Form 990 for tax year 2024

Totals

Total revenue

$5,119,683

Total expenses

$3,372,118

Contributions and grants received

$4,815,724

Grants paid

$1,407,999

Program service revenue

$0

Investment income

$292,426

Other revenue

$11,533

Total assets, end of year

$6,489,532

Total liabilities, end of year

$256,655

Net assets or fund balances, end of year

$6,232,877

Program services expenses (Part IX)

$2,498,731

Management and general expenses

$364,615

Fundraising expenses

$508,772

Program service expenses (Part III)

$2,498,731

Program services were 74.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2024

• DIRECT SERVICE:CAMP PROMISE - JETT FOUNDATION'S SUMMER CAMP, CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, JETT PROVIDES A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. CAMP PROMISE PROVIDES CAMPER-FOCUSED PROGRAMMING THAT BUILDS INDEPENDENCE, CONFIDENCE AND LIFE SKILLS THROUGH TRADITIONAL CAMP ACTIVITIES AND BY BRINGING CAMPERS NEW EXPERIENCES THROUGH ADAPTATION, TECHNOLOGY, CREATIVITY, AND SPECIAL GUESTS. IN 2020, JETT ADDED TWO NEW RETREAT CAMPS IN ARIZONA AND OHIO FOR INDIVIDUALS 18 YEARS AND OLDER; THESE RETREAT CAMPS CONTINUE TO GROW IN POPULARITY. IN 2024, JETT FOUNDATION ADDED TWO ADDITIONAL CAMPS IN SOUTHERN CALIFORNIA AND SOUTH CAROLINA. CAMP PROMISE SERVED 148 CAMPERS IN PERSON AT SEVEN LOCATIONS AND ONE WEEK OF VIRTUAL CAMP SERVING 113 CAMPERS. IN TOTAL WE SERVED 261 CAMPERS WITH THE SUPPORT OF 200 VOLUNTEERS. MORE THAN 62% OF CAMPERS WERE OVER THE AGE OF 18 (AND HAVE AGED OUT OTHER CAMP OPTIONS). JETT CONTINUES TO HOST MONTHLY EVENTS INCLUDING TRIVIA NIGHTS, GAME SHOWS AND MORE.JETT GIVING FUND - JETT FOUNDATION ESTABLISHED THE JETT GIVING FUND TO ASSIST FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY IN PURCHASING UNAFFORDABLE, BUT VITAL MEDICAL AND ACCESSIBILITY EQUIPMENT. HEALTH INSURANCE OFTEN WON'T COVER ALL SPECIALIZED MEDICAL AND ACCESSIBILITY EQUIPMENT SUCH AS SCOOTERS, SHOWER CHAIRS, RAMPS, ROTATIONAL BEDS AND ACCESSIBLE VANS; ITEMS NEEDED WHEN SUFFERING FROM A PROGRESSIVE MUSCLE WASTING DISORDER. WITHOUT THESE NECESSITIES, THOSE WITH DUCHENNE STRUGGLE TO PARTICIPATE IN THE KINDS OF ACTIVITIES THAT MOST PEOPLE TAKE FOR GRANTED, SUCH AS GETTING TO AND FROM SCHOOL, OR GOING TO THE MALL WITH FRIENDS. THROUGH THE GENEROSITY OF INDIVIDUALS, CORPORATE AND FOUNDATION SUPPORTERS, JETT ACCEPTED 14 FAMILIES INTO THE ACCESSIBLE VEHICLE PROGRAM IN 2024.

  Expenses $2,068,244 · Grants $1,322,999

• COMMUNITY AND EDUCATION:FAMILY WORKSHOPS/COMMUNITY WEBINAR SERIES - JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT. IN 2024, JETT FOUNDATION WAS ABLE TO CONTINUE IN PERSON EVENTS AS WELL AS HOSTING VIRTUAL OUR COMMUNITY WEBINAR SERIES. JETT HOSTED 22 WEBINARS FEATURING CLINICAL TRIALS, DUCHENNE CARE AND WELLNESS WITH OVER 400 REGISTERED PARTICIPANTS.THE COMMUNITY AMBASSADOR PROGRAM - LAUNCHED IN 2017, THIS PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. IN 2024, 31 JETT FOUNDATION AMBASSADORS FROM 23 STATES ENGAGED WITH FAMILIES AFFECTED BY DUCHENNE THROUGHOUT THE COUNTRY.FAMILY SUPPORT/PORCH NITE - LAUNCHED IN 2018 BY TWO JETT AMBASSADORS AND MOMS OF CHILDREN WITH DUCHENNE. THIS NATIONAL CAREGIVER SUPPORT PROGRAM FOCUSES ON BUILDING STRONGER SUPPORT SYSTEMS FOR FAMILIES AFFECTED BY DUCHENNE IN THEIR LOCAL COMMUNITY THROUGH STORY-TELLING, EDUCATION, AND GRIEF-MANAGEMENT. IN 2024, WE HOSTED 10 VIRTUAL PORCH NITES WITH 273 PARTICIPANTS. ADDITIONALLY, JETT FOUNDATION HOSTED THREE IN PERSON PORCH NITES SERVING 29 PARTICIPANTS. EDUCATIONAL CARE PACKAGES/NEWLY DIAGNOSED FAMILY EDUCATION MATERIALS/SERIES - A DUCHENNE DIAGNOSIS IS INCREDIBLY OVERWHELMING FOR A FAMILY. JETT FOUNDATION EDUCATIONAL CARE PACKAGES PROVIDE CRUCIAL EDUCATIONAL MATERIALS TO NEWLY DIAGNOSED FAMILIES, CAREGIVERS, TEACHERS AND CLINICIANS THAT ARE SEEKING MORE GUIDANCE ON DUCHENNE. JETT FOUNDATION PROVIDED OVER 250 CARE PACKAGES IN 2024 TO THOSE WHO REQUESTED THEM FROM THE ORGANIZATION'S WEBSITE OR ATTENDED JETT EVENTS OR PROGRAMS. THESE FREE EDUCATIONAL RESOURCES INCLUDE SUPPORT LETTERS FROM THE COMMUNITY, JETT FOUNDATION BROCHURE AND WELCOME LETTER, HEALTH INSURANCE FLIGHT PLAN, CLINICAL TRIAL FLIGHT PLAN, GENE THERAPY FAQ, TRANSITION OF CARE CHECKLIST, CLINICAL TRIAL CHEAT SHEET, DAN AND DMD CHILDREN'S BOOK, STANDARDS OF CARE AND DURABLE MEDICAL EQUIPMENT BOOKLET.

  Expenses $180,039

• ADVOCACY AND RESEARCH:THE JETT FOUNDATION'S CONTINUED WORK IN ADVOCACY HAS BEEN FOCUSED ON EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAYS TO FINDING TREATMENTS FOR THIS FATAL DISEASE. ALTHOUGH MINIMAL IN 2023 AND 2024, JETT FOUNDATION CONTINUES TO SUPPORT RESEARCH. JETT'S EFFORTS IN RESEARCH HAVE LED TO AN INCREASE IN CLINICAL TRIALS, WHICH HAS EXPANDED THE ORGANIZATION'S EDUCATIONAL PROGRAMMING TO INCLUDE INFORMATION ON INNOVATIVE RESEARCH AND DRUG DEVELOPMENT.

  Expenses $250,448 · Grants $85,000

• RESEARCH--JETT FOUNDATION CONTINUES TO SUPPORT RESEARCH. JETT'S EFFORTS IN RESEARCH HAVE LED TO AN INCREASE IN CLINICAL TRIALS, WHICH HAS EXPANDED THE ORGANIZATION'S EDUCATIONAL PROGRAMMING TO INCLUDE INFORMATION ON INNOVATIVE RESEARCH AND DRUG DEVELOPMENT.

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• UNIVERSITY OF FLORIDA FOUNDATION

  $75,000

  RESEARCH

• UMASS CHAN MEDICAL SCHOOL

  $10,000

  RESEARCH

Provenance

Return type

form_990

Tax year

2024

Filed

8 May 2025

IRS schema version

2024v5.1

Source object

202541289349303424

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