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Nonprofiteer
← THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION ST LOUIS REGIONAL CHAPTER

Form 990 for tax year 2022

Filed by THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION ST LOUIS REGIONAL CHAPTER.

Totals

Total revenue
-$31,306
Total expenses
$4,466,361
Contributions and grants received
$1,363,782
Grants paid
$127,257
Program service revenue
$0
Investment income
-$1,316,975
Other revenue
-$78,113
Total assets, end of year
$2,107,930
Total liabilities, end of year
$2,107,930
Net assets or fund balances, end of year
$0
Program services expenses (Part IX)
$662,804
Management and general expenses
$3,638,634
Fundraising expenses
$164,923
Program service expenses (Part III)
$662,804

Program services were 14.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $425,903

  • 1f · All other contributions, gifts and grants

    $937,879

  • 1g · Noncash contributions included above

    $237,005

  • 3 · Investment income

    total $39,012 · excluded $39,012

  • 7a · Gross sales of assets other than inventory

    securities $1,829,554

  • 7b · Less cost or other basis and sales expenses

    securities $1,715,414 · other assets $1,470,127

  • 7c · Gain or loss

    securities $114,140 · other assets -$1,470,127

  • 7d · Net gain or loss

    total -$1,355,987 · excluded -$1,355,987

  • 8a · Fundraising events: gross income

    $76,160

  • 8a · Fundraising events: contributions included on line 1c

    $425,903

  • 8b · Fundraising events: direct expenses

    $154,273

  • 8c · Net income from fundraising events

    total -$78,113 · excluded -$78,113

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $127,257 · program services $127,257

  • 5 · Compensation of officers, directors and key employees

    total $57,382 · program services $45,065 · management and general $5,331 · fundraising $6,986

  • 7 · Other salaries and wages

    total $279,214 · program services $192,156 · management and general $41,570 · fundraising $45,488

  • 8 · Pension plan contributions

    total $1,422 · program services $961 · management and general $161 · fundraising $300

  • 9 · Other employee benefits

    total $27,679 · program services $18,757 · management and general $3,493 · fundraising $5,429

  • 10 · Payroll taxes

    total $30,552 · program services $21,471 · management and general $4,416 · fundraising $4,665

  • 11a · Fees: management

    total $8,148 · program services $1,060 · management and general $112 · fundraising $6,976

  • 11c · Fees: accounting

    total $11,270 · management and general $11,270

  • 11g · Fees: other

    total $16,326 · program services $11,423 · management and general $2,363 · fundraising $2,540

  • 12 · Advertising and promotion

    total $4,400 · fundraising $4,400

  • 13 · Office expenses

    total $14,786 · program services $9,756 · management and general $695 · fundraising $4,335

  • 14 · Information technology

    total $19,184 · program services $11,235 · management and general $3,833 · fundraising $4,116

  • 16 · Occupancy

    total $46,829 · program services $36,398 · management and general $3,866 · fundraising $6,565

  • 17 · Travel

    total $246 · fundraising $246

  • 19 · Conferences, conventions and meetings

    total $7,049 · program services $4,464 · management and general $82 · fundraising $2,503

  • 21 · Payments to affiliates

    total $153,899 · program services $96,956 · management and general $16,929 · fundraising $40,014

  • 22 · Depreciation, depletion and amortization

    total $93,359 · program services $70,315 · management and general $9,141 · fundraising $13,903

  • 23 · Insurance

    total $10,505 · program services $7,639 · management and general $1,287 · fundraising $1,579

  • 24a · Other expenses: RESERVE/LEGACY FUNDS TO

    total $3,530,893 · management and general $3,530,893

  • 24b · Other expenses: TRANSPORTATION

    total $6,517 · program services $6,045 · management and general $0 · fundraising $472

  • 24c · Other expenses: REPAIRS AND MAINTENANCE

    total $901 · program services $720 · management and general $57 · fundraising $124

  • 24e · All other expenses

    total $18,543 · program services $1,126 · management and general $3,135 · fundraising $14,282

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,827,638 · end of year $1,883,860

  • 2 · Savings and temporary cash investments

    beginning of year $9,155 · end of year $1,198

  • 3 · Pledges and grants receivable

    beginning of year $374,622 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $9,487 · end of year $0

  • 10a · Land, buildings and equipment: cost or other basis

    $0

  • 10b · Land, buildings and equipment: accumulated depreciation

    $0

  • 10c · Land, buildings and equipment, net

    beginning of year $517,878 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $2,083,376 · end of year $0

  • 12 · Investments: other securities

    beginning of year $224,640 · end of year $222,872

  • 15 · Other assets

    beginning of year $118,144 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $246,147 · end of year $0

  • 25 · Other liabilities

    beginning of year $0 · end of year $2,107,930

  • 27 · Net assets without donor restrictions

    beginning of year $4,016,797 · end of year $0

  • 28 · Net assets with donor restrictions

    beginning of year $901,996 · end of year $0

Mission and programs · 2022

Mission

TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.

