Form 990 for tax year 2025

Totals

Total revenue

$7,446,726

Total expenses

$3,650,266

Contributions and grants received

$7,082,690

Grants paid

$1,459,319

Program service revenue

$0

Investment income

$312,308

Other revenue

$51,728

Total assets, end of year

$10,435,173

Total liabilities, end of year

$259,163

Net assets or fund balances, end of year

$10,176,010

Program services expenses (Part IX)

$2,773,220

Management and general expenses

$413,053

Fundraising expenses

$463,993

Program service expenses (Part III)

$2,773,220

Program services were 76.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2025

• DIRECT SERVICES : CAMP PROMISE, JETT GIVING FUND, FAMILY WORSHOPS/COMMUNITY WEBINAR SERIES, THE COMMUNITY AMBASSADOR PROGRAM, AND FAMILY SUPPORT/PORCH NITE. JETT FOUNDATION'S SUMMER CAMP, CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, JETT PROVIDES A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. CAMP PROMISE SERVED 153 CAMPERS IN PERSON AT SEVEN LOCATIONS AND ONE WEEK OF VIRTUAL CAMP SERVING 80 CAMPERS. IN TOTAL WE SERVED 233 CAMPERS WITH THE SUPPORT OF 200 VOLUNTEERS. MORE THAN 77% OF CAMPERS WERE OVER THE AGE OF 18 (AND HAVE AGED OUT OF OTHER CAMP OPTIONS). JETT CONTINUES TO HOST MONTHLY EVENTS INCLUDING TRIVIA NIGHTS, GAME SHOWS AND MORE.THE JETT GIVING FUND INCLUDES THREE FINANCIAL ASSISTANCE PROGRAMS: THE ACCESSIBLE VEHICLE FUND, THE EMERGENCY FUND, AND THE EQUIPMENT ASSISTANCE FUND.IN 2025, THE ACCESSIBLE VEHICLE FUND PROVIDED 16 ACCESSIBLE VEHICLES, OFTEN TO LOW-INCOME FAMILIES (UNDER $50,000 HOUSEHOLD INCOME) LACKING SAFE TRANSPORTATION; FIVE FAMILIES HAD MULTIPLE CHILDREN WITH DUCHENNE. SINCE ITS LAUNCH, THE JETT GIVING FUND HAS PROVIDED OVER $6.5 MILLION IN ACCESSIBILITY EQUIPMENT THANKS TO SPONSORS.ESTABLISHED IN 2020, THE EMERGENCY FUND OFFERS IMMEDIATE, FLEXIBLE SUPPORT FOR FAMILIES FACING UNEXPECTED CRISES. IN 2025, IT AWARDED 90 GRANTS TOTALING OVER $130,000 FOR NECESSITIES LIKE FOOD, UTILITIES, MOVING COSTS, AND EVICTION PREVENTION, ENSURING DUCHENNE FAMILIES DON'T HAVE TO CHOOSE BETWEEN BASIC NEEDS. ALL GRANTS WERE REVIEWED AND AWARDED WITHIN A 14-DAY TURNAROUND. JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT.IN 2025, JETT FOUNDATION WAS ABLE TO CONTINUE IN PERSON EVENTS AS WELL AS HOSTING VIRTUAL OUR COMMUNITY WEBINAR SERIES. JETT HOSTED 18 WEBINARS FEATURING CLINICAL TRIALS, DUCHENNE CARE AND WELLNESS WITH OVER 400 REGISTERED PARTICIPANTS. LAUNCHED IN 2017, THE COMMUNITY AMBASSADOR PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. IN 2025, 34 JETT FOUNDATION AMBASSADORS FROM 20 STATES ENGAGED WITH FAMILIES AFFECTED BY DUCHENNE THROUGHOUT THE COUNTRY. FAMILY SUPPORT/PORCH NITE IS A NATIONAL CAREGIVER SUPPORT PROGRAM WHICH FOCUSES ON BUILDING STRONGER SUPPORT SYSTEMS FOR FAMILIES AFFECTED BY DUCHENNE IN THEIR LOCAL COMMUNITY THROUGH STORY-TELLING, EDUCATION, AND GRIEF-MANAGEMENT. IN 2025, THE ORGANIZATION HOSTED 17 VIRTUAL PORCH NITES WITH 250 PARTICIPANTS.

  Expenses $2,347,405 · Grants $1,459,319

• EDUCATION AND ADVOCACY: EDUCATIONAL CARE PACKAGES/NEWLY DIAGNOSED FAMILY EDUCATION MATERIALS/SERIES A DUCHENNE DIAGNOSIS IS INCREDIBLY OVERWHELMING FOR A FAMILY. JETT FOUNDATION EDUCATIONAL CARE PACKAGES PROVIDE CRUCIAL EDUCATIONAL MATERIALS TO NEWLY DIAGNOSED FAMILIES, CAREGIVERS, TEACHERS AND CLINICIANS THAT ARE SEEKING MORE GUIDANCE ON DUCHENNE. JETT FOUNDATION PROVIDED OVER 200 CARE PACKAGES IN 2025 TO THOSE WHO REQUESTED THEM FROM THE ORGANIZATION'S WEBSITE OR ATTENDED JETT EVENTS OR PROGRAMS. THESE FREE EDUCATIONAL RESOURCES INCLUDE SUPPORT LETTERS FROM THE COMMUNITY, JETT FOUNDATION BROCHURE AND WELCOME LETTER, HEALTH INSURANCE FLIGHT PLAN, CLINICAL TRIAL FLIGHT PLAN, TRANSITION OF CARE CHECKLIST, CLINICAL TRIAL CHEAT SHEET, DAN AND DMD CHILDREN'S BOOK, STANDARDS OF CARE AND DURABLE MEDICAL EQUIPMENT BOOKLET.ADVOCACYTHE JETT FOUNDATION'S CONTINUED WORK IN ADVOCACY HAS BEEN FOCUSED ON EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAYS TO FINDING TREATMENTS FOR THIS FATAL DISEASE.

  Expenses $425,815

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• UMASS CHAN MEDICAL SCHOOL

  $10,000

  RESEARCH

Provenance

Return type

form_990

Tax year

2025

Filed

6 May 2026

IRS schema version

2025v4.1

Source object

202621269349300832

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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