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HUNTINGTONS DISEASE SOCIETY OF AMERICA INC

EIN 13-3349872 NEW YORK, NY

Revenue 2025
$11,232,523
Expenses 2025
$9,444,908

Program services were 78.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
1000
Street
505 8TH AVE RM 1402

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Group exemption

The central organization of an IRS group exemption (group number 9201), covering 28 subordinate organizations. matched by us

The IRS lists each organization's group exemption number; we match a subordinate to its central organization by that number and the affiliation code the IRS assigns.

All 28 subordinates →

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • JENNE COLER-DARK

    CHAIR

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • ANGELA ALLEN

    CHAIR ELECT

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • TERESA SRAJER

    PAST CHAIR

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JAY HUGHES

    SECRETARY

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • CHRISTOPHER DECESARIS

    TREASURER

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JEFFREY BROWN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • MARK COE

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • ERIN FURR-STIMMING MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • BETH HOFFMAN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JONATHAN KLEIN ESQ

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • JAIME HATCHER-MARTIN MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • MARA SIFRY

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • AMBER SOUTHWELL PHD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • DOMINIQUE THOMAS

    TRUSTEE

    Total calculated
    $0
    Hours/week
    6 + 3 related

  • AMY GRAY

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $334,981
    From this org
    $333,963
    From related orgs
    $0
    Other
    $1,018
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $333,963
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $1,018
    Filer's total
    $334,981

  • ROSEMARY COLUCCIO

    CHIEF OPERATIONS OFF (THRU 6/13/25)

    Total calculated
    $194,121
    From this org
    $176,343
    From related orgs
    $0
    Other
    $17,778
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $176,343
    Bonus
    $0
    Other
    $0
    Deferred
    $8,901
    Nontaxable benefits
    $8,877
    Filer's total
    $194,121

  • ARIK JOHNSON

    CHIEF MISSION OFFICER

    Total calculated
    $264,632
    From this org
    $237,342
    From related orgs
    $0
    Other
    $27,290
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $216,251
    Bonus
    $21,091
    Other
    $0
    Deferred
    $11,038
    Nontaxable benefits
    $16,252
    Filer's total
    $264,632

  • DEBORAH BOYD

    REGIONAL DEVELOPMENT DIRECTOR

    Total calculated
    $159,670
    From this org
    $135,417
    From related orgs
    $0
    Other
    $24,253
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $135,417
    Bonus
    $0
    Other
    $0
    Deferred
    $6,778
    Nontaxable benefits
    $17,475
    Filer's total
    $159,670

  • REBECCA CHAN

    CONTROLLER

    Total calculated
    $204,517
    From this org
    $156,410
    From related orgs
    $0
    Other
    $48,107
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $146,410
    Bonus
    $10,000
    Other
    $0
    Deferred
    $7,969
    Nontaxable benefits
    $40,138
    Filer's total
    $204,517

  • MYNELLY PEREZ-ORELLANA

    DIRECTOR, MARKETING & COMMUNICATIONS

    Total calculated
    $169,373
    From this org
    $123,303
    From related orgs
    $0
    Other
    $46,070
    Hours/week
    35 + 3 related

    Schedule J breakdown matched by us

    Base
    $123,303
    Bonus
    $0
    Other
    $0
    Deferred
    $6,882
    Nontaxable benefits
    $39,188
    Filer's total
    $169,373

  • JESSICA MARSOLEK

    ASSISTANT DIRECTOR, MISSION PROGRAMS

    Total calculated
    $142,979
    From this org
    $119,589
    From related orgs
    $0
    Other
    $23,390
    Hours/week
    35 + 3 related

  • MELINDA JENSEN

    REGIONAL DEVELOPMENT OFF, NE REGION

    Total calculated
    $131,025
    From this org
    $108,819
    From related orgs
    $0
    Other
    $22,206
    Hours/week
    35 + 3 related

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $11,232,523
    Expenses
    $9,444,908
    Contributions
    $11,378,212
    Grants paid
    $2,298,001
  • 2024
    Revenue
    $10,174,088
    Expenses
    $11,385,673
    Contributions
    $9,823,331
    Grants paid
    $3,372,058
  • 2023
    Revenue
    $9,833,936
    Expenses
    $11,157,448
    Contributions
    $9,341,469
    Grants paid
    $3,678,844
  • 2022
    Revenue
    $10,709,965
    Expenses
    $9,418,102
    Contributions
    $10,470,080
    Grants paid
    $2,936,064

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2024 · 990-T

    Revenue
    not reported
    Expenses
    not reported
    Assets (EOY)
    not reported

Nonprofiteer parses the Form 990 only. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2025 return

Declared as related by

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility GROUP.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.