- Revenue 2025
- $7,446,726
- Expenses 2025
- $3,650,266
Program services were 76.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H12
- Classification
- 1200
- Street
- 390 CIRCUIT ST
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
JETT FOUNDATION EMPOWERS PEOPLE AND FAMILIES IMPACTED BY DUCHENNE MUSCULAR DYSTROPHY THROUGH THE DEVELOPMENT OF TRANSFORMATIVE PROGRAMMING, EDUCATIONAL OPPORTUNITIES, AND ONGOING SUPPORT FOR EVERY STAGE OF A DUCHENNE JOURNEY.
Activities or mission (Part I)
PROVIDES DIRECT SERVICE AND SUPPORT FOR FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY.
-
DIRECT SERVICES : CAMP PROMISE, JETT GIVING FUND, FAMILY WORSHOPS/COMMUNITY WEBINAR SERIES, THE COMMUNITY AMBASSADOR PROGRAM, AND FAMILY SUPPORT/PORCH NITE. JETT FOUNDATION'S SUMMER CAMP, CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, JETT PROVIDES A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. CAMP PROMISE SERVED 153 CAMPERS IN PERSON AT SEVEN LOCATIONS AND ONE WEEK OF VIRTUAL CAMP SERVING 80 CAMPERS. IN TOTAL WE SERVED 233 CAMPERS WITH THE SUPPORT OF 200 VOLUNTEERS. MORE THAN 77% OF CAMPERS WERE OVER THE AGE OF 18 (AND HAVE AGED OUT OF OTHER CAMP OPTIONS). JETT CONTINUES TO HOST MONTHLY EVENTS INCLUDING TRIVIA NIGHTS, GAME SHOWS AND MORE.THE JETT GIVING FUND INCLUDES THREE FINANCIAL ASSISTANCE PROGRAMS: THE ACCESSIBLE VEHICLE FUND, THE EMERGENCY FUND, AND THE EQUIPMENT ASSISTANCE FUND.IN 2025, THE ACCESSIBLE VEHICLE FUND PROVIDED 16 ACCESSIBLE VEHICLES, OFTEN TO LOW-INCOME FAMILIES (UNDER $50,000 HOUSEHOLD INCOME) LACKING SAFE TRANSPORTATION; FIVE FAMILIES HAD MULTIPLE CHILDREN WITH DUCHENNE. SINCE ITS LAUNCH, THE JETT GIVING FUND HAS PROVIDED OVER $6.5 MILLION IN ACCESSIBILITY EQUIPMENT THANKS TO SPONSORS.ESTABLISHED IN 2020, THE EMERGENCY FUND OFFERS IMMEDIATE, FLEXIBLE SUPPORT FOR FAMILIES FACING UNEXPECTED CRISES. IN 2025, IT AWARDED 90 GRANTS TOTALING OVER $130,000 FOR NECESSITIES LIKE FOOD, UTILITIES, MOVING COSTS, AND EVICTION PREVENTION, ENSURING DUCHENNE FAMILIES DON'T HAVE TO CHOOSE BETWEEN BASIC NEEDS. ALL GRANTS WERE REVIEWED AND AWARDED WITHIN A 14-DAY TURNAROUND. JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT.IN 2025, JETT FOUNDATION WAS ABLE TO CONTINUE IN PERSON EVENTS AS WELL AS HOSTING VIRTUAL OUR COMMUNITY WEBINAR SERIES. JETT HOSTED 18 WEBINARS FEATURING CLINICAL TRIALS, DUCHENNE CARE AND WELLNESS WITH OVER 400 REGISTERED PARTICIPANTS. LAUNCHED IN 2017, THE COMMUNITY AMBASSADOR PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. IN 2025, 34 JETT FOUNDATION AMBASSADORS FROM 20 STATES ENGAGED WITH FAMILIES AFFECTED BY DUCHENNE THROUGHOUT THE COUNTRY. FAMILY SUPPORT/PORCH NITE IS A NATIONAL CAREGIVER SUPPORT PROGRAM WHICH FOCUSES ON BUILDING STRONGER SUPPORT SYSTEMS FOR FAMILIES AFFECTED BY DUCHENNE IN THEIR LOCAL COMMUNITY THROUGH STORY-TELLING, EDUCATION, AND GRIEF-MANAGEMENT. IN 2025, THE ORGANIZATION HOSTED 17 VIRTUAL PORCH NITES WITH 250 PARTICIPANTS.
