Form 990 for tax year 2022
Filed by THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC.
Totals
- Total revenue
- $10,753,014
- Total expenses
- $11,037,641
- Contributions and grants received
- $9,959,415
- Grants paid
- $2,629,658
- Program services expenses (Part IX)
- $9,611,877
- Management and general expenses
- $879,136
- Fundraising expenses
- $546,628
- Program service expenses (Part III)
- $9,611,877
Program services were 87.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Listed in Part VII
-
ANESSA FEHSENFELD
BOARD CHAIRMAN
- Total calculated
- $0
- Hours/week
- 8
-
GRETCHEN EGNER
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 8
-
LANCE HESTER
TREASURER
- Total calculated
- $0
- Hours/week
- 6
-
DEANNE FRIAR
SECRETARY
- Total calculated
- $0
- Hours/week
- 6
-
DAVID N HOFSTEIN
EXECUTIVE OVERSIGHT CHAIR
- Total calculated
- $0
- Hours/week
- 6
-
RASHA ALNAIBARI
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
JEFF BIGELOW
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
LINDA CRIPE
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
CHRISTOPHER JONES
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
RICHARD KLEIN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
COLIN RENSCH
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
BETH WHITE
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
PATRICIA A FURLONG
PRESIDENT AND CEO
- Total calculated
- $304,898
- From this org
- $292,250
- From related orgs
- $0
- Other
- $12,648
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $292,250
- Bonus
- $0
- Other
- $0
- Deferred
- $11,871
- Nontaxable benefits
- $777
- Filer's total
- $304,898
-
RYAN FISCHER
CHIEF ADVOCACY OFFICER
- Total calculated
- $201,706
- From this org
- $187,206
- From related orgs
- $0
- Other
- $14,500
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $187,206
- Bonus
- $0
- Other
- $0
- Deferred
- $6,698
- Nontaxable benefits
- $7,802
- Filer's total
- $201,706
-
KAYLAN MOITOSO
CHIEF BUSINESS OFFICER
- Total calculated
- $194,043
- From this org
- $184,600
- From related orgs
- $0
- Other
- $9,443
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $184,600
- Bonus
- $0
- Other
- $0
- Deferred
- $9,314
- Nontaxable benefits
- $129
- Filer's total
- $194,043
-
RACHEL SCHRADER
VICE PRESIDENT, CLINICAL CARE AND EDUCATION
- Total calculated
- $168,404
- From this org
- $153,280
- From related orgs
- $0
- Other
- $15,124
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $153,280
- Bonus
- $0
- Other
- $0
- Deferred
- $7,697
- Nontaxable benefits
- $7,427
- Filer's total
- $168,404
-
ANN MARTIN
VP, COMM RESEARCH AND GENETIC SERVICES
- Total calculated
- $158,998
- From this org
- $151,910
- From related orgs
- $0
- Other
- $7,088
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $151,910
- Bonus
- $0
- Other
- $0
- Deferred
- $6,959
- Nontaxable benefits
- $129
- Filer's total
- $158,998
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Compensation committee
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
CINCINNATI CHILDREN'S HOSPITAL MC
$641,008
RESEARCH- ACTION NETWORK GRANT & CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS
-
UNIVERSITY OF FLORIDA FOUNDATION
$436,910
RESEARCH- BIOBANK, CARDIAC GENE THERAPY DEVELOPMENT SWEENEY, MEETING SUPPORT AND PRECLINICAL THERAPEUTIC ASSESSMENT LAB
-
$271,241
RESEARCH- PROTEIN MAPPING PROJECT, TRAVEL SUPPORT FOR NATURAL HISTORY STUDY AND WELLSTONE SUPPLEMENT
-
$145,000
CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS
-
$106,667
RESEARCH- SUPPORT OF COLLECTIVE ANALYSIS TRAJECTORY PROJECT
-
$100,000
RESEARCH - SUPPORT OF DUCHENNE REGULATORY SCIENCE CONSORTIUM
-
$100,000
RESEARCH- PEDIATRIC GENE THERAPY MEDICAL ETHICS
-
$92,276
CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS
-
RESEARCH- WELLSTONE SUPPLEMENT
-
$73,500
RESEARCH- WELLSTONE SUPPLEMENT
The 10 largest by cash amount. The API serves every itemized grant.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 7 August 2023
- IRS schema version
- 2022v5.0
- Source object
- 202312199349301496
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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