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← AMERICAN NEUROMUSCULAR FOUNDATION

Form 990 for tax year 2022

Filed by AMERICAN NEUROMUSCULAR FOUNDATION.

Totals

Total revenue
$644,928
Total expenses
$427,189
Contributions and grants received
$343,368
Grants paid
$282,641
Program service revenue
$0
Investment income
$301,560
Other revenue
$0
Total assets, end of year
$6,618,527
Total liabilities, end of year
$109,114
Net assets or fund balances, end of year
$6,509,413
Program services expenses (Part IX)
$427,162
Management and general expenses
$27
Fundraising expenses
$0
Program service expenses (Part III)
$427,162

Program services were 100.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $5,144

  • 1d · Related organizations

    $150,000

  • 1f · All other contributions, gifts and grants

    $188,224

  • 1g · Noncash contributions included above

    $5,144

  • 3 · Investment income

    total $242,041 · excluded $242,041

  • 7a · Gross sales of assets other than inventory

    securities $2,204 · other assets $59,204

  • 7b · Less cost or other basis and sales expenses

    securities $1,889

  • 7c · Gain or loss

    securities $315 · other assets $59,204

  • 7d · Net gain or loss

    total $59,519 · excluded $59,519

  • 8a · Fundraising events: contributions included on line 1c

    $5,144

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $251,958 · program services $251,958

  • 2 · Grants to domestic individuals

    total $23,818 · program services $23,818

  • 3 · Grants to foreign organizations and individuals

    total $6,865 · program services $6,865

  • 11a · Fees: management

    total $115,045 · program services $115,045

  • 11f · Fees: investment management

    total $23,519 · program services $23,519

  • 19 · Conferences, conventions and meetings

    total $5,957 · program services $5,957

  • 24a · Other expenses: MISCELLANEOUS EXPENSES

    total $27 · management and general $27

Balance sheet

Part X, book values.

  • 2 · Savings and temporary cash investments

    beginning of year $175,633 · end of year $53,179

  • 4 · Accounts receivable

    beginning of year $72,711 · end of year $208,069

  • 11 · Investments: publicly traded securities

    beginning of year $7,380,798 · end of year $6,357,279

  • 17 · Accounts payable and accrued expenses

    beginning of year $36,420 · end of year $36,570

  • 19 · Deferred revenue

    end of year $72,544

  • 27 · Net assets without donor restrictions

    beginning of year $7,238,421 · end of year $6,301,344

  • 28 · Net assets with donor restrictions

    beginning of year $354,301 · end of year $208,069

Mission and programs · 2022

Mission

THE AMERICAN NEUROMUSCULAR FOUNDATION WAS ESTABLISHED TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH DISORDERS OF SKELETAL MUSCLE, NEUROMUSCULAR FUNCTION, AND CENTRAL AND PERIPHERAL NERVOUS SYSTEMS THROUGH THE PROMOTION OF RESEARCH AND EDUCATION AND ADVANCING PUBLIC UNDERSTANDING OF THE DISORDERS. IT WAS ORGANIZED TO CARRY OUT THE CHARITABLE, EDUCATIONAL, AND SCIENTIFIC ACTIVITIES OF THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM).

  • THE AMERICAN NEUROMUSCULAR FOUNDATION FUNDS RESEARCH GRANTS IN THE AREA OF NEUROMUSCULAR MEDICINE.

    Expenses $275,477 · Grants $251,958

  • THE ANF CREATED THE LATE ONSET NEUROMUSCULAR DISEASE CONSORTIUM IN 2022. THE ANF CONVENED NEARLY 25 STAKEHOLDERS INCLUDING PATIENT ADVOCACY ORGANIZATIONS, INDUSTRY, AND CLINICIANS TO BEGIN TO IDENTIFY COMMON CHALLENGES AND POTENTIAL WORKSTREAMS FOR FUTURE CROSS-STAKEHOLDER COLLABORATION. THE LONDC IS FOCUSED ON PROJECTS TO DRIVE AWARENESS, IMPROVE EDUCATION, AND ADDRESS GAPS IN CARE.

