Skip to content
Nonprofiteer
← HUNTINGTONS DISEASE SOCIETY OF AMERICA INC

Form 990 for tax year 2022

Filed by HUNTINGTONS DISEASE SOCIETY OF AMERICA INC.

Totals

Total revenue
$10,709,965
Total expenses
$9,418,102
Contributions and grants received
$10,470,080
Grants paid
$2,936,064
Program service revenue
$0
Investment income
$29,528
Other revenue
$210,357
Total assets, end of year
$17,419,711
Total liabilities, end of year
$2,232,998
Net assets or fund balances, end of year
$15,186,713
Program services expenses (Part IX)
$6,913,779
Management and general expenses
$792,881
Fundraising expenses
$1,711,442
Program service expenses (Part III)
$6,913,779

Program services were 73.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • VICTOR SUNG MD

    CHAIR

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • TERESA SRAJER

    CHAIR-ELECT

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • KAMRAN ALAM

    TREASURER

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JENNE COLER-DARK

    SECRETARY

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • EJ GARNER

    PAST CHAIR

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • ANGELA ALLEN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • DANIEL BRENNAN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JEFF CARROLL

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • MARK COE

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • STACY COEN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • WENDY ERLER

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • ERIN FURR-STIMMING MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • BETH HOFFMAN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JAY HUGHES

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JONATHAN KLEIN ESQ

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • KELSEY PORTER

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • DOMINIQUE THOMAS

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • LESLIE M THOMPSON PHD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • VICKI WHEELOCK MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • LOUISE VETTER

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $401,948
    From this org
    $349,249
    From related orgs
    $0
    Other
    $52,699
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $349,249
    Bonus
    $0
    Other
    $0
    Deferred
    $15,250
    Nontaxable benefits
    $37,449
    Filer's total
    $401,948

  • ROSEMARY COLUCCIO

    CHIEF OPERATIONS OFFICER

    Total calculated
    $276,062
    From this org
    $249,757
    From related orgs
    $0
    Other
    $26,305
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $249,757
    Bonus
    $0
    Other
    $0
    Deferred
    $12,667
    Nontaxable benefits
    $13,638
    Filer's total
    $276,062

  • ARIK JOHNSON

    CHIEF MISSION OFFICER

    Total calculated
    $198,114
    From this org
    $195,400
    From related orgs
    $0
    Other
    $2,714
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $195,400
    Bonus
    $0
    Other
    $0
    Deferred
    $1,463
    Nontaxable benefits
    $1,251
    Filer's total
    $198,114

  • JAMISON SKALA

    DIRECTOR, NATIONAL DEVELOP

    Total calculated
    $177,900
    From this org
    $165,915
    From related orgs
    $0
    Other
    $11,985
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $165,915
    Bonus
    $0
    Other
    $0
    Deferred
    $8,574
    Nontaxable benefits
    $3,411
    Filer's total
    $177,900

  • DEBRA LOVECKY

    DIRECTOR OF EDUCATION PROG

    Total calculated
    $184,371
    From this org
    $161,407
    From related orgs
    $0
    Other
    $22,964
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $161,407
    Bonus
    $0
    Other
    $0
    Deferred
    $8,427
    Nontaxable benefits
    $14,537
    Filer's total
    $184,371

  • CHRISTOPHER COSENTINO

    DIRECTOR OF MARKETING & CO

    Total calculated
    $181,008
    From this org
    $143,417
    From related orgs
    $0
    Other
    $37,591
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $143,417
    Bonus
    $0
    Other
    $0
    Deferred
    $7,534
    Nontaxable benefits
    $30,057
    Filer's total
    $181,008

  • DEBORAH BOYD

    REGIONAL DEVELOPMENT DIREC

    Total calculated
    $131,817
    From this org
    $113,225
    From related orgs
    $0
    Other
    $18,592
    Hours/week
    35 + 3 related

  • REBECCA CHAN

    CONTROLLER

    Total calculated
    $143,196
    From this org
    $106,797
    From related orgs
    $0
    Other
    $36,399
    Hours/week
    35 + 3 related

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 3
COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2022
Filed
15 May 2023
IRS schema version
2022v5.0
Source object
202311369349302256

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.