Form 990 for tax year 2023

Totals

Total revenue

$3,537,013

Total expenses

$2,681,810

Contributions and grants received

$3,413,272

Grants paid

$815,797

Program service revenue

$0

Investment income

$128,422

Other revenue

-$4,681

Total assets, end of year

$4,677,789

Total liabilities, end of year

$243,336

Net assets or fund balances, end of year

$4,434,453

Program services expenses (Part IX)

$1,863,615

Management and general expenses

$307,245

Fundraising expenses

$510,950

Program service expenses (Part III)

$1,863,615

Program services were 69.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• DIRECT SERVICE:CAMP PROMISE--JETT FOUNDATION'S SUMMER CAMP, CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, JETT PROVIDES A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. CAMP PROMISE PROVIDES CAMPER-FOCUSED PROGRAMMING THAT BUILDS INDEPENDENCE, CONFIDENCE AND LIFE SKILLS THROUGH TRADITIONAL CAMP ACTIVITIES AND BY BRINGING CAMPERS NEW EXPERIENCES THROUGH ADAPTATION, TECHNOLOGY, CREATIVITY, AND SPECIAL GUESTS.JETT GIVING FUND--JETT FOUNDATION ESTABLISHED THE JETT GIVING FUND TO ASSIST FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY IN PURCHASING UNAFFORDABLE, BUT VITAL MEDICAL AND ACCESSIBILITY EQUIPMENT. HEALTH INSURANCE OFTEN WON'T COVER ALL SPECIALIZED MEDICAL AND ACCESSIBILITY EQUIPMENT SUCH AS SCOOTERS, SHOWER CHAIRS, RAMPS, ROTATIONAL BEDS AND ACCESSIBLE VANS; ITEMS NEEDED WHEN SUFFERING FROM A PROGRESSIVE MUSCLE-WASTING DISORDER. WITHOUT THESE NECESSITIES, THOSE WITH DUCHENNE STRUGGLE TO PARTICIPATE IN THE KINDS OF ACTIVITIES THAT MOST PEOPLE TAKE FOR GRANTED, SUCH AS GETTING TO AND FROM SCHOOL, OR GOING TO THE MALL WITH FRIENDS.

  Expenses $1,495,496 · Grants $815,797

• READY. SET. JETT. EDUCATIONAL PROGRAMMING:FAMILY WORKSHOPS--JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT.JETTRIDE--JETTRIDE IS A PROGRAM FOR SIBLINGS AND CLOSE FRIENDS OF THOSE AFFLICTED WITH DUCHENNE. THE JETTRIDE GIVES THESE INDIVIDUALS THE OPPORTUNITY TO CONNECT WITH OTHER TEENS WHO ARE LIVING THROUGH THE SAME EXPERIENCES IN ORDER TO BUILD LIFELONG FRIENDSHIP.THE COMMUNITY AMBASSADOR PROGRAM--LAUNCHED IN 2017, THIS PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. NEWLY DIAGNOSED FAMILY EDUCATION MATERIALS/SERIES --A DUCHENNE DIAGNOSIS IS INCREDIBLY OVERWHELMING FOR A FAMILY. JETT FOUNDATION HAS RECEIVED FEEDBACK FROM MEMBERS OF OUR COMMUNITY THAT THERE IS A NEED FOR ADDITIONAL RESOURCES THAT EDUCATE ON EVERYTHING FROM COMMUNICATING THE DIAGNOSIS AND DISEASE TO FAMILY MEMBERS AND FRIENDS, TO NAVIGATING HEALTH INSURANCE, TO UNDERSTANDING CLINICAL TRIAL AND TREATMENT OPTIONS. IN RESPONSE TO THIS UNMET NEED, IN 2019 WE DEVELOPED FREE, EDUCATIONAL RESOURCES IN PARTNERSHIP WITH SCIENTIFIC AND CLINICAL EXPERTS. THESE FREE EDUCATIONAL RESOURCES ARE PRODUCED AT JETT FOUNDATION AND ARE AVAILABLE FOR FREE TO ALL FAMILIES, CLINICIANS, AND TEACHERS. SOME OF THESE MATERIALS INCLUDE; HEALTH INSURANCE FLIGHT PLAN, CLINICAL TRIAL FLIGHT PLAN, GENE THERAPY FAQ, CLINICAL TRIAL CHEAT SHEET, DAN AND DMD CHILDREN'S BOOK NAMED THE COMMUNITY CARE INITIATIVE, THIS INITIATIVE LAUNCHED IN LATE 2017 TO PROVIDE EDUCATIONAL RESOURCES TO PEOPLE AND FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY. THE DUCHENNE BIOTECHNOLOGY COUNCIL ("DBC")--THE DBC IS A GROUP OF INDUSTRY PARTNERS IN THE DUCHENNE SPACE WHO HAVE COME TOGETHER TO TRY TO SOLVE SOME OF THE MAJOR BARRIERS TO INNOVATION THAT THEY ALL FACE IN DUCHENNE DRUG DEVELOPMENT. AS A TEAM, THESE PHARMACEUTICAL COMPANIES, WITH DIFFERENT TECHNOLOGIES, INTELLECTUAL PROPERTIES, AND CULTURES, HAVE COMMITTED TO MEETING QUARTERLY TO BRAINSTORM AND THEN TACKLE THE COMMON CHALLENGES THEY ALL FACE AS DRUG DEVELOPERS IN DUCHENNE.

  Expenses $170,741

• ADVOCACY--THE JETT FOUNDATION'S CONTINUED WORK IN ADVOCACY HAS BEEN FOCUSED ON EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAYS TO FINDING TREATMENTS FOR THIS FATAL DISEASE.

  Expenses $120,559

• RESEARCH--JETT FOUNDATION CONTINUES TO SUPPORT RESEARCH. JETT'S EFFORTS IN RESEARCH HAVE LED TO AN INCREASE IN CLINICAL TRIALS, WHICH HAS EXPANDED THE ORGANIZATION'S EDUCATIONAL PROGRAMMING TO INCLUDE INFORMATION ON INNOVATIVE RESEARCH AND DRUG DEVELOPMENT.

  Expenses $76,819

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2023

Filed

10 September 2024

IRS schema version

2023v5.1

Source object

202432549349300748

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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