Form 990 for tax year 2022
Filed by AMERICAN NEUROMUSCULAR FOUNDATION.
Totals
- Total revenue
- $644,928
- Total expenses
- $427,189
- Contributions and grants received
- $343,368
- Grants paid
- $282,641
- Program service revenue
- $0
- Investment income
- $301,560
- Other revenue
- $0
- Total assets, end of year
- $6,618,527
- Total liabilities, end of year
- $109,114
- Net assets or fund balances, end of year
- $6,509,413
- Program services expenses (Part IX)
- $427,162
- Management and general expenses
- $27
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $427,162
Program services were 100.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$5,144
-
1d · Related organizations
$150,000
-
1f · All other contributions, gifts and grants
$188,224
-
1g · Noncash contributions included above
$5,144
-
3 · Investment income
total $242,041 · excluded $242,041
-
7a · Gross sales of assets other than inventory
securities $2,204 · other assets $59,204
-
7b · Less cost or other basis and sales expenses
securities $1,889
-
7c · Gain or loss
securities $315 · other assets $59,204
-
7d · Net gain or loss
total $59,519 · excluded $59,519
-
8a · Fundraising events: contributions included on line 1c
$5,144
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $251,958 · program services $251,958
-
2 · Grants to domestic individuals
total $23,818 · program services $23,818
-
3 · Grants to foreign organizations and individuals
total $6,865 · program services $6,865
-
11a · Fees: management
total $115,045 · program services $115,045
-
11f · Fees: investment management
total $23,519 · program services $23,519
-
19 · Conferences, conventions and meetings
total $5,957 · program services $5,957
-
24a · Other expenses: MISCELLANEOUS EXPENSES
total $27 · management and general $27
Balance sheet
Part X, book values.
-
2 · Savings and temporary cash investments
beginning of year $175,633 · end of year $53,179
-
4 · Accounts receivable
beginning of year $72,711 · end of year $208,069
-
11 · Investments: publicly traded securities
beginning of year $7,380,798 · end of year $6,357,279
-
17 · Accounts payable and accrued expenses
beginning of year $36,420 · end of year $36,570
-
19 · Deferred revenue
end of year $72,544
-
27 · Net assets without donor restrictions
beginning of year $7,238,421 · end of year $6,301,344
-
28 · Net assets with donor restrictions
beginning of year $354,301 · end of year $208,069
Mission and programs · 2022
Mission
THE AMERICAN NEUROMUSCULAR FOUNDATION WAS ESTABLISHED TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH DISORDERS OF SKELETAL MUSCLE, NEUROMUSCULAR FUNCTION, AND CENTRAL AND PERIPHERAL NERVOUS SYSTEMS THROUGH THE PROMOTION OF RESEARCH AND EDUCATION AND ADVANCING PUBLIC UNDERSTANDING OF THE DISORDERS. IT WAS ORGANIZED TO CARRY OUT THE CHARITABLE, EDUCATIONAL, AND SCIENTIFIC ACTIVITIES OF THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM).
-
THE AMERICAN NEUROMUSCULAR FOUNDATION FUNDS RESEARCH GRANTS IN THE AREA OF NEUROMUSCULAR MEDICINE.
Expenses $275,477 · Grants $251,958
-
THE ANF CREATED THE LATE ONSET NEUROMUSCULAR DISEASE CONSORTIUM IN 2022. THE ANF CONVENED NEARLY 25 STAKEHOLDERS INCLUDING PATIENT ADVOCACY ORGANIZATIONS, INDUSTRY, AND CLINICIANS TO BEGIN TO IDENTIFY COMMON CHALLENGES AND POTENTIAL WORKSTREAMS FOR FUTURE CROSS-STAKEHOLDER COLLABORATION. THE LONDC IS FOCUSED ON PROJECTS TO DRIVE AWARENESS, IMPROVE EDUCATION, AND ADDRESS GAPS IN CARE.
Expenses $121,002
-
AWARDS: THE AMERICAN NEUROMUSCULAR FOUNDATION SUPPORTS ITS EDUCATION AND RESEARCH GOALS BY FUNDING SEVERAL AWARDS EACH YEAR. EACH AWARD GIVES PHYSICIANS/INVESTIGATORS THE OPPORTUNITY TO BE RECOGNIZED AMONG THEIR PEERS FOR THEIR WORK IN RESEARCH. THE AWARDS GIVEN INCLUDE THE GOLSETH YOUNG INVESTIGATOR AWARD WHICH IS PRESENTED TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN EDX MEDICINE; THE BEST ABSTRACT AWARD IS PRESENTED TO THE WRITER AND RUNNER-UP OF THE ABSTRACT JUDGED BY THE AANEM ABSTRACT REVIEW COMMITTEE AS THE BEST BASED ON SCIENTIFIC MERIT, WELL WRITTEN, EXCELLENT DISCUSSION, IMPORTANCE TO THE FIELD,AND/OR FASCINATING CASE; THE PRESIDENT'S RESEARCH INITIATIVE AWARD IS BASED ON ABSTRACTS PERTAINING TO AN AREA OF INTEREST OF THE PRESIDENT; THE RESIDENT/FELLOW MEMBER RECOGNITION AWARD IS GIVEN TO AANEM PHYSICIAN-IN-TRAINING MEMBERS WHO ARE THE FIRST AND PRESENTING AUTHOR ON AN APPROVED ABSTRACT TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN THE FIELDS OF NEUROMUSCULAR AND ELECTRODIAGNOSTIC MEDICINE; THE OLNEY LECTURESHIP AWARD IS GIVEN TO THE PERSON CHOSEN TO PRESENT THE TITLED PLENARY SESSION AT THE AANEM ANNUAL MEETING; THE TECHNOLOGIST RECOGNITION AWARD IS GIVEN TO AANEM TECHNOLOGIST MEMBERS TO ENCOURAGE THEM TO TAKE A LEADING ROLE IN CONDUCTING RESEARCH IN NEUROMUSCULAR AND EDX MEDICINE. THE LAMBERT AWARD FOR PRESENTATION WAS ALSO GIVEN. THE MEDICAL STUDENT AWARD IS ALSO GIVEN.
