $37,227 · management and general $37,227
-
11g · Fees: other
total $294,850 · program services $206,731 · fundraising $88,119
-
13 · Office expenses
total $23,210 · program services $12,391 · management and general $10,819
-
14 · Information technology
total $7,630 · program services $2,388 · management and general $1,699 · fundraising $3,543
-
17 · Travel
total $7,411 · program services $7,411
-
24a · Other expenses: Awareness and Education
total $17,600 · program services $17,600
-
24b · Other expenses: Operating expenses
total $8,928 · program services $26 · management and general $465 · fundraising $8,437
-
24c · Other expenses: Supplies
total $1,331 · program services $23 · management and general $1,308
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $585,822 · end of year $376,282
-
2 · Savings and temporary cash investments
beginning of year $519,503 · end of year $598,998
-
3 · Pledges and grants receivable
beginning of year $400,000
-
8 · Inventories for sale or use
beginning of year $14,250
-
9 · Prepaid expenses and deferred charges
beginning of year $35,758 · end of year $35,732
-
11 · Investments: publicly traded securities
end of year $199,447
-
17 · Accounts payable and accrued expenses
beginning of year $20,029 · end of year $24,832
-
25 · Other liabilities
beginning of year $77,325 · end of year $39,550
-
27 · Net assets without donor restrictions
beginning of year $992,557 · end of year $1,076,655
-
28 · Net assets with donor restrictions
beginning of year $465,422 · end of year $69,422
Mission and programs · 2025
Mission
Our mission is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication as well as raising awareness about Lyme disease.
Activities or mission (Part I)
Provide grants to children and young adults with Lyme disease who cannot afford treatment.
-
LymeLight foundation provides medical grants up to $10,000 (cumulative) to Lyme infected children and young adults who cannot pay for necessary medication and therapies. Grants cover doctor visits, medications, supplements, lab testing, alternative therapies, and transportation to out of the area physicians. In 2025, 250 total grants were awarded: 151 to new individuals and 99 to existing recipients. As most insurance companies do not cover the treatment of chronic Lyme disease, families are typically left on their own to battle the disease, often incurring extreme medical debt. By providing critical treatment, LymeLight bridges the gap of enormous unmet need. Since its inception in 2011, LymeLight has awarded grants totaling $11,426,200 to 1,583 individuals in all 50 states.
Expenses $1,440,820 · Grants $1,194,250
-
LymeLight Foundation is dedicated to education the public on the truth and misconceptions about identifying, contracting and fighting Lyme disease. LymeLight Foundation hosts and participates in several Lymeawareness and fundraising events including Dart for Art. Active supporters include Grammy singer-song writer Avril Lavigne. LymeLight benefitted from fundraisers and awareness events hosted by supporters in 29 states.
As filed on the 2025 return.
Listed in Part VII
-
Scott Bedford
Chairman
- Total calculated
- $0
- Hours/week
- 10
-
Scott Forsgren
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Nora Thomas
Board Member/Program Mgr.
- Total calculated
- $0
- Hours/week
- 5
-
Phyllis Bedford
Executive Director
- Total calculated
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2025
- Filed
- 10 September 2026
- IRS schema version
- 2025v4.2
- Source object
- 202632579349301663
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