Form 990 for tax year 2024

Totals

Total revenue

$2,849,038

Total expenses

$821,411

Contributions and grants received

$2,397,685

Grants paid

$290,050

Program service revenue

$0

Investment income

$461,452

Other revenue

-$10,099

Total assets, end of year

$9,555,502

Total liabilities, end of year

$163,096

Net assets or fund balances, end of year

$9,392,406

Program services expenses (Part IX)

$792,168

Management and general expenses

$26,243

Fundraising expenses

$3,000

Program service expenses (Part III)

$792,168

Program services were 96.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2024

• Withheld by Nonprofiteer: this text may name a private individual.

  Expenses $239,482 · Grants $239,482

• THE ANF CREATED THE LATE ONSET NEUROMUSCULAR DISEASE CONSORTIUM IN 2022. THE ANF CONVENED NEARLY 25 STAKEHOLDERS INCLUDING PATIENT ADVOCACY ORGANIZATIONS, INDUSTRY, AND CLINICIANS TO BEGIN TO IDENTIFY COMMON CHALLENGES AND POTENTIAL WORKSTREAMS FOR FUTURE CROSS-STAKEHOLDER COLLABORATION. THE LONDC IS FOCUSED ON PROJECTS TO DRIVE AWARENESS, IMPROVE EDUCATION, AND ADDRESS GAPS IN CARE. THE STAKEHOLDERS AND KEY OPINION LEADERS MET IN 2024 TO CONTINUE THE WORK OF THE LONDC.

  Expenses $502,118

• AWARDS: THE AMERICAN NEUROMUSCULAR FOUNDATION SUPPORTS ITS EDUCATION AND RESEARCH GOALS BY FUNDING SEVERAL AWARDS EACH YEAR. EACH AWARD GIVES PHYSICIANS/INVESTIGATORS THE OPPORTUNITY TO BE RECOGNIZED AMONG THEIR PEERS FOR THEIR WORK IN RESEARCH. THE AWARDS GIVEN INCLUDE THE GOLSETH YOUNG INVESTIGATOR AWARD WHICH IS PRESENTED TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN EDX MEDICINE; THE BEST ABSTRACT AWARD IS PRESENTED TO THE WRITER AND RUNNER-UP OF THE ABSTRACT JUDGED BY THE AANEM ABSTRACT REVIEW COMMITTEE AS THE BEST BASED ON SCIENTIFIC MERIT, WELL WRITTEN, EXCELLENT DISCUSSION, IMPORTANCE TO THE FIELD,AND/OR FASCINATING CASE; THE PRESIDENT'S RESEARCH INITIATIVE AWARD IS BASED ON ABSTRACTS PERTAINING TO AN AREA OF INTEREST OF THE PRESIDENT; THE RESIDENT/FELLOW MEMBER RECOGNITION AWARD IS GIVEN TO AANEM PHYSICIAN-IN-TRAINING MEMBERS WHO ARE THE FIRST AND PRESENTING AUTHOR ON AN APPROVED ABSTRACT TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN THE FIELDS OF NEUROMUSCULAR AND ELECTRODIAGNOSTIC MEDICINE; THE OLNEY LECTURESHIP AWARD IS GIVEN TO THE PERSON CHOSEN TO PRESENT THE TITLED PLENARY SESSION AT THE AANEM ANNUAL MEETING; THE TECHNOLOGIST RECOGNITION AWARD IS GIVEN TO AANEM TECHNOLOGIST MEMBERS TO ENCOURAGE THEM TO TAKE A LEADING ROLE IN CONDUCTING RESEARCH IN NEUROMUSCULAR AND EDX MEDICINE. THE LAMBERT AWARD FOR PRESENTATION WAS ALSO GIVEN. THE MEDICAL STUDENT AWARD IS ALSO GIVEN.

  Expenses $50,568 · Grants $50,568

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• THE BRIGHAM AND WOMEN'S HOSPITAL ERIKA WILLIAMS GRANT

  $50,000

  RESEARCH GRANTS

• UCLA BOX 957089 1125 MURPHY HALL

  $50,000

  RESEARCH GRANTS

• UNIVERSITY OF FLORIDA CONTRACTS AND GRANTS ACCOUNTING SER

  $39,575

  RESEARCH GRANTS

• GENERAL HOSPITAL CORPORATION MASSACHUSETTS GENERAL HOSPITAL

  $25,000

  RESEARCH GRANTS

• JOHN HOPKINS UNIVERSITY C/O BANK OF AMERICA

  $25,000

  RESEARCH GRANTS

• THE RESEARCH INSTITUTE OF NATIONWIDE CHILDRENS HOSPITAL

  $25,000

  RESEARCH GRANTS

• UNIVERSITY OF INDIANA TRUSTEES OF INDIANA UNIVERSITY

  $24,907

  RESEARCH GRANTS

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

• AMERICAN ASSC OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE

  501C6 · PROFESSION · MN

Provenance

Return type

form_990

Tax year

2024

Filed

15 October 2025

IRS schema version

2024v5.0

Source object

202533149349301153

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