Form 990 for tax year 2025

Totals

Total revenue

$2,044,118

Total expenses

$1,531,481

Contributions and grants received

$1,973,378

Grants paid

$549,293

Program service revenue

$0

Investment income

$70,740

Other revenue

$0

Total assets, end of year

$2,832,915

Total liabilities, end of year

$64,633

Net assets or fund balances, end of year

$2,768,282

Program services expenses (Part IX)

$1,161,108

Management and general expenses

$146,542

Fundraising expenses

$223,831

Program service expenses (Part III)

$1,161,108

Program services were 75.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2025

• CARE SERVICES -THE RELATIONSHIP BETWEEN THE CARE SERVICES TEAM AND THE PERSONS DIAGNOSED WITH ALS (PALS) AND THEIR FAMILY MEMBERS COMMENCE UPON DIAGNOSIS. THE GOAL OF THE PROGRAM IS TO ENSURE THAT INDIVIDUALS AND THEIR FAMILIES EXPERIENCE OPTIMAL EMOTIONAL FUNCTIONING GIVEN THE DEVASTATION OF THE DISEASE. OUR ATTEMPT TO SUCCESSFULLY IMPACT FAMILIES CAN BE OUTLINED WITHIN OUR EXISTING PROGRAMS: EDUCATION, KOSTIUK CARE GRANT, SUPPORT GROUPS, RICKY P. SWEAT EQUIPMENT LOANER & ASSISTIVE TECHNOLOGY PROGRAM, SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM, PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM, AND CLIENT CONSULTATIONS. INDIVIDUALS WHO ARE NEWLY DIAGNOSED OFTEN NEED TIME TO ABSORB THE IMPACT OF THEIR DIAGNOSIS, THEREFORE BASIC INFORMATION AND EDUCATION IS PROVIDED IMMEDIATELY BY ALS UNITED OF GEORGIA. THIS INFORMATION INCLUDES, BUT IS NOT LIMITED TO, THE DIAGNOSIS ITSELF, DISEASE TRAJECTORY, RESOURCES AND SUPPORT, AND ONGOING RESEARCH. DURING FYE 2026, ALS UNITED OF GEORGIA SAW 190 INDIVIDUALS & THEIR FAMILIES DIAGNOSED WITH ALS REGISTER WITH THE ORGANIZATION. ANNUALLY THE ORGANIZATION PROVIDES AN EDUCATIONAL SYMPOSIUM WHICH HIGHLIGHTS RESEARCH, SUPPORT AND EDUCATIONAL OPPORTUNITIES FOR PEOPLE LIVING WITH ALS, COMMUNITY PROVIDERS, AND SUPPORTERS. ALTHOUGH TO DATE THERE IS NO CURE FOR THIS DISEASE, ALS UNITED OF GEORGIA IS PASSIONATE ABOUT THE MISSION OF ONE DAY FINDING A TREATMENT AND ULTIMATELY A CURE.THE FINANCIAL HARDSHIP THAT FAMILIES INCUR AS THE RESULT OF AN ALS DIAGNOSIS CAN IMPACT THEIR QUALITY OF LIFE TREMENDOUSLY. FOR THOSE THAT MAY NEED ADDITIONAL HELP, THE KOSTIUK CARE GRANT PROGRAM STRIVES TO PROVIDE SOME RELIEF. THIS PROGRAM IS A REIMBURSEMENT PROGRAM THAT ASSISTS FAMILIES WITH EXPENSES THAT ARE NOT TRADITIONALLY COVERED BY PRIVATE INSURANCES, MEDICAID OR MEDICARE. IT WILL COVER EXPENSES RELATED TO HOME CARE ASSISTANCE (RESPITE), TRAVEL COSTS FOR ATTENDANCE TO AND FROM ALS CLINICS, HOME MODIFICATIONS, AUTO MODIFICATIONS AND COMMUNICATION DEVICES. RECIPIENTS MAY APPLY FOR AND RECEIVE UP TWO GRANTS PER YEAR IN THE AMOUNT OF $1,000 PER GRANT REQUEST. GRANTS ARE AWARDED TWICE A YEAR ON A FIRST COME FIRST SERVE BASIS AND WILL BE BASED ON AVAILABILITY OF FUNDS. DURING FYE 2026, $203,000 WAS AWARDED IN KOSTIUK CARE GRANT FUNDS, SERVING 203 INDIVIDUALS. THE SUPPORT GROUP PROGRAM PROVIDES PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO CONNECT WITH OTHERS IN THE COMMUNITY WHO SHARE SIMILAR CHALLENGES AND NEEDS. THE GROUPS ARE DESIGNED TO PROVIDE EMOTIONAL AND PSYCHOSOCIAL SUPPORT AS WELL AS RESOURCES AND EDUCATION. KNOWING WHAT QUESTIONS TO ASK AND WHERE TO LOOK FOR RESOURCES IS VITAL. THE ORGANIZATION CURRENTLY CONDUCTS MONTHLY SUPPORT GROUPS THAT MEET THE NEEDS OF 159 COUNTIES IN THE STATE OF GEORGIA. THESE GROUPS ARE FACILITATED BY PROFESSIONALS AND COMMUNITY PARTNERS TO ENSURE MAXIMUM RESULTS. BECAUSE THE NEEDS OF CAREGIVERS AND CHILDREN CAN BE VERY