Expenses $2,347,405 · Grants $1,459,319
-
EDUCATION AND ADVOCACY: EDUCATIONAL CARE PACKAGES/NEWLY DIAGNOSED FAMILY EDUCATION MATERIALS/SERIES A DUCHENNE DIAGNOSIS IS INCREDIBLY OVERWHELMING FOR A FAMILY. JETT FOUNDATION EDUCATIONAL CARE PACKAGES PROVIDE CRUCIAL EDUCATIONAL MATERIALS TO NEWLY DIAGNOSED FAMILIES, CAREGIVERS, TEACHERS AND CLINICIANS THAT ARE SEEKING MORE GUIDANCE ON DUCHENNE. JETT FOUNDATION PROVIDED OVER 200 CARE PACKAGES IN 2025 TO THOSE WHO REQUESTED THEM FROM THE ORGANIZATION'S WEBSITE OR ATTENDED JETT EVENTS OR PROGRAMS. THESE FREE EDUCATIONAL RESOURCES INCLUDE SUPPORT LETTERS FROM THE COMMUNITY, JETT FOUNDATION BROCHURE AND WELCOME LETTER, HEALTH INSURANCE FLIGHT PLAN, CLINICAL TRIAL FLIGHT PLAN, TRANSITION OF CARE CHECKLIST, CLINICAL TRIAL CHEAT SHEET, DAN AND DMD CHILDREN'S BOOK, STANDARDS OF CARE AND DURABLE MEDICAL EQUIPMENT BOOKLET.ADVOCACYTHE JETT FOUNDATION'S CONTINUED WORK IN ADVOCACY HAS BEEN FOCUSED ON EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAYS TO FINDING TREATMENTS FOR THIS FATAL DISEASE.
Expenses $425,815
As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Christine McSherryCHRISTINE MCSHERRY
FOUNDER AND DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Alfred JacksonALFRED JACKSON
CHAIR/DIRECTOR
- Total calculated
- $0
- Hours/week
- 1.5
-
Ellen HansonELLEN HANSON
VICE CHAIR/DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Mike MullinMIKE MULLIN
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
Colleen PikeCOLLEEN PIKE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Melissa PaigeMELISSA PAIGE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Diana JohnsonDIANA JOHNSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Adrian KielhornADRIAN KIELHORN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Chris SchlechtyCHRIS SCHLECHTY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Leo RobinsonLEO ROBINSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
Eric SnyderERIC SNYDER
PRESIDENT AND CEO
- Total calculated
- $261,462
- From this org
- $234,542
- From related orgs
- $0
- Other
- $26,920
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $219,542
- Bonus
- $15,000
- Other
- $0
- Deferred
- $8,100
- Nontaxable benefits
- $18,820
- Filer's total
- $261,462
-
Maura CarrollMAURA CARROLL
DIRECTOR OF DEVEPOLMENT
- Total calculated
- $123,836
- From this org
- $118,537
- From related orgs
- $0
- Other
- $5,299
- Hours/week
- 40
-
Allison CaputoALLISON CAPUTO
DIRECTOR OF FINANCE
- Total calculated
- $114,168
- From this org
- $103,202
- From related orgs
- $0
- Other
- $10,966
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $7,446,726
- Expenses
- $3,650,266
- Contributions
- $7,082,690
- Grants paid
- $1,459,319
-
2024
- Revenue
- $5,119,683
- Expenses
- $3,372,118
- Contributions
- $4,815,724
- Grants paid
- $1,407,999
-
2023
- Revenue
- $3,537,013
- Expenses
- $2,681,810
- Contributions
- $3,413,272
- Grants paid
- $815,797
-
2022
- Revenue
- $3,528,313
- Expenses
- $2,039,167
- Contributions
- $3,521,678
- Grants paid
- $497,725
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $2,598,639
- Expenses
- $2,115,724
- Assets (EOY)
- $2,196,455
-
2020 · 990
- Revenue
- $2,236,553
- Expenses
- $1,868,675
- Assets (EOY)
- $1,572,536
-
2019 · 990
- Revenue
- $1,680,978
- Expenses
- $1,666,661
- Assets (EOY)
- $1,170,742
-
2019 · 990
- Revenue
- $1,713,025
- Expenses
- $1,666,661
- Assets (EOY)
- $1,202,789
-
2018 · 990
- Revenue
- $2,039,207
- Expenses
- $1,647,598
- Assets (EOY)
- $1,187,840
-
2017 · 990
- Revenue
- $1,621,289
- Expenses
- $1,676,096
- Assets (EOY)
- $800,590
-
2016 · 990
- Revenue
- $2,227,989
- Expenses
- $1,975,013
- Assets (EOY)
- $897,886
-
2015 · 990
- Revenue
- $1,112,230
- Expenses
- $903,036
- Assets (EOY)
- $564,746
-
2014 · 990
- Revenue
- $853,458
- Expenses
- $932,907
- Assets (EOY)
- $337,139
-
2013 · 990
- Revenue
- $1,132,006
- Expenses
- $734,820
- Assets (EOY)
- $418,194
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
UNIVERSITY OF FLORIDA FOUNDATION
$75,000
2024 RESEARCH
-
$10,000
2024 RESEARCH
-
$10,000
2025 RESEARCH
Grants received
-
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$1,810,255
2024 For grant recipient's exempt purposes
-
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$1,229,980
2022 For grant recipient's exempt purposes
-
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$1,057,200
2023 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$64,500
2024 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$50,178
2022 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$41,167
2023 HEALTH
-
2024 PROGRAM SUPPORT
-
2024 GENERAL SUPPORT
-
JOY IN CHILDHOOD FOUNDATION INC
$10,000
2022 Support Sick and Hungry Kids
-
2023 GENERAL SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.