Form 990 for tax year 2022

Totals

Total revenue

$1,062,282

Total expenses

$907,412

Contributions and grants received

$1,004,506

Grants paid

$0

Program service revenue

$17,276

Investment income

-$722

Other revenue

$41,222

Total assets, end of year

$1,059,635

Total liabilities, end of year

$491,224

Net assets or fund balances, end of year

$568,411

Program services expenses (Part IX)

$786,506

Management and general expenses

$81,511

Fundraising expenses

$39,395

Program service expenses (Part III)

$786,506

Program services were 86.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• FACT OREGON AND ITS MISSION AND HISTORYFACT OREGON STRIVES FOR DISABILITY EQUITY AND EMPOWERS FAMILIES AND COMMUNITIES TO NAVIGATE AND ADVOCATE FOR THE SUPPORTS AND OPPORTUNITIES PEOPLE WITH DISABILITIES NEED TO THRIVE AT HOME, IN SCHOOL, AND IN COMMUNITY. PEER-DELIVERED SERVICES ARE FREE FOR FAMILIES AND INCLUDE A SUPPORT LINE, TRAININGS, RESOURCES, AND COMMUNITY ENGAGEMENT AND ADVOCACY. FOUNDED IN 2002, FACT OREGON FIRST SERVED THE DEVELOPMENTAL AND INTELLECTUAL DISABILITY COMMUNITY IN THE PORTLAND METRO AREA. WE QUICKLY BECAME CROSS-DISABILITY AND GREW OUR REACH REGIONALLY. (CONTINUED ON SCHEDULE O)SINCE 2012, WE HAVE SERVED THE ENTIRE STATE AS OREGON'S PARENT TRAINING & INFORMATION CENTER, WITH CONTRACTS FROM THE US DEPARTMENT OF EDUCATION AND OREGON DEPARTMENT OF EDUCATION. FACT OREGON STAFF, BOARD, AND VOLUNTEERS SERVE ON NUMEROUS STATEWIDE COMMITTEES AND PARTNER COALITIONS. A FEW INCLUDE THE STATE ADVISORY COUNCIL ON SPECIAL EDUCATION, THE STATE INTERAGENCY COORDINATING COUNCIL, THE STATE REHABILITATION COUNCIL, THE OREGON CONSORTIUM OF FAMILY NETWORKS, THE OREGON DD COALITION, AND THE OREGON PARTNERS FOR EDUCATION JUSTICE. IN 2019, FACT OREGON UNDERTOOK SIGNIFICANT WORK IN DIVERSITY, EQUITY, AND INCLUSION, LEADING TO AN EQUITY STATEMENT APPROVED BY THE BOARD IN 2020. IN 2021, FACT OREGON REBRANDED WITH THE TAGLINE EMPOWERING FAMILIES |TRANSFORMING DISABILITY AND DEVELOPED AND ADOPTED A STATEMENT OF PRINCIPLES.THE NEED80,000 YOUTH WITH DISABILITIES RECEIVE SPECIAL EDUCATION SERVICES IN OREGON. AS A GROUP, THEY ARE DISPROPORTIONATELY SEGREGATED AND DISCIPLINED, UNDER-PROFICIENT IN READING AND MATH, AND ACHIEVE AMONG THE WORST GRADUATION/NONCOMPLETION RATES, WHICH SETS THEM UP FOR ADULT LIVES OF LIMITED OPTIONS. FAMILIES ALSO STRUGGLE TO UNDERSTAND AND PARTICIPATE IN THE SERVICES AND SYSTEMS MEANT TO SUPPORT THEIR CHILDREN. THE COVID-19 PANDEMIC EXACERBATED THESE CHALLENGES, DISRUPTING EFFORTS TO PRACTICE WHOLE LIFE PLANNING, YOUTH