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← INTERNATIONAL RETT SYNDROME FOUNDATION

Form 990 for tax year 2023

Filed by INTERNATIONAL RETT SYNDROME FOUNDATION.

Totals

Total revenue
$4,855,820
Total expenses
$3,723,772
Contributions and grants received
$3,586,302
Grants paid
$856,917
Program services expenses (Part IX)
$3,076,215
Management and general expenses
$301,170
Fundraising expenses
$346,387
Program service expenses (Part III)
$3,076,215

Program services were 82.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • Steve Tomes

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Beth Farnum

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • William Babiarz

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Jospeh Horrigan MD

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Lisa Monteggia PhD

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • David Pass PharmD

    Chairman

    Total calculated
    $0
    Hours/week
    1

  • Mitch Bleske

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Christian McMahan

    Vice Chairman

    Total calculated
    $0
    Hours/week
    0.5

  • Gordon Rich

    Founding Seat - Non Voting

    Total calculated
    $0
    Hours/week
    0.5

  • Alan Shukovsky

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Leslie Mehta

    Secretary

    Total calculated
    $0
    Hours/week
    0.5

  • Mary Forrest Engel

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Steve Wood

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Laura Stoppel

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Melissa Kennedy

    Executive Director

    Total calculated
    $170,260
    From this org
    $168,053
    From related orgs
    $0
    Other
    $2,207
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $168,053
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $2,207
    Filer's total
    $170,260

  • Dominique Pichard

    Chief Science Officer

    Total calculated
    $173,337
    From this org
    $172,749
    From related orgs
    $0
    Other
    $588
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $172,749
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $588
    Filer's total
    $173,337

  • Timothy Frank

    Chief Market & Dev. Officer

    Total calculated
    $119,721
    From this org
    $117,632
    From related orgs
    $0
    Other
    $2,089
    Hours/week
    40

  • Meghan Cordeiro

    Marketing & Communications Director

    Total calculated
    $110,759
    From this org
    $104,388
    From related orgs
    $0
    Other
    $6,371
    Hours/week
    40

  • Nupur Garg

    VP of Research

    Total calculated
    $130,208
    From this org
    $125,320
    From related orgs
    $0
    Other
    $4,888
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
9 July 2024
IRS schema version
2023v5.1
Source object
202431979349301348

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