    Expenses $121,002

  • AWARDS: THE AMERICAN NEUROMUSCULAR FOUNDATION SUPPORTS ITS EDUCATION AND RESEARCH GOALS BY FUNDING SEVERAL AWARDS EACH YEAR. EACH AWARD GIVES PHYSICIANS/INVESTIGATORS THE OPPORTUNITY TO BE RECOGNIZED AMONG THEIR PEERS FOR THEIR WORK IN RESEARCH. THE AWARDS GIVEN INCLUDE THE GOLSETH YOUNG INVESTIGATOR AWARD WHICH IS PRESENTED TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN EDX MEDICINE; THE BEST ABSTRACT AWARD IS PRESENTED TO THE WRITER AND RUNNER-UP OF THE ABSTRACT JUDGED BY THE AANEM ABSTRACT REVIEW COMMITTEE AS THE BEST BASED ON SCIENTIFIC MERIT, WELL WRITTEN, EXCELLENT DISCUSSION, IMPORTANCE TO THE FIELD,AND/OR FASCINATING CASE; THE PRESIDENT'S RESEARCH INITIATIVE AWARD IS BASED ON ABSTRACTS PERTAINING TO AN AREA OF INTEREST OF THE PRESIDENT; THE RESIDENT/FELLOW MEMBER RECOGNITION AWARD IS GIVEN TO AANEM PHYSICIAN-IN-TRAINING MEMBERS WHO ARE THE FIRST AND PRESENTING AUTHOR ON AN APPROVED ABSTRACT TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN THE FIELDS OF NEUROMUSCULAR AND ELECTRODIAGNOSTIC MEDICINE; THE OLNEY LECTURESHIP AWARD IS GIVEN TO THE PERSON CHOSEN TO PRESENT THE TITLED PLENARY SESSION AT THE AANEM ANNUAL MEETING; THE TECHNOLOGIST RECOGNITION AWARD IS GIVEN TO AANEM TECHNOLOGIST MEMBERS TO ENCOURAGE THEM TO TAKE A LEADING ROLE IN CONDUCTING RESEARCH IN NEUROMUSCULAR AND EDX MEDICINE. THE LAMBERT AWARD FOR PRESENTATION WAS ALSO GIVEN. THE MEDICAL STUDENT AWARD IS ALSO GIVEN.

    Expenses $30,683 · Grants $30,683

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Shirlyn Adkins

    EXECUTIVE DI

    Total calculated
    $288,834
    From this org
    $0
    From related orgs
    $261,760
    Other
    $27,074
    Hours/week
    5 + 40 related

    Schedule J breakdown matched by us

    Base
    not reported + $261,760 related
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported + $27,074 related
    Nontaxable benefits
    not reported
    Filer's total
    not reported + $288,834 related
  • Jacob Sokol

    IT DIRECTOR

    Total calculated
    $156,507
    From this org
    $0
    From related orgs
    $135,176
    Other
    $21,331

    Schedule J breakdown matched by us

    Base
    not reported + $135,176 related
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported + $21,331 related
    Nontaxable benefits
    not reported
    Filer's total
    not reported + $156,507 related
  • Jay Schwinefus

    MEMBERSHIP &

    Total calculated
    $155,033
    From this org
    $0
    From related orgs
    $129,413
    Other
    $25,620

    Schedule J breakdown matched by us

    Base
    not reported + $129,413 related
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported + $25,620 related
    Nontaxable benefits
    not reported
    Filer's total
    not reported + $155,033 related
  • Millie Suk

    HLTH, POL &

    Total calculated
    $143,269
    From this org
    $0
    From related orgs
    $123,734
    Other
    $19,535
  • Michelle Jones

    MTG, CORP,&

    Total calculated
    $142,469
    From this org
    $0
    From related orgs
    $120,156
    Other
    $22,313
  • Samuel Bierner

    DIRECTOR

    Total calculated
    $0
  • Michael Cartwright

    DIRECTOR

    Total calculated
    $0
  • Anthony Chiodo

    HISTORIAN/FI

    Total calculated
    $0
  • Laura Corrigan

    DIRECTOR

    Total calculated
    $0
  • John England

    FINANCE COMM

    Total calculated
    $0
  • Peter Grant

    FINANCE COMM

    Total calculated
    $0
  • Ghazala Hayat

    DIRECTOR

    Total calculated
    $0
  • Lisa Hobson-Webb

    FINANCE COMM

    Total calculated
    $0
  • Ileana Howard

    DIRECTOR

    Total calculated
    $0
  • Robert Irwin

    PRESIDENT

    Total calculated
    $0
  • Kathleen Kennelly

    FINANCE COMM

    Total calculated
    $0
  • John Kincaid

    DIRECTOR

    Total calculated
    $0
  • Barry McLeish

    DIRECTOR

    Total calculated
    $0
  • Pushpa Narayanaswami

    DIRECTOR

    Total calculated
    $0
  • Kevin Nelson

    FINANCE COMM

    Total calculated
    $0
  • John Norbury

    DIRECTOR

    Total calculated
    $0
  • Devon Rubin

    FINANCE COMM

    Total calculated
    $0
  • Faye Tan

    SECRETARY/TR

    Total calculated
    $0
  • Benjamin Warfel

    DIRECTOR

    Total calculated
    $0
  • Bonnie Weigert

    DIRECTOR

    Total calculated
    $0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2022
Filed
15 November 2023
IRS schema version
2022v5.0
Source object
202333199349319943

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