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← DYSTONIA MEDICAL RESEARCH FOUNDATION

Form 990 for tax year 2025

Filed by DYSTONIA MEDICAL RESEARCH FOUNDATION.

Totals

Total revenue
$3,654,855
Total expenses
$3,242,781
Contributions and grants received
$3,435,644
Grants paid
$1,130,358
Program services expenses (Part IX)
$2,651,509
Management and general expenses
$377,958
Fundraising expenses
$213,314
Program service expenses (Part III)
$2,651,509

Program services were 81.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • JANET HIESHETTER

    Sec/EXEC DIR

    Total calculated
    $205,215
    From this org
    $188,293
    From related orgs
    $0
    Other
    $16,922
    Hours/week
    59

    Schedule J breakdown matched by us

    Base
    $188,293
    Bonus
    not reported
    Other
    not reported
    Deferred
    $7,532
    Nontaxable benefits
    $9,390
    Filer's total
    $205,215

  • Robyn Kurth

    Dir Communications

    Total calculated
    $148,056
    From this org
    $141,002
    From related orgs
    $0
    Other
    $7,054
    Hours/week
    38

  • JENNIFER MCNABOLA

    DIR FINANCE

    Total calculated
    $137,677
    From this org
    $96,313
    From related orgs
    $0
    Other
    $41,364
    Hours/week
    30

  • Katharine Riddle

    ASSC DIR DEVELOP

    Total calculated
    $105,283
    From this org
    $88,806
    From related orgs
    $0
    Other
    $16,477
    Hours/week
    38

  • MARK RUDOLPH

    President

    Total calculated
    $0
    Hours/week
    5

  • JOHN DOWNEY

    Treasurer

    Total calculated
    $0
    Hours/week
    3

  • RICHARD LEWIS

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • BARBARA KESSLER

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • KAREN ROSS

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • CAROLE RAWSON

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • PAULA SCHNEIDER

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • Ron Hersh

    Vice President

    Total calculated
    $0
    Hours/week
    3

  • Allison London

    Director

    Total calculated
    $0
    Hours/week
    1

  • FRANCES BELZBERG

    Director

    Total calculated
    $0
    Hours/week
    1

  • MARILYNNE HERBERT

    Director

    Total calculated
    $0
    Hours/week
    1

  • STEFANIE JACKSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • DIANE RUDOLPH

    Director

    Total calculated
    $0
    Hours/week
    1

  • JOEL PERLMUTTER MD

    Scientific Dir

    Total calculated
    $0
    Hours/week
    3

  • ERWIN JACKSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • BILL MCLAUGHLIN

    Director

    Total calculated
    $0
    Hours/week
    1

  • Art Kessler

    Director

    Total calculated
    $0
    Hours/week
    1

  • SANDRA WEIL

    Director

    Total calculated
    $0
    Hours/week
    1

  • ROSALIE LEWIS

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jon Davis

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dennis Kessler

    Director

    Total calculated
    $0
    Hours/week
    1

  • LIZ RAWSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • Chris Von Der Ahe

    Director

    Total calculated
    $0
    Hours/week
    1

  • BRIAN KEANE

    Director

    Total calculated
    $0
    Hours/week
    1

  • Marc Miller

    Director

    Total calculated
    $0
    Hours/week
    1

  • Robin Miller

    Director

    Total calculated
    $0
    Hours/week
    1

  • DAN LEWIS

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
IRS schema version
2025v4.1
Source object
202612299349302021

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