Expenses $30,683 · Grants $30,683
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Shirlyn AdkinsSHIRLYN ADKINS
EXECUTIVE DI
- Total calculated
- $288,834
- From this org
- $0
- From related orgs
- $261,760
- Other
- $27,074
- Hours/week
- 5 + 40 related
Schedule J breakdown matched by us
- Base
- not reported + $261,760 related
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported + $27,074 related
- Nontaxable benefits
- not reported
- Filer's total
- not reported + $288,834 related
-
Jacob SokolJACOB SOKOL
IT DIRECTOR
- Total calculated
- $156,507
- From this org
- $0
- From related orgs
- $135,176
- Other
- $21,331
Schedule J breakdown matched by us
- Base
- not reported + $135,176 related
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported + $21,331 related
- Nontaxable benefits
- not reported
- Filer's total
- not reported + $156,507 related
-
Jay SchwinefusJAY SCHWINEFUS
MEMBERSHIP &
- Total calculated
- $155,033
- From this org
- $0
- From related orgs
- $129,413
- Other
- $25,620
Schedule J breakdown matched by us
- Base
- not reported + $129,413 related
- Bonus
- not reported
- Other
- not reported
- Deferred
- not reported + $25,620 related
- Nontaxable benefits
- not reported
- Filer's total
- not reported + $155,033 related
-
Millie SukMILLIE SUK
HLTH, POL &
- Total calculated
- $143,269
- From this org
- $0
- From related orgs
- $123,734
- Other
- $19,535
-
Michelle JonesMICHELLE JONES
MTG, CORP,&
- Total calculated
- $142,469
- From this org
- $0
- From related orgs
- $120,156
- Other
- $22,313
-
Samuel BiernerSAMUEL BIERNER
DIRECTOR
- Total calculated
- $0
-
Michael CartwrightMICHAEL CARTWRIGHT
DIRECTOR
- Total calculated
- $0
-
Anthony ChiodoANTHONY CHIODO
HISTORIAN/FI
- Total calculated
- $0
-
Laura CorriganLAURA CORRIGAN
DIRECTOR
- Total calculated
- $0
-
John EnglandJOHN ENGLAND
FINANCE COMM
- Total calculated
- $0
-
Peter GrantPETER GRANT
FINANCE COMM
- Total calculated
- $0
-
Ghazala HayatGHAZALA HAYAT
DIRECTOR
- Total calculated
- $0
-
Lisa Hobson-WebbLISA HOBSON-WEBB
FINANCE COMM
- Total calculated
- $0
-
Ileana HowardILEANA HOWARD
DIRECTOR
- Total calculated
- $0
-
Robert IrwinROBERT IRWIN
PRESIDENT
- Total calculated
- $0
-
Kathleen KennellyKATHLEEN KENNELLY
FINANCE COMM
- Total calculated
- $0
-
John KincaidJOHN KINCAID
DIRECTOR
- Total calculated
- $0
-
Barry McLeishBARRY MCLEISH
DIRECTOR
- Total calculated
- $0
-
Pushpa NarayanaswamiPUSHPA NARAYANASWAMI
DIRECTOR
- Total calculated
- $0
-
Kevin NelsonKEVIN NELSON
FINANCE COMM
- Total calculated
- $0
-
John NorburyJOHN NORBURY
DIRECTOR
- Total calculated
- $0
-
Devon RubinDEVON RUBIN
FINANCE COMM
- Total calculated
- $0
-
Faye TanFAYE TAN
SECRETARY/TR
- Total calculated
- $0
-
Benjamin WarfelBENJAMIN WARFEL
DIRECTOR
- Total calculated
- $0
-
Bonnie WeigertBONNIE WEIGERT
DIRECTOR
- Total calculated
- $0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
RESEARCH GRANTS
-
$50,000
RESEARCH GRANTS
-
DUKE UNIVERSITY MEDICAL CENTER
$49,940
RESEARCH GRANTS
-
$35,073
RESEARCH GRANTS
-
$25,000
RESEARCH GRANTS
-
RESEARCH GRANTS
-
MUSCULAR DYSTROPHY ASSOCIATION
$16,945
RESEARCH GRANTS
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
AMERICAN ASSC OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE
501C6 · PROFESSION · MN
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 15 November 2023
- IRS schema version
- 2022v5.0
- Source object
- 202333199349319943
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