Skip to content
Nonprofiteer
← HELENS PINK SKY FOUNDATION

Form 990 for tax year 2025

Filed by HELENS PINK SKY FOUNDATION.

Totals

Total revenue
$2,248,524
Total expenses
$1,189,032
Contributions and grants received
$2,130,266
Grants paid
$1,187,000
Program service revenue
$0
Investment income
$0
Other revenue
$118,258
Total assets, end of year
$1,059,492
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$1,059,492
Program services expenses (Part IX)
$1,187,000
Management and general expenses
$2,032
Fundraising expenses
$0
Program service expenses (Part III)
$1,187,000

Program services were 99.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $289,579

  • 1f · All other contributions, gifts and grants

    $1,840,687

  • 1g · Noncash contributions included above

    $258,974

  • 8a · Fundraising events: gross income

    $447,045

  • 8a · Fundraising events: contributions included on line 1c

    $289,579

  • 8b · Fundraising events: direct expenses

    $328,787

  • 8c · Net income from fundraising events

    total $118,258 · excluded $118,258

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,187,000 · program services $1,187,000

  • 13 · Office expenses

    total $2,032 · management and general $2,032

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    end of year $1,059,392

  • 2 · Savings and temporary cash investments

    end of year $100

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $0 · end of year $1,059,492

Mission and programs · 2025

Mission

HELEN'S PINK SKY FOUNDATION IS COMMITTED TO ADVOCACY, RESEARCH AND CARE FOR THOSE WITH BATTEN DISEASE & CLN2. THROUGH OUR PLATFORM, YOU CAN STAY UPDATED ON HELEN'S JOURNEY, CONTRIBUTE TO THE CAUSE, AND BE A PART OF OUR GROWING COMMUNITY DEDICATED TO SUPPORTING AFFECTED FAMILIES.

Activities or mission (Part I)

SUPPORT THE ADVOCACY, RESEARCH AND CARE FOR THOSE WITH BATTEN DISEASE & CLN2

  • HELEN'S PINK SKY FOUNDATION (HOPE4HELEN) ADVANCED ITS MISSION TO ACCELERATE RESEARCH, ADVOCACY, AND AWARENESS FOR CLN2 BATTEN DISEASE BY FUNDING HIGH-IMPACT SCIENTIFIC INITIATIVES AIMED AT DEVELOPING EFFECTIVE TREATMENTS AND ULTIMATELY A CURE. TO FURTHER THESE GOALS, THE FOUNDATION AWARDED $1,187,000 IN RESEARCH GRANTS TO LEADING INSTITUTIONS.THE FOUNDATION ALSO CONTINUED ITS BROADER MISSION PILLARS: ADVOCACY, AWARENESS, AND FAMILY SUPPORT BY EDUCATING THE PUBLIC ABOUT CLN2 BATTEN DISEASE, ENGAGING WITH AFFECTED FAMILIES, AND PROMOTING SCIENTIFIC UNDERSTANDING OF RARE PEDIATRIC NEURODEGENERATIVE DISEASES. THESE EFFORTS COLLECTIVELY ADVANCE THE FOUNDATION'S PURPOSE: TO BRING HOPE, PROGRESS, AND ULTIMATELY A CURE FOR CHILDREN LIKE HELEN.

    Expenses $1,187,000 · Grants $1,187,000

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Mark Schneider

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Dan Born

    VICE-PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Stephanie Born

    CO-VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Nick Schneider

    CO-VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • Dave Born

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Meg Jackson

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Tim Meyer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
15 July 2026
IRS schema version
2025v4.2
Source object
202641979349301804

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.