SENSITIVE, THE ORGANIZATIONHAS DEVELOPED SPECIFIC GROUPS TO ADDRESS THOSE NEEDS. DURING FYE 2026, 100 SUPPORT GROUP MEETINGS WERE HELD OVER 9 LOCATIONS THROUGHOUT THE STATE, IMPACTING OVER 1,220 INDIVIDUALS WHO PARTICIPATED & ATTENDED.AS THE DISEASE PROGRESSES, INDIVIDUALS WILL EXPERIENCE A DECLINE IN FUNCTIONING AS IT RELATES TO MOBILITY AND SPEECH. THESE CHALLENGES CAN IMPACT INDEPENDENCE AND QUALITY OF LIFE. IN SOME SITUATIONS, SPECIFIC MEDICAL AND COMMUNICATION DEVICES ARE REQUIRED BUT NOT COVERED BY PRIVATE INSURANCE, MEDICAID OR MEDICARE. THE EQUIPMENT LOANER PROGRAM PROVIDES SUCH EQUIPMENT TO PEOPLE WITH ALS AT NO COST. THIS PROGRAM WORKS DILIGENTLY TO OBTAIN, THROUGH GRANT FUNDING OR PRIVATE DONATIONS, SUCH ITEMS THAT CAN ENSURE INCREASED INDEPENDENCE. ALS UNITED OF GEORGIA, IN PARTNERSHIP WITH COMMUNITY PROVIDERS, COLLABORATE ON THE MAINTENANCE AND STORAGE OF ALL EQUIPMENT.90% OF THE CURRENT ALS COMMUNITY IN GEORGIA CONTINUES TO REMAIN IN THEIR HOME THROUGHOUT THE DISEASE PROCESS. THIS BECOMES INCREASINGLY DIFFICULT BECAUSE THEY WILL REQUIRE TOTAL ADL CARE FROM ADDITIONAL PROVIDERS. THIS SERVICE IS NOT COVERED BY MEDICARE OR PRIVATE INSURANCE COMPANIES. THE SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM PROVIDES ALS WITH UP TO 18 HOURS OF IN-HOME CARE PER WEEK. THE CARE IS PROVIDED BY LICENSED COMMUNITY PARTNERS OF THE ALS UNITED OF GEORGIA AND ELIGIBILITY IS BASED ON A NEEDS ASSESSMENT. DURING FYE 2026, 14,699 IN-HOME CARE HOURS WERE PROVIDED THROUGH THIS PROGRAM.ACCESS TO QUALITY CARE AND RESEARCH CAN BE CHALLENGING FOR THOSE IMPACTED BY ALS. AS MOBILITY DECLINES AND THE NEED FOR ASSISTIVE TECHNOLOGY INCREASES, PEOPLE WITH ALS FIND IT DIFFICULT TO ATTEND NEEDED APPOINTMENTS VIA TRADITIONAL MODES OF TRANSPORTATION. MEDICARE AND MEDICAID ARE VERY LIMITED REGARDING THE COVERAGE OF NON-EMERGENCY TRANSPORTATION. THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM IS FOCUSED ON ADDRESSING TRANSPORTATION NEEDS VIA: NON-EMERGENCY TRANSPORTATION, VAN RENTALS, VEHICLE MODIFICATION AND VOUCHERS. DURING FYE 2026, 150 TRANSPORTATION TRIPS WERE APPROVED AND WITH 39 OF THOSE BEING VAN RENTALS AND PROVIDED TO FAMILIES THROUGH THIS PROGRAM.INFORMATION IS VITAL TO PEOPLE WITH ALS. AS THE BODY DECLINES IT IS VERY IMPORTANT TO BE PRESENTED WITH REALISTIC EXPECTATIONS REGARDING THE DISEASE TRAJECTORY. SKILLED CARE SERVICE COORDINATORS ARE AVAILABLE TO PROVIDE ONGOING CONSULTATIONS THROUGH OUR CARE SERVICES CONSULTATION PROGRAM. THE ONGOING CONSULTATIONS PROVIDE THE OPPORTUNITY TO ASSESS, EDUCATE, AND EMPOWER INDIVIDUALS AND THEIR FAMILIES TO MAKE INFORMED DECISIONS. THE COORDINATORS ARE ALSO VERY INSTRUMENTAL IN IDENTIFYING AND MAKING COMMUNITY REFERRALS. ALS UNITED OF GEORGIA IS THE CONNECTION BETWEEN WHAT IS NEEDED AND WHAT IS AVAILABLE FOR PEOPLE WITH ALS, THEIR FAMILIES, AND CAREGIVERS. IN FYE 2026, THE CARE SERVICES COORDINATOR TEAM SERVED 616 INDIVIDUALS LIVING WITH ALS AND THEIR FAMILIES.

  Expenses $1,161,108 · Grants $549,293

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

• EMORY ALS CENTER - EMORY UNIVERSITY HOSPITAL

  $40,150

  CLINIC FINANCIAL SUPPORT

• ALS UNITED

  $26,000

  RESEARCH SUPPORT

• AUGUSTA ALS CLINIC - AUGUSTA UNIVERSITY HOSPITAL

  $25,000

  CLINIC FINANCIAL SUPPORT

• MACON ALS CLINIC ATRIUM HEALTH NAVICENT REHABILITATION HOSPITAL

  $5,000

  CLINIC FINANCIAL SUPPORT

Provenance

Return type

form_990

Tax year

2025

Filed

14 September 2026

IRS schema version

2025v4.2

Source object

202622579349300127

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