SELF-DETERMINATION, AND POSITIVE BEHAVIOR SUPPORTS. AS SUCH, WE HAVE SEEN A PERSISTENT UPTICK IN BEHAVIOR-RELATED SUPPORT REQUESTS EVER SINCE THE 2020-21 SCHOOL YEAR.FAMILIES ARE HUNGRY FOR SUPPORT, RESOURCES, AND ACTION TO CHANGE OUTCOMES FOR THEIR YOUTH. FAMILIES AND YOUTH NAVIGATING DISABILITY NEED EARLY, ACCURATE, AND FAMILY-FRIENDLY INFORMATION AND SUPPORT TO DEVELOP A VISION OF A WHOLE, FULL LIFE, TO ACCESS AND NAVIGATE DISABILITY AND SPECIAL EDUCATION SERVICES AND SYSTEMS, AND TO ADVOCATE FOR SYSTEMS CHANGE THAT WILL MAKE OREGON COMMUNITIES MORE ACCESSIBLE AND INCLUSIVE OF PEOPLE WITH DISABILITIES.OUR WORKFACT OREGON STRIVES TO INTERRUPT THE CYCLE OF SEGREGATION AND POOR OUTCOMES FOR PEOPLE WITH DISABILITIES BY HELPING FAMILIES, YOUTH, AND PROFESSIONALS WHO SUPPORT FAMILIES AND YOUTH, TO HOLD HIGH EXPECTATIONS, HAVE A SHARED VISION OF A WHOLE, FULL LIFE, AND TAKE STEPS TO MAKE THAT VISION POSSIBLE. OUR PROGRAMS AND SERVICES: DISRUPT ABLEISM AND CHANGE HOW PEOPLE THINK ABOUT DISABILITY. HIGHLIGHT THE IMPORTANCE OF SELF-DETERMINATION AND WHOLE LIVES. HELP FAMILIES SUPPORT CHILDREN'S GROWTH AND WELL-BEING IN SCHOOL, AT HOME, AND IN COMMUNITY.FACT OREGON HOLDS CONTRACTS AS OREGON'S PARENT & TECHNOLOGY INFORMATION CENTER FROM THE U.S. DEPARTMENT OF EDUCATION OFFICE OF SPECIAL EDUCATION AND THE OREGON DEPARTMENT OF EDUCATION TO ASSIST FAMILIES WITH SPECIAL EDUCATION RELATED CONCERNS. IN ADDITION, FACT OREGON PROVIDES SUPPORT AND TRAININGS COVERING A RANGE OF OTHER ISSUES THAT IMPACT OUR FAMILIES, INCLUDING ASSISTIVE TECHNOLOGY, BEHAVIOR, DISABILITY AWARENESS, SERVICE SYSTEM NAVIGATION, PERSON-CENTERED PLANNING, TRANSITION TO ADULTHOOD, AND MORE. FACT OREGON CURRENTLY ENGAGES WITH OVER 14,000 FAMILIES, COMMUNITY PARTNERS, AND PROFESSIONALS ACROSS THE STATE. OUR FAMILIES REPRESENT A WIDE RANGE OF DISABILITIES INCLUDING COGNITIVE, DEVELOPMENTAL, BEHAVIORAL, PHYSICAL, NEUROLOGICAL, AND MENTAL HEALTH DISABILITIES. 31% OF FAMILIES REPORTING RELEVANT DEMOGRAPHICS ARE FROM COMMUNITIES OF COLOR, WITH 19% IDENTIFYING AS HISPANIC/LATINO. 69% HAVE SCHOOL-AGED CHILDREN; 22% HAVE YOUNG ADULTS 18-26; 9% HAVE KIDS FIVE AND UNDER. 10% REQUIRE SUPPORT IN A LANGUAGE OTHER THAN ENGLISH. FACT OREGON PROVIDES DIRECT SUPPORT IN SPANISH AND COLLABORATES WITH A LANGUAGE LINE TO SUPPORT FAMILIES SPEAKING OTHER LANGUAGES. ACCOMPLISHMENTS IN 2022-232022-23 WAS THE FIRST FULL YEAR THAT WE MANAGED OUR SUPPORT LINE THROUGH ZENDESK, AND THE DATA WE HAVE CAPTURED PAINTS A STORY OF JUST HOW BUSY THE SUPPORT LINE IS POST-COVID. OVER THE YEAR, WE PROVIDED 1:1 SUPPORT OVER PHONE, EMAIL, TEXT, AND ZOOM TO 1,413 UNIQUE PEOPLE FROM AT LEAST 32 OREGON COUNTIES. 