- Revenue 2025
- $163,773
- Expenses 2025
- $157,226
Program services were 32.2% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- P82
- Classification
- 1000
- Street
- PO BOX 515
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Primary exempt purpose
Designer Genes of North Dakota exists to strengthen opportunities for individuals with Down syndrome and those who support them to earn, learn, and belong.
-
Membership Community Events - We hosted several community-building events, including:a. The Annual Walk for Down Syndrome, to celebrate the Down syndrome community and raise awareness.b. Seasonal family gatherings like the Annual Picnic, Supper with Santa, and awareness-themed events for World Down Syndrome Day.c. iCan Bike Camp.d. The Bikers 4 Bikers fundraiser, helping raise awareness fnd funding to sustain programs. e. Regional meetups and member connection events throughout the year.f. A key hightlight was the introduction of statewide meetups, a new program service designed to increase connection and accessibilty for families across North Dakota. These meetups created opportunities for individuals and families to build relationships, share experiences, and strengthen local support networks.
Expenses $48,012
-
Member Support - Provided individualized support and navigation to over 250 families across North Dakota. This included guidance on accessing Early Intervention, IEP support, transition services, Medicaid, SSI, and other systems of care. Support was offered through in-person meetings, phone consultations, resource navigation, and referrals. Designer Genes supported all known new diagnoses of Down syndrome across the state with welcome packages, connection to local support networks, and one-on-one family mentoring.We facilitated ongoing community-based life skills and connection programming for individuals ages 18 years and older with Down syndrome and developmental disabilities. GROW focuses on healthy relationships, social engagement, self-advocacy, and belonging.
Expenses $2,628
-
Public Awareness - Engaged in year-round advocacy at the local, state, and national level. Designer Genes also shared educational campaigns during Down Syndrome Awareness Month.Education and Resource Development - We offered presentations and training for educators, caregivers, and professionals. We supported mock interviews and membership meet-up to support families and individuals navigating life.Designer Genes created and distributed educational materials, including fact sheets on disability systems, Down syndrome awareness and various state conferences throughout the year as well as with program managers.
As filed on the 2025 return.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Kendra Vander Wal
Executive Dir.
- Total calculated
- $72,187
- Compensation
- $72,187
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 40
-
Sandy McMerty
President
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 1.25
-
Andrea Stewart
Vice President
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.5
-
Karissa Kautzman
Secretary
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.75
-
Rachel Burr
Treasurer
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.5
-
Heather Lundeen
Director
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.75
-
Mika Stokkeland
Director
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.5
-
Michelle Regan
Director
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.5
-
Rachel Keegan
Director
- Total calculated
- $0
- Compensation
- $0
- Benefit plans
- not reported
- Expense account
- not reported
- Hours/week
- 0.75
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $163,773
- Expenses
- $157,226
- Contributions
- $159,191
- Grants paid
- not reported
-
2024
- Revenue
- $127,784
- Expenses
- $130,067
- Contributions
- $124,975
- Grants paid
- not reported
-
2023
- Revenue
- $152,335
- Expenses
- $126,700
- Contributions
- $152,302
- Grants paid
- not reported
-
2022
- Revenue
- $132,544
- Expenses
- $121,420
- Contributions
- $132,531
- Grants paid
- not reported
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990-EZ
- Revenue
- $130,303
- Expenses
- $101,382
- Assets (EOY)
- $131,211
-
2020 · 990-EZ
- Revenue
- $93,735
- Expenses
- $81,206
- Assets (EOY)
- $102,290
-
2019 · 990-EZ
- Revenue
- $125,589
- Expenses
- $92,367
- Assets (EOY)
- $89,761
-
2018 · 990-EZ
- Revenue
- $97,107
- Expenses
- $95,394
- Assets (EOY)
- $56,539
-
2017 · 990-EZ
- Revenue
- $79,361
- Expenses
- $109,547
- Assets (EOY)
- $54,826
-
2016 · 990-EZ
- Revenue
- $93,901
- Expenses
- $87,128
- Assets (EOY)
- $85,012
-
2015 · 990-EZ
- Revenue
- $79,688
- Expenses
- $79,394
- Assets (EOY)
- $78,239
-
2014 · 990-EZ
- Revenue
- $66,921
- Expenses
- $58,882
- Assets (EOY)
- $77,945
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Form 990-N e-Postcard, tax year 2013
- Tax period
- 1 January 2013 to 31 December 2013
- Principal officer
-
Roxane Romanick
- Mailing address
- 830 Longhorn DrBismarck ND 58503
As filed, from the IRS e-Postcard file of 2 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$12,000
2022 TO HELP FURTHER THEIR PURPOSE
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.