Form 990-EZ for tax year 2024

Totals

Total revenue

$127,784

Total expenses

$130,067

Contributions and grants received

$124,975

Grants paid

— not reported

Program service revenue

— not reported

Membership dues (line 3)

— not reported

Investment income (line 4)

$2,809

Gain or loss on sale of assets (line 5c)

— not reported

Gaming and fundraising events, net (line 6d)

— not reported

Gross profit on inventory sales (line 7c)

— not reported

Other revenue (line 8)

— not reported

Total assets, end of year

$167,316

Total liabilities, end of year

$1,629

Net assets or fund balances, end of year

$165,687

Program service expenses (Part III)

$42,229

Program services were 32.5% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.

Mission and programs · 2024

• Membership Community Events - We hosted several community-building events, including:a. The 21st Annual Walk for Down Syndrome, drawing more than 2,000 attendees to celebrate the Down syndrome community and raise awareness.b. Seasonal family gatherings like the Annual Picnic, Supper with Santa, and awareness-themed events for World Down Syndrome Day and October Awareness Month.c. Regional meetups and member connection events throughout the year.

  Expenses $35,506

• Member Support - Provided individualized support and navigation to over 250 families across North Dakota. This included guidance on accessing Early Intervention, IEP support, transition services, Medicaid, SSI, and other systems of care. Support was offered through in-person meetings, phone consultations, resource navigation, and referrals.Designer Genes supported all known new diagnoses of Down syndrome across the state with welcome packages, connection to local support networks, and one-on-one family mentoring.We facilitated ongoing community-based life skills and connection programming for individuals ages 18 years and older with Down syndrome and developmental disabilities. GROW focuses on healthy relationships, social engagement, self-advocacy, and belonging.

  Expenses $6,723

• Public Awareness - Engaged in year-round advocacy at the local, state, and national level. This included testimony to the North Dakota Legislature regarding developmental disabilities funding and participating in Disability Awareness Dayat the Capitol. Designer Genes also shared educational campaigns during Down Syndrome Awareness Month.Education and Resource Development - We offered presentations and training for educators, caregivers, and professionals. We supported mock interviews and membership meet-up to support families and individuals navigating life.Designer Genes created and distributed educational materials, including fact sheets on disability systems, Down syndrome awareness and various state conferences throughout the year as well as with program managers.

As filed on the 2024 return.

Listed in Part IV

Compensation is as filed in Part IV of the Form 990-EZ: compensation, contributions to benefit plans, expense account, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990_ez

Tax year

2024

Filed

13 May 2025

IRS schema version

2024v5.1

Source object

202541339349204819

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