  • PATIENT CARE SERVICES: CASE MANAGEMENT AND SUPPORTIVE PROGRAMS AND SERVICES TO 345 INDIVIDUALS DIAGNOSED WITH ALS AND THEIR FAMILY MEMBERS IN EASTERN MISSOURI AND CENTRAL AND SOUTHERN ILLINOIS. SERVICES AND PROGRAMS ARE FREE OF CHARGE. CARE SERVICE COORDINATORS HELP FAMILIES NAVIGATE THROUGH HEALTHCARE SYSTEMS AND STRIVE TO INCREASE FUNCTIONAL INDEPENDENCE WHILE IMPROVING QUALITY OF LIFE. THE CHAPTER ASSESSES PATIENT/FAMILY NEEDS, DEVISES INDIVIDUALIZED CARE PLANS THAT INCLUDE HOME VISITS, COUNSELING, END OF LIFE CARE PLANNING, AND GRIEF COUNSELING; PARTICIPATION WITH COMMUNITY PARTNERSHIPS WITH ALS MULTIDISCIPLINARY TREATMENT CENTERS AT SAINT LOUIS UNIVERSITY AND AFFILIATED CLINICS AT WASHINGTON UNIVERSITY AND JOHN COCHRAN VA MEDICAL CENTER IN ST. LOUIS, ST. FRANCIS IN CAPE GIRARDEAU AND SIU MEDICAL CENTER IN SPRINGFIELD ILLINOIS; COLLABORATION WITH DURABLE MEDICAL EQUIPMENT PROVIDERS, SEATING/MOBILITY PROVIDERS, HOSPICE/HOME HEALTH CARE PROVIDERS; PROVISION OF FINANCIAL GRANTS, MEDICAL EQUIPMENT, NUTRITIONAL SUPPLEMENTS, TRANSPORTATION ASSISTANCE, AUGMENTATIVE COMMUNICATION AND ASSISTIVE TECHNOLOGY EQUIPMENT LOAN; AND OFFERS A VOLUNTEER PROGRAM, PROVIDING VISITING HELPERS TO ASSIST WITH HOUSEHOLD CHORES AND COMPANIONSHIP.

    Expenses $533,451 · Grants $127,257

  • EDUCATION, AWARENESS AND ADVOCACY: STIMULATE PUBLIC AWARENESS THROUGH ADVOCACY ACTIVITIES ON STATE AND NATIONAL LEVELS. THE CHAPTER PROVIDES AN EDUCATIONAL INSTITUTE FOR HEALTH CARE PROFESSIONALS, REGULAR PATIENT INFORMATION UPDATES, A PRINTED, VIDEO AND CD LENDING LIBRARY, ALS EDUCATIONAL ACTIVITY BOOKS FOR CHILDREN, AND PRINTED AND ONLINE RESOURCE MANUALS FOR ASSISTANCE WITH TECHNOLOGY, LOSS AND GRIEF, VA HEALTHCARE AND BENEFITS. VOLUNTEER PROGRAM EDUCATES FAMILY AND FRIENDS ABOUT PATIENT NEED SO THEY CAN PROVIDE PATIENT AND FAMILY ADDITIONAL HELP, CARE AND SUPPORT. THROUGH PUBLIC OUTREACH EFFORTS, MEDIA RELATIONS AND SOCIAL MEDIA, THE CHAPTER CONTINUALLY TELLS THE STORY OF THOSE BATTLING THE DISEASE AND THE IMPACT OF OUR WORK TO INCREASE UNDERSTANDING AND SEEK CONTINUED FUNDING NEEDED FOR CARE SERVICES AND ALS RESEARCH.

    Expenses $129,353

  • RESEARCH: THE CHAPTER CONTRIBUTES TO THE ALS NATIONAL ORGANIZATIONS EFFORTS TO SUPPORT GLOBAL RESEARCH AND THE VISION OF CREATING A WORLD WITHOUT ALS. THE CHAPTER DEDICATES FUNDS EACH YEAR TO SUPPORT OVER 160 OF THE MOST ACTIVE AND PROMISING PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE FOR THE DISEASE. THE CHAPTER ENCOURAGES AND WORKS WITH PATIENTS TO ENROLL IN CLINICAL TRIALS, WHICH IS CRITICAL TO ADVANCING RESEARCH EFFORTS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH.

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Josh Rogers

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Mike Sabatino

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Zachary Leeds

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • David J Van De Riet

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • David G Busker

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Kevin Hemenway

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Evan Waldman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Scott Wanamaker

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Dave Collet

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    2

  • Kevin Hewgley

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Anthony Mitchell

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Mark Calmes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Dean Funkenbusch

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Kiel Peregrin

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Gary Robert

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Scott Strothkamp

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Steve Ziegler

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Max Dougherty

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Elizabeth Shocklee

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Jennifer Sengpiel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Cj Romanelli

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.28

  • Vithya Murugan

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • John Latham

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Katie McGovern

    PRESIDENT/CEO

    Total calculated
    $58,174
    From this org
    $57,383
    From related orgs
    $0
    Other
    $791
    Hours/week
    50

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Assets distributed on this return

Schedule N, as filed: what the organization did with its assets when it liquidated or dissolved, or disposed of more than a quarter of them, and who received them. A recipient with an EIN is usually a successor organization; filers also list expenses such as legal fees here.

Provenance

Return type
form_990
Tax year
2022
Filed
25 January 2024
IRS schema version
2022v5.0
Source object
202430269349300843

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