Totals
- Total revenue
- $1,768,667
- Total expenses
- $1,387,351
- Contributions and grants received
- $1,557,455
- Grants paid
- $13,731
- Program service revenue
- $206,425
- Investment income
- $2,772
- Other revenue
- $2,015
- Total assets, end of year
- $1,494,592
- Total liabilities, end of year
- $228,225
- Net assets or fund balances, end of year
- $1,266,367
- Program services expenses (Part IX)
- $1,206,382
- Management and general expenses
- $119,755
- Fundraising expenses
- $61,214
- Program service expenses (Part III)
- $1,206,382
Program services were 87.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$1,557,455
-
1g · Noncash contributions included above
$50,385
-
2a · Program service revenue: RESOURCE MATERIALS
total $3,059 · related or exempt $3,059
-
2b · Program service revenue: SPONSORSHIPS
total $111,095 · related or exempt $111,095
-
2c · Program service revenue: SUBSCRIPTIONS AND SUPPORT
total $92,271 · related or exempt $92,271
-
3 · Investment income
total $2,772 · related or exempt $2,772
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11a · Other revenue: Cash Back on Credit Card
total $2,015 · related or exempt $2,015
-
11e · Other revenue, total
$2,015
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $0
-
2 · Grants to domestic individuals
total $13,731 · program services $13,731
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $143,625 · program services $86,175 · management and general $21,544 · fundraising $35,906
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $399,849 · program services $362,614 · management and general $37,235
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $28,072 · program services $23,904 · management and general $2,246 · fundraising $1,922
-
10 · Payroll taxes
total $42,607 · program services $35,184 · management and general $4,608 · fundraising $2,815
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $0
-
11c · Fees: accounting
total $0
-
11d · Fees: lobbying
total $0
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $339,337 · program services $302,117 · management and general $36,604 · fundraising $616
-
12 · Advertising and promotion
total $8,844 · program services $7,094 · management and general $875 · fundraising $875
-
13 · Office expenses
total $1,501 · program services $1,157 · management and general $253 · fundraising $91
-
14 · Information technology
total $0
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $0
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $57,011 · program services $49,205 · management and general $4,583 · fundraising $3,223
-
20 · Interest
total $812 · management and general $812
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $20,267 · program services $20,267
-
23 · Insurance
total $6,703 · program services $2,392 · management and general $4,235 · fundraising $76
-
24a · Other expenses: Software
total $160,508 · program services $150,209 · management and general $957 · fundraising $9,342
-
24b · Other expenses: Venue Fees
total $96,186 · program services $96,186
-
24c · Other expenses: Supplies
total $45,067 · program services $39,783 · management and general $3,342 · fundraising $1,942
-
24d · Other expenses: Telecommunications
total $8,063 · program services $7,871 · management and general $96 · fundraising $96
-
24e · All other expenses
total $15,168 · program services $8,493 · management and general $2,365 · fundraising $4,310
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $528,451 · end of year $882,531
-
2 · Savings and temporary cash investments
end of year $0
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
beginning of year $187,920 · end of year $190,299
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
beginning of year $10,842 · end of year $14,919
-
10a · Land, buildings and equipment: cost or other basis
$7,103
-
10b · Land, buildings and equipment: accumulated depreciation
$3,493
-
10c · Land, buildings and equipment, net
beginning of year $5,031 · end of year $3,610
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $72,473
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
beginning of year $260,706 · end of year $330,760
-
15 · Other assets
end of year $0
-
17 · Accounts payable and accrued expenses
beginning of year $77,183 · end of year $85,006
-
19 · Deferred revenue
beginning of year $43,894 · end of year $143,219
-
27 · Net assets without donor restrictions
beginning of year $799,887 · end of year $659,747
-
28 · Net assets with donor restrictions
beginning of year $71,986 · end of year $606,620
Mission and programs · 2024
Mission
flok Health (the Organization), formerly National PKU News, is a nonprofit 501(c)(3) organization supporting individuals and families affected by inherited disorders of protein metabolism, including Phenylketonuria (PKU), Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Tyrosinemia, Organic Acidemias, and Urea Cycle Disorders (UCDs). These rare genetic conditions disrupt the bodys ability to process protein, which can lead to serious neurological and physical harmincluding developmental delays, seizures, coma, and deathif not carefully managed through lifelong treatment.
Activities or mission (Part I)
flok Health supports people with inherited metabolic disorders through research, education, and community. Its programs include the flok app for daily management, family camps and retreats, and patient-led research initiatives.
-
Daily Care: To improve everyday life with a low-protein disorder, flok Health develops and maintains tools and resources that support dietary management and health tracking: flok App: Publicly released in November 2024, the flok mobile app integrates dietary tracking, symptom and activity journaling, and biometric data collection for people managing flok conditions. It is designed to support individuals and their care teams in making informed decisions about health and nutrition. Cook for Love: A culinary education platform offering free, low-protein recipes and meal planning guidance. The website continues to serve over 13,000 registered users and remains a critical daily care resource. Pocket Books: The Organization publishes and distributes printed guides listing protein and amino acid values for common foods, tailored to individuals with specific metabolic conditions. These materials are widely used by families and clinicians to support medical nutrition therapy.
Expenses $737,748
-
Community: flok Health fosters connection and belonging through direct community engagement, including the planning and hosting of camps and retreats for children, adults, and families affected by low-protein metabolic conditions. These events offer safe, supportive environments to build relationships, share lived experiences, and practice key skills related to dietary care. Community programs are designed to empower individuals and strengthen a network of mutual support that spans generations and geographies.
Expenses $419,880
-
Research: While flok Health did not conduct original research in 2024, the organization focused significant effort on preparing the infrastructure, partnerships, and regulatory pathways to enable future community-led studies. This includes developing features within the flok app to capture real-world data, establishing ethical review processes, and convening stakeholders to shape a research agenda grounded in patient priorities. The ultimate goal is to fuel a natural history of these rare conditions and accelerate the development of better treatments and improved standards of care.
Expenses $48,754
As filed on the 2024 return.
Listed in Part VII
-
Sarah ChamberlinSARAH CHAMBERLIN
Executive Dir.
- Total calculated
- $143,625
- From this org
- $143,625
- From related orgs
- $0
- Other
- $0
- Hours/week
- 45
-
Michael SitlerMICHAEL SITLER
Dir. Operations
- Total calculated
- $122,500
- From this org
- $122,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Kristen VanagsKRISTEN VANAGS
Dir.Commnity Engmt
- Total calculated
- $108,100
- From this org
- $108,100
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Erin MacLeodERIN MACLEOD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 5
-
Brittany MurrayBRITTANY MURRAY
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Brenda WiniarskiBRENDA WINIARSKI
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Adrian Alan MaysADRIAN ALAN MAYS
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Ameya BhatawdekarAMEYA BHATAWDEKAR
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Jerry Elkins IIJERRY ELKINS II
Vice President
- Total calculated
- $0
- Hours/week
- 5
-
Jacqueline KellishJACQUELINE KELLISH
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
WHITTNEY McCOLLUM
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Daelyn RichardsDