Form 990 for tax year 2022

Totals

Total revenue

$3,528,313

Total expenses

$2,039,167

Contributions and grants received

$3,521,678

Grants paid

$497,725

Program service revenue

$0

Investment income

$6,559

Other revenue

$76

Total assets, end of year

$3,509,096

Total liabilities, end of year

$46,555

Net assets or fund balances, end of year

$3,462,541

Program services expenses (Part IX)

$1,446,861

Management and general expenses

$271,082

Fundraising expenses

$321,224

Program service expenses (Part III)

$1,446,861

Program services were 71.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• DIRECT SERVICE - JETT GIVING FUND AND CAMP PROMISE:JETT GIVING FUND WAS ESTABLISHED TO ASSIST FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY IN TWO WAYS. 1. PURCHASING AFFORDABLE, BUT VITAL ACCESSIBILITY EQUIPMENT SUCH AS ACCESSIBLE VEHICLES. 2. PROVIDING FINANCIAL ASSISTANCE FOR EMERGENCY SITUATIONS SUCH AS RENT AND UTILITY SUPPORT AND FOOD INSECURITY. CAMP PROMISE IS A BARRIER FREE WEEK LONG OVERNIGHT CAMP FOR THOSE WITH DUCHENNE AND OTHER NEUROMUSCULAR DISORDERS.

  Expenses $1,109,413 · Grants $497,725

• EDUCATIONAL PROGRAMMING:JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT.IN 2021, JETT FOUNDATION CONTINUED TO PROVIDE OUR NEW VIRTUAL COMMUNITY WEBINAR SERIES. JETT HOSTED 19 WEBINARS FEATURING CLINICAL TRIALS, DUCHENNE CARE AND WELLNESS WITH OVER 500 REGISTERED PARTICIPANTS.LAUNCHED IN 2017, THIS PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. IN 2021, 17 JETT FOUNDATION AMBASSADORS ENGAGED WITH AN ESTIMATED 275 FAMILIES AFFECTED BY DUCHENNE THROUGHOUT THE COUNTRY. THE DUCHENNE BIOTECHNOLOGY COUNCIL ("DBC") IS A GROUP OF INDUSTRY PARTNERS IN THE DUCHENNE SPACE WHO HAVE COME TOGETHER TO TRY TO SOLVE SOME OF THE MAJOR BARRIERS TO INNOVATION THAT THEY ALL FACE IN DUCHENNE DRUG DEVELOPMENT. AS A TEAM, THESE PHARMACEUTICAL COMPANIES, WITH DIFFERENT TECHNOLOGIES, INTELLECTUAL PROPERTIES, AND CULTURES, HAVE COMMITTED TO MEETING QUARTERLY TO BRAINSTORM AND THEN TACKLE THE COMMON CHALLENGES THEY ALL FACE AS DRUG DEVELOPERS IN DUCHENNE. DUE TO STAFFING CHANGES AND COVID-19 THE COUNCIL DID NOT MEET IN 2021. JETT USED THIS TIME TO FURTHER EVALUATE THE YOUR VOICE; BURDEN OF DISEASE STUDY AND ENGAGE A CONSULTANT TO GUIDE NEXT STEPS IN 2021.

  Expenses $150,203

• RESEARCH: ALTHOUGH MINIMAL IN 2021, JETT FOUNDATION CONTINUES TO SUPPORT RESEARCH. JETT'S EFFORTS IN RESEARCH HAVE LED TO AN INCREASE IN CLINICAL TRIALS, WHICH HAS EXPANDED THE ORGANIZATION'S EDUCATIONAL PROGRAMMING TO INCLUDE INFORMATION ON INNOVATIVE RESEARCH AND DRUG DEVELOPMENT.

  Expenses $104,279

• ADVOCACY:THE JETT FOUNDATION'S CONTINUED WORK IN ADVOCACY HAS BEEN FOCUSED ON EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAYS TO FINDING TREATMENTS FOR THIS FATAL DISEASE.

  Expenses $82,966

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2022

Filed

23 October 2023

IRS schema version

2022v5.0

Source object

202332969349300858

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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