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Nonprofiteer
← RHEUMATOLOGY RESEARCH FOUNDATION

Form 990 for tax year 2024

Filed by RHEUMATOLOGY RESEARCH FOUNDATION.

Totals

Total revenue
$19,785,814
Total expenses
$17,070,676
Contributions and grants received
$14,078,487
Grants paid
$11,735,721
Program service revenue
$0
Investment income
$5,707,327
Other revenue
$0
Total assets, end of year
$76,434,619
Total liabilities, end of year
$3,409,238
Net assets or fund balances, end of year
$73,025,381
Program services expenses (Part IX)
$14,441,757
Management and general expenses
$645,443
Fundraising expenses
$1,983,476
Program service expenses (Part III)
$14,441,757

Program services were 84.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $14,078,487

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $1,205,164 · excluded $1,205,164

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7a · Gross sales of assets other than inventory

    securities $50,495,366

  • 7b · Less cost or other basis and sales expenses

    securities $45,993,203

  • 7c · Gain or loss

    securities $4,502,163 · other assets $0

  • 7d · Net gain or loss

    total $4,502,163 · excluded $4,502,163

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $11,555,527 · program services $11,555,527

  • 2 · Grants to domestic individuals

    total $180,194 · program services $180,194

  • 11a · Fees: management

    total $3,398,572 · program services $1,643,293 · management and general $232,024 · fundraising $1,523,255

  • 11b · Fees: legal

    total $53,063 · program services $9,401 · management and general $23,377 · fundraising $20,285

  • 11c · Fees: accounting

    total $55,894 · program services $33,386 · management and general $11,129 · fundraising $11,379

  • 11f · Fees: investment management

    total $155,415 · program services $107,237 · management and general $48,178

  • 11g · Fees: other

    total $357,876 · program services $271,092 · management and general $74,255 · fundraising $12,529

  • 13 · Office expenses

    total $48,187 · program services $34,590 · management and general $2,136 · fundraising $11,461

  • 14 · Information technology

    total $128,935 · program services $28,762 · management and general $12,448 · fundraising $87,725

  • 17 · Travel

    total $506,980 · program services $358,934 · management and general $55,180 · fundraising $92,866

  • 19 · Conferences, conventions and meetings

    total $497,211 · program services $217,908 · management and general $56,966 · fundraising $222,337

  • 20 · Interest

    total $118,351 · management and general $118,351

  • 24a · Other expenses: Miscellaneous

    total $14,471 · program services $1,433 · management and general $11,399 · fundraising $1,639

  • 24e · All other expenses

    total $0 · program services $0 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $3,254,756 · end of year $1,346,416

  • 3 · Pledges and grants receivable

    beginning of year $9,553,362 · end of year $10,287,835

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $90,127 · end of year $118,462

  • 10a · Land, buildings and equipment: cost or other basis

    $210,311

  • 10b · Land, buildings and equipment: accumulated depreciation

    $210,311

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $51,023,383 · end of year $58,299,770

  • 12 · Investments: other securities

    beginning of year $6,807,982 · end of year $6,382,136

  • 13 · Investments: program-related

    beginning of year $0

  • 15 · Other assets

    beginning of year $0 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $1,605,570 · end of year $3,409,238

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $47,749,292 · end of year $42,827,537

  • 28 · Net assets with donor restrictions

    beginning of year $21,374,748 · end of year $30,197,844

Mission and programs · 2024

Mission

THE MISSION OF THE RHEUMATOLOGY RESEARCH FOUNDATION IS TO ADVANCE RESEARCH AND TRAINING TO IMPROVE THE HEALTH OF PEOPLE WITH RHEUMATIC DISEASES.

Activities or mission (Part I)

SUPPORT RESEARCH & TRAINING THAT ADVANCES THE PREVENTION, TREATMENT AND CURE OF RHEUMATIC DISEASES.

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $14,441,757 · Grants $11,735,721

As filed on the 2024 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Anne Bass MD

    Treasurer (2023-2025)

    Total calculated
    $47,300
    From this org
    $0
    From related orgs
    $47,300
    Other
    $0
    Hours/week
    14

  • Bryce Binstadt MD PhD

    Foundation Vice President (2023-2025)

    Total calculated
    $3,434
    From this org
    $0
    From related orgs
    $3,434
    Other
    $0
    Hours/week
    14

  • Liana Fraenkel MD MPH

    Foundation President (2023-2025)

    Total calculated
    $69,000
    From this org
    $0
    From related orgs
    $69,000
    Other
    $0
    Hours/week
    14

  • Alexis Ogdie MD

    Member at Large (2024-2027)

    Total calculated
    $2,500
    From this org
    $0
    From related orgs
    $2,500
    Other
    $0
    Hours/week
    2

  • Alfred Kim MD PhD

    Chair, Impact Advisory Council (2023-2026)

    Total calculated
    $1,000
    From this org
    $0
    From related orgs
    $1,000
    Other
    $0
    Hours/week
    2

  • Angus Worthing MD

    Secretary (2024-2026)

    Total calculated
    $0
    Hours/week
    2

  • Anisha Dua MD

    Chair, ACR Committee on Training (2024-2027)

    Total calculated
    $0
    Hours/week
    2

  • Carol Young MD

    Member at Large (2022-2025)

    Total calculated
    $0
    Hours/week
    2

  • Charles Saia

    Member at Large (2024-2027)

    Total calculated
    $0
    Hours/week
    2

  • Corinne Karp MAEd

    Member at Large (2022-2025)

    Total calculated
    $0
    Hours/week
    2

  • Edward Behrens MD

    Chair, Scientific Advisory Council (2023-2026)

    Total calculated
    $2,956
    From this org
    $0
    From related orgs
    $2,956
    Other
    $0
    Hours/week
    2

