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Nonprofiteer
← USHER SYNDROME SOCIETY INC

Form 990 for tax year 2025

Filed by USHER SYNDROME SOCIETY INC.

Totals

Total revenue
$1,294,589
Total expenses
$1,009,795
Contributions and grants received
$1,136,281
Grants paid
$767,343
Program service revenue
$0
Investment income
$44,024
Other revenue
$114,284
Total assets, end of year
$2,313,420
Total liabilities, end of year
$1,985
Net assets or fund balances, end of year
$2,311,435
Program services expenses (Part IX)
$892,446
Management and general expenses
$41,353
Fundraising expenses
$75,996
Program service expenses (Part III)
$892,446

Program services were 88.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $1,136,281

  • 1g · Noncash contributions included above

    $120,700

  • 3 · Investment income

    total $44,024 · excluded $44,024

  • 8a · Fundraising events: gross income

    $188,069

  • 8b · Fundraising events: direct expenses

    $74,303

  • 8c · Net income from fundraising events

    total $113,766 · excluded $113,766

  • 11a · Other revenue: Miscellaneous

    total $518 · related or exempt $518

  • 11e · Other revenue, total

    $518

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $621,603 · program services $621,603

  • 3 · Grants to foreign organizations and individuals

    total $145,740 · program services $145,740

  • 11b · Fees: legal

    total $2,341 · management and general $2,341

  • 11c · Fees: accounting

    total $12,136 · management and general $12,136

  • 11g · Fees: other

    total $66,399 · management and general $5,749 · fundraising $60,650

  • 13 · Office expenses

    total $3,928 · management and general $2,353 · fundraising $1,575

  • 14 · Information technology

    total $16,730 · management and general $16,520 · fundraising $210

  • 17 · Travel

    total $29 · program services $29

  • 23 · Insurance

    total $2,151 · management and general $2,151

  • 24a · Other expenses: Film Fees

    total $125,177 · program services $125,074 · management and general $103

  • 24b · Other expenses: Bank & Merchant Fees

    total $13,561 · fundraising $13,561

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $732,401 · end of year $517,438

  • 2 · Savings and temporary cash investments

    beginning of year $752,860 · end of year $1,343,594

  • 4 · Accounts receivable

    beginning of year $547,438 · end of year $452,388

  • 17 · Accounts payable and accrued expenses

    beginning of year $6,058 · end of year $1,985

  • 27 · Net assets without donor restrictions

    beginning of year $1,143,078 · end of year $1,505,385

  • 28 · Net assets with donor restrictions

    beginning of year $883,563 · end of year $806,050

Mission and programs · 2025

Mission

To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.

  • In 2025, the Usher Syndrome Society continued its award-winning Every Second Counts campaign with a new commercial bringing total impressions to more than 500 million. The campaign returned to Times Square for a second time, featuring members of the Usher syndrome community and generating national coverage, including an ABC News segment highlighting the powerful story of a newly diagnosed family. Our awareness efforts also included a first-of-its-kind immersive exhibit in New York City attended by more than 200 guests, an event featuring a singer-songwriter sharing his experience of vision loss, and a traveling exhibit displayed in five building lobbies across Boston. Together, these initiatives helped generate the funding needed to award $763,000 for research, representing a 188% increase in research support from the prior year. The cutting edge PUSH research program funded by the Usher syndrome Society, reached major scientific milestones, with new data supporting a promising platform that may lead to treatments for certain forms of Usher syndrome.

    Expenses $892,446 · Grants $767,343

As filed on the 2025 return.

Listed in Part VII

  • Nancy Corderman

    President

    Total calculated
    $0
    Hours/week
    50

  • David Corderman

    Vice President

    Total calculated
    $0
    Hours/week
    5

  • Alan Pinto

    Director

    Total calculated
    $0
    Hours/week
    5

  • Rebecca Alexander

    Director

    Total calculated
    $0
    Hours/week
    5

  • Tori Banu

    Director

    Total calculated
    $0
    Hours/week
    1

  • Peggy Borst

    Director

    Total calculated
    $0
    Hours/week
    10

  • Hannah Corderman

    Director

    Total calculated
    $0
    Hours/week
    5

  • Sophia Boccard

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
27 March 2026
IRS schema version
2025v4.0
Source object
202620899349300012

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