2,082 SPECIFIC REQUESTS WERE MADE, AND TO ADDRESS EACH NEED THOROUGHLY TOOK ON AVERAGE OF 12 BACK-AND-FORTH CONTACTS PER REQUEST (24,026 INDIVIDUAL CONTACTS TOTAL). 51% OF PEOPLE REQUESTING SUPPORT NEEDED ASSISTANCE ON BEHALF OF A YOUTH IN ELEMENTARY SCHOOL; 35% FOR A MIDDLE SCHOOL OR HIGH SCHOOLER, 7% FOR AGES 18-26, AND 7% FOR BIRTH-5. THE SIX MOST COMMON TOPICS WERE QUESTIONS ABOUT A CHILD'S IEP/IFSP, PARENT AND STUDENT PARTICIPATION IN DECISION MAKING, BEHAVIOR SUPPORTS, APPROPRIATE EVALUATION, LEAST RESTRICTIVE ENVIRONMENT, AND HEALTH AND WHOLE LIFE PLANNING.OUR TRAINING SCHEDULE OVER THE YEAR WAS ALSO FULL. WE CONTINUED TO PROVIDE ALL TRAINING VIRTUALLY, COVERING A BROAD RANGE OF TOPICS FROM EARLY CHILDHOOD THROUGH THE TRANSITION TO ADULTHOOD. TRAINING ATTENDEES WERE ASKED TO RATE THEIR PRE- AND POST-TRAINING KNOWLEDGE TO HELP SHOW GAINS. PARTICIPANTS REPORTED SIGNIFICANT GAINS IN UNDERSTANDING/APPLICATION OF THE FOLLOWING TOPICS OR CONCEPTS: IEP/IFSP DEVELOPMENT PROCESS, THE PARENT'S ROLE IN A CHILD'S EDUCATION, MEANINGFUL PARTICIPATION, THE IMPORTANCE OF VISION AND HIGH EXPECTATIONS, AND THE MAIN TOPIC AREA. 92% OF TRAINING PARTICIPANTS OVER THE YEAR RATED THEIR POST-TRAINING KNOWLEDGE OF THE MAIN TOPIC AREA AS GOOD OR GREAT COMPARED TO 52% BEFOREHAND. ONE SERIES THAT WE WERE PROUD TO OFFER WAS A SELF-DETERMINATION AND FINANCIAL EMPOWERMENT SERIES FOR YOUTH WITH DISABILITIES. 21 YOUTH PARTICIPATED, AND 18 COMPLETED THE 6-SESSION SERIES, LEARNING ABOUT THE CONCEPT OF SELF-DETERMINATION, TALKING ABOUT HOW WE CHOOSE OR NEED TO SPEND MONEY, SETTING FINANCIAL GOALS, LEARNING HOW TO BUDGET, AND MUCH MORE. HANDS ON LEARNING, GAMES, AND VISUALS HELPED YOUTH ENGAGE IN THE CONTENT. YOUTH WERE EXCITED TO TAKE CONTROL OF THEIR OWN FINANCES, AND THEY SHARED THEIR FINANCIAL VISIONS AND IDENTIFIED SPECIFIC GOALS AND NEXT STEPS TO TAKE. LASTLY, A THIRD COHORT GRADUATED FROM OUR ACTIVATE YOUR ADVOCACY PARENT LEADERSHIP PROGRAM. THIS PROGRAM HAS NOW TRAINED 64 PEOPLE FROM AROUND THE STATE, EQUIPPING THEM TO BECOME ACTIVATED LEADERS WORKING FOR EQUITY-BASED SCHOOL REFORM AND SYSTEMS CHANGE. SEVERAL NOW SERVE ON OUR STAFF OR BOARD, AND OTHER GRADUATES HAVE PROVIDED TESTIMONY ON EDUCATION-RELATED BILLS OR JOINED A STATEWIDE, REGIONAL, OR EVEN NATIONAL DECISION-MAKING BODY.

  Expenses $786,506 · Revenue $15,822

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2022

Filed

12 May 2024

IRS schema version

2022v5.0

Source object

202431349349307923

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