  • Firas Kassab MD

    Member at Large (2022-2025)

    Total calculated
    $0
    Hours/week
    2

  • Jay Norman

    Member at Large (2024-2027)

    Total calculated
    $0
    Hours/week
    2

  • Jody Hargrove MD

    Chair, Development Advisory Council (2022-2025)

    Total calculated
    $0
    Hours/week
    2

  • Linda Hiraki MD MS ScD

    ACR Research Representative (2023-2026)

    Total calculated
    $0
    Hours/week
    2

  • M Elaine Husni MD

    Member at Large (2023-2026)

    Total calculated
    $0
    Hours/week
    2

  • Rina Joshi DO

    Fellow-In-Training Representative (2024-2025)

    Total calculated
    $0
    Hours/week
    2

  • Ryan DeMassi MD

    Corporate Roundtable Representative - 2023-2025

    Total calculated
    $0
    Hours/week
    2

  • Susan Bartlett PhD

    ARP Representative (2024-2027)

    Total calculated
    $2,385
    From this org
    $0
    From related orgs
    $2,385
    Other
    $0
    Hours/week
    2

  • Ted Mikuls MD MSHP

    Member at Large (2023-2026)

    Total calculated
    $0
    Hours/week
    2

  • Colleen Merkel

    VP, Operations and Finance

    Total calculated
    $295,381
    From this org
    $0
    From related orgs
    $246,081
    Other
    $49,300
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $242,844 related
    Bonus
    $0 + $2,205 related
    Other
    $0 + $1,032 related
    Deferred
    $0 + $25,546 related
    Nontaxable benefits
    $0 + $23,754 related
    Filer's total
    $0 + $295,381 related

  • Eryn Marchiolo

    VP, Mission

    Total calculated
    $200,878
    From this org
    $0
    From related orgs
    $170,399
    Other
    $30,479
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $165,942 related
    Bonus
    $0 + $4,217 related
    Other
    $0 + $240 related
    Deferred
    $0 + $13,945 related
    Nontaxable benefits
    $0 + $16,534 related
    Filer's total
    $0 + $200,878 related

  • Mona Bhavsar

    Sr. Director, Controller

    Total calculated
    $187,061
    From this org
    $0
    From related orgs
    $150,824
    Other
    $36,237
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $147,055 related
    Bonus
    $0 + $3,217 related
    Other
    $0 + $552 related
    Deferred
    $0 + $12,904 related
    Nontaxable benefits
    $0 + $23,333 related
    Filer's total
    $0 + $187,061 related

  • Paula Reed

    VP, Philanthropy

    Total calculated
    $208,451
    From this org
    $0
    From related orgs
    $177,196
    Other
    $31,255
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $172,409 related
    Bonus
    $0 + $3,203 related
    Other
    $0 + $1,584 related
    Deferred
    $0 + $14,716 related
    Nontaxable benefits
    $0 + $16,539 related
    Filer's total
    $0 + $208,451 related

  • Rachel Myslinski

    Executive Director

    Total calculated
    $274,223
    From this org
    $0
    From related orgs
    $228,633
    Other
    $45,590
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $226,688 related
    Bonus
    $0 + $1,705 related
    Other
    $0 + $240 related
    Deferred
    $0 + $23,289 related
    Nontaxable benefits
    $0 + $22,301 related
    Filer's total
    $0 + $274,223 related

  • Benjamin Walkuski

    Director, Individual Engagement & Philanthropy

    Total calculated
    $146,540
    From this org
    $0
    From related orgs
    $120,925
    Other
    $25,615
    Hours/week
    1 + 40 related

  • Colette Novak

    Director, Data Strategy

    Total calculated
    $133,410
    From this org
    $0
    From related orgs
    $101,580
    Other
    $31,830
    Hours/week
    1 + 40 related

  • Kay Butts-Pruett

    Sr. Director, Philanthropy

    Total calculated
    $162,348
    From this org
    $0
    From related orgs
    $135,699
    Other
    $26,649
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $133,238 related
    Bonus
    $0 + $2,221 related
    Other
    $0 + $240 related
    Deferred
    $0 + $11,177 related
    Nontaxable benefits
    $0 + $15,472 related
    Filer's total
    $0 + $162,348 related

  • Lauren Adalfio

    Senior Manager, Finance

    Total calculated
    $158,385
    From this org
    $0
    From related orgs
    $124,549
    Other
    $33,836
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $123,116 related
    Bonus
    $0 + $1,217 related
    Other
    $0 + $216 related
    Deferred
    $0 + $10,647 related
    Nontaxable benefits
    $0 + $23,189 related
    Filer's total
    $0 + $158,385 related

  • Michael Greer

    Director, Philanthropy Officer

    Total calculated
    $131,743
    From this org
    $0
    From related orgs
    $103,524
    Other
    $28,219
    Hours/week
    1 + 40 related

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 1a · First-class or charter travel
  • 1a · Travel for companions
  • 1b · Written policy on the line-1a expenses
  • 2 · Substantiation required before reimbursing expenses
  • 3 · Independent compensation consultant
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

Schedule J, Part I, Line 1a First-class or charter travel
Partner or Significant other travel costs are reimbursed for Executive Committee members only, under the following circumstances: Travel covered for up to 3 meetings per year, including one international trip, to be used anytime during the official year. For the international meeting partner or significant others may travel business class.
Schedule J, Part I, Line 1a Travel for companions
Partner or Significant other travel costs are reimbursed for Executive Committee members only, under the following circumstances: Travel covered for up to 3 meetings per year, including one international trip, to be used anytime during the official year. For the international meeting partner or significant others may travel business class.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2024
Filed
6 March 2026
IRS schema version
2024v5.1
Source object
202620649349302007

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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