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USHER SYNDROME SOCIETY INC

EIN 26-1577154 NEEDHAM, MA

Revenue 2025
$1,294,589
Expenses 2025
$1,009,795

Program services were 88.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
1000
Street
1544 CENTRAL AVE

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

To use the arts to create empathy in order to raise awareness and funding for Usher Syndrome to ultimately find a cure.

  • In 2025, the Usher Syndrome Society continued its award-winning Every Second Counts campaign with a new commercial bringing total impressions to more than 500 million. The campaign returned to Times Square for a second time, featuring members of the Usher syndrome community and generating national coverage, including an ABC News segment highlighting the powerful story of a newly diagnosed family. Our awareness efforts also included a first-of-its-kind immersive exhibit in New York City attended by more than 200 guests, an event featuring a singer-songwriter sharing his experience of vision loss, and a traveling exhibit displayed in five building lobbies across Boston. Together, these initiatives helped generate the funding needed to award $763,000 for research, representing a 188% increase in research support from the prior year. The cutting edge PUSH research program funded by the Usher syndrome Society, reached major scientific milestones, with new data supporting a promising platform that may lead to treatments for certain forms of Usher syndrome.

    Expenses $892,446 · Grants $767,343

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Nancy Corderman

    President

    Total calculated
    $0
    Hours/week
    50

  • David Corderman

    Vice President

    Total calculated
    $0
    Hours/week
    5

  • Alan Pinto

    Director

    Total calculated
    $0
    Hours/week
    5

  • Rebecca Alexander

    Director

    Total calculated
    $0
    Hours/week
    5

  • Tori Banu

    Director

    Total calculated
    $0
    Hours/week
    1

  • Peggy Borst

    Director

    Total calculated
    $0
    Hours/week
    10

  • Hannah Corderman

    Director

    Total calculated
    $0
    Hours/week
    5

  • Sophia Boccard

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $1,294,589
    Expenses
    $1,009,795
    Contributions
    $1,136,281
    Grants paid
    $767,343
  • 2024
    Revenue
    $1,540,380
    Expenses
    $450,758
    Contributions
    $1,518,667
    Grants paid
    $267,603
  • 2023
    Revenue
    $499,989
    Expenses
    $448,421
    Contributions
    $489,403
    Grants paid
    $353,660
  • 2022
    Revenue
    $473,469
    Expenses
    $409,823
    Contributions
    $471,255
    Grants paid
    $291,400

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $340,455
    Expenses
    $133,926
    Assets (EOY)
    $565,830

  • 2020 · 990

    Revenue
    $319,784
    Expenses
    $164,471
    Assets (EOY)
    $359,301

  • 2019 · 990

    Revenue
    $313,906
    Expenses
    $141,032
    Assets (EOY)
    $204,674

  • 2018 · 990-EZ

    Revenue
    $71,692
    Expenses
    $74,606
    Assets (EOY)
    $29,161

  • 2015 · 990-EZ

    Revenue
    $94,625
    Expenses
    $93,570
    Assets (EOY)
    $43,398

  • 2014 · 990-EZ

    Revenue
    $56,988
    Expenses
    $94,184
    Assets (EOY)
    $45,214

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

  • Childrens Hospital Boston

    $500,000

    2025 Research Usher Syndrome

  • Childrens Hospital Boston

    $145,000

    2024 Research Usher Syndrome

  • UNIVERSITY OF OREGON

    $139,160

    2023 RESEARCH USHER SYNDROME

  • CHILDREN'S HOSPITAL BOSTON TRUST

    $125,000

    2022 RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH

  • CHILDREN'S HOSPITAL BOSTON TRUST

    $125,000

    2023 RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH

  • University of Oregon

    $100,000

    2024 Research Usher Syndrome

  • UNIVERSITY OF OREGON

    $100,000

    2022 RESEARCH USHER SYNDROME

  • University of Oregon

    $100,000

    2025 Research Usher Syndrome

  • USHER SYNDROME COALITION

    $20,000

    2023 RESEARCH USHER SYNDROMEUSHER SYNDROME RESEARCH

  • Usher Syndrome Coalition

    $20,000

    2024 Research Usher Syndrome

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.