Totals
- Total revenue
- $4,285,841
- Total expenses
- $4,238,018
- Contributions and grants received
- $2,925,992
- Grants paid
- $2,255,192
- Program service revenue
- $0
- Investment income
- $21,332
- Other revenue
- $1,338,517
- Total assets, end of year
- $8,266,292
- Total liabilities, end of year
- $741,187
- Net assets or fund balances, end of year
- $7,525,105
- Program services expenses (Part IX)
- $3,205,539
- Management and general expenses
- $393,446
- Fundraising expenses
- $639,033
- Program service expenses (Part III)
- $3,205,539
Program services were 75.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$2,925,992
-
3 · Investment income
total $94,259 · excluded $94,259
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7a · Gross sales of assets other than inventory
securities $8,750,022 · other assets $310
-
7b · Less cost or other basis and sales expenses
securities $8,823,259
-
7c · Gain or loss
securities -$73,237 · other assets $310
-
7d · Net gain or loss
total -$72,927 · related or exempt -$72,927
-
8a · Fundraising events: gross income
$1,533,377
-
8b · Fundraising events: direct expenses
$194,860
-
8c · Net income from fundraising events
total $1,338,517 · excluded $1,338,517
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $17,276 · program services $17,276
-
2 · Grants to domestic individuals
total $2,237,916 · program services $2,237,916
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $402,605 · program services $114,079 · management and general $74,206 · fundraising $214,320
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $735,527 · program services $548,472 · management and general $77,169 · fundraising $109,886
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $136,817 · program services $87,221 · management and general $15,734 · fundraising $33,862
-
10 · Payroll taxes
total $87,975 · program services $49,122 · management and general $13,252 · fundraising $25,601
-
11a · Fees: management
total $164,307 · program services $43,499 · management and general $38,868 · fundraising $81,940
-
11b · Fees: legal
total $1,475 · management and general $1,475
-
11c · Fees: accounting
total $24,248 · management and general $24,248
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $113,984 · fundraising $113,984
-
11f · Fees: investment management
total $52,858 · management and general $52,858
-
11g · Fees: other
total $0
-
12 · Advertising and promotion
total $23,060 · program services $1,503 · management and general $1,250 · fundraising $20,307
-
13 · Office expenses
total $69,848 · program services $22,200 · management and general $34,468 · fundraising $13,180
-
14 · Information technology
total $170 · program services $11 · management and general $159
-
15 · Royalties
total $0
-
16 · Occupancy
total $91,937 · program services $53,931 · management and general $23,041 · fundraising $14,965
-
17 · Travel
total $16,578 · program services $10,210 · management and general $3,892 · fundraising $2,476
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $3,170 · program services $3,170
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $23,233 · management and general $23,233
-
23 · Insurance
total $25,940 · program services $16,537 · management and general $2,983 · fundraising $6,420
-
24a · Other expenses: 50091 GIFTS TO VOLUNTEERS
total $3,842 · management and general $1,750 · fundraising $2,092
-
24b · Other expenses: 50128,9 BANK CHARGES
total $3,241 · program services $392 · management and general $2,849
-
24c · Other expenses: 50131 PAYROLL PROCESSING
total $1,856 · management and general $1,856
-
24d · Other expenses: 43155 FOREIGN TAX WITHHOLDING
total $155 · management and general $155
-
24e · All other expenses
total $0
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $2,264,443 · end of year $1,120,849
-
2 · Savings and temporary cash investments
end of year $885,423
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
beginning of year $30 · end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10a · Land, buildings and equipment: cost or other basis
$154,242
-
10b · Land, buildings and equipment: accumulated depreciation
$50,237
-
10c · Land, buildings and equipment, net
beginning of year $64,267 · end of year $104,005
-
11 · Investments: publicly traded securities
beginning of year $7,478,213 · end of year $6,006,434
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $139,839
-
15 · Other assets
beginning of year $4,002 · end of year $9,742
-
17 · Accounts payable and accrued expenses
beginning of year $214,559 · end of year $230,200
-
18 · Grants payable
beginning of year $437,020 · end of year $295,631
-
19 · Deferred revenue
beginning of year $125,000
-
22 · Loans and payables to officers and key people
end of year $102
-
23 · Secured mortgages and notes payable
end of year $188,184
-
25 · Other liabilities
beginning of year $17,379 · end of year $27,070
-
27 · Net assets without donor restrictions
beginning of year $4,617,054 · end of year $2,800,240
-
28 · Net assets with donor restrictions
beginning of year $4,399,943 · end of year $4,724,865
Mission and programs · 2022
Mission
(1)Help to provide individuals with neuro-muscular diseases or injuries with leading edge technology, equipment and services (2) Raise public awareness toward amyotrophic lateral sclerosis by providing & documenting life adventures for individuals with muscular diseases or injuries.
-
Helping deliver leading edge equipment, services and technology, the Team Gleason Foundation provides ALS patients with the tools to allow people living with ALS to communicate, interact, and live with purpose. Technology and equipment have advanced over the past decade but these services can be taken even further. The Foundation works with creative companies to develop voice creation and hands-free software and technology.The Foundation maintains contact with ALS families receiving specialized equipment and recycles the equipment to new patients when the equipment is no longer needed. In 2022, the approximate value of such equipment repurposed was $1,800,000. In addition, Voice Banking technology was provided to 970 patients valued at $1,550,000 and seat elevators were provided to 1,250 patients.Team Gleason was voted "Best Non-profit" in Gambit's 2022 Best of New Orleans issue.Team Gleason partnered with Synchron, an endovascular brain computer interface company, to provide patient-focused feedback on their platform to transform daily life for patients with physical and speech disabilities like ALS, muscular dystrophy, and cerebral palsy. Through Team Gleason's community of ALS patients, caregivers, clinicians and technology specialists, provided Synchron access to user research, including feedback on the Stentrode Systems current overall design for patients and caregivers.Team Gleason teamed up with Comcast to drive inclusive innovation to improve the independence and quality of life for people with physical and speech disabilities, including those living with ALS. Together, Comcast and Team Gleason are actively engaged with people with ALS (pALS) and caregivers, as well as preeminent clinicians, technologists and assistive technology partners to define and develop accessible, empowering experiences from TV control to smart home solutions and beyond.Innovation through Collaboration Accessibility Roundtable - Team Gleason hosted the Innovation through Collaboration Accessibility Roundtable to accelerate the development of quality of life improving technologies for people living with ALS by catalyzing collaborations between great people and great companies. Industry attendence included Google, Microsoft, Comcast, and Amazon.Team Gleason held a major presence at the ASHA (American Speech-Language-Hearing Association) 2022 Conference hosted in New Orleans where there was a recreation of the Team Gleason Assistive Technology Lab. Steve and Michel Gleason were also awarded the prestigious Annie Glenn Award at the conference for the positive impact that Team Gleason has had on the lives of people with communication disorders.
Expenses $3,205,539 · Grants $2,255,192
As filed on the 2022 return.
Listed in Part VII
-
DAVID DARRAGH
MANAGING DIRECTOR
- Total calculated
- $121,458
- From this org
- $121,458
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
BLAIR CASEY
EXECUTIVE DIRECTOR
- Total calculated
- $119,746
- From this org
- $119,746
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
WILLIAM K GAY
DIRECTOR
- Total calculated
- $108,755
- From this org
- $108,755
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
PAUL VARISCO SR
CHAIRMAN
- Total calculated
- $50,000
- From this org
- $50,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40 + 10 related
-
CLARE DURRETT
Director
- Total calculated
- $24,000
- From this org
- $24,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 30 + 20 related
-
VINNIE VARISCO
Director
- Total calculated
- $0
- Hours/week
- 1.2
-
THOMAS CAPELLA
Secretary
- Total calculated
- $0
- Hours/week
- 5
-
JAMES SALTERS
Officer
- Total calculated
- $0
- Hours/week
- 1.5
-
KYLE BRECHTEL
Director
- Total calculated
- $0
- Hours/week
- 1
-
KIMI CULP
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
STEPHAN REHAGE
Director
- Total calculated
- $0
- Hours/week
- 5
-
SCOTT A FUJITA
Officer
- Total calculated
- $0
- Hours/week
- 1.5
-
PAUL VARISCO JR
Director
- Total calculated
- $0
- Hours/week
- 1
-
KYLE M GLEASON
Director
- Total calculated
- $0
- Hours/week
- 1
-
SUZANNE ALFORD
Director
- Total calculated
- $0
- Hours/week
- 15
-
CLARE DURRETT
Director
- Total calculated
- $0
- Hours/week
- 30 + 20 related
-
MICHELLE FARR
Director
- Total calculated
- $0
- Hours/week
- 1
-
THOMAS MCEACHIN
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
DAVID SHERMAN
Officer
- Total calculated
- $0
- Hours/week
- 2.3
-
PHILIP GREEN
Director
- Total calculated
- $0
- Hours/week
- 2
-
MICHEL VARISCO GLEASON
Director
- Total calculated
- $0
- Hours/week
- 4 + 8 related
-
STEPHEN GLEASON
Director
- Total calculated
- $0
- Hours/week
- 10 + 2 related
-
DANIELLE KAVANAGH
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
JIM MARGGRAFF
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
ASHLEY MCCREADY
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
MIKE MCCREADY
Director
- Total calculated
- $0
- Hours/week
- 1.5
-
CLELAND POWELL
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
KATHLEEN HOLT
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
BRYAN FITZPATRICK
Director
- Total calculated
- $0
- Hours/week
- 2
-
CHRIS CASEY CPA
Treasurer
- Total calculated
- $0
- Hours/week
- 2
-
RICK DICKSON
Director
- Total calculated
- $0
- Hours/week
- 2
-
DANIEL GARSKE
Director
- Total calculated
- $0
- Hours/week
- 0.6
-
DAVE MARTIN
Director
- Total calculated
- $0
- Hours/week
- 0.8
-
JUDGE TONY HAZEL
Director
- Total calculated
- $0
- Hours/week
- 0.5
-
JENNY LAY-FLURRIE
Director
- Total calculated
- $0
- Hours/week
- 0.5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
GENERAL EXEMPT PURPOSE
Taxable family on this return
Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.
Related corporations and trusts
Part IV: related organizations taxable as a corporation or trust.
-
TRUST · MERCH SALES · LA
-
c-corp · ALS MEDICAL RESEARCH · LA
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 29 January 2024
- IRS schema version
- 2022v5.0
- Source object
- 202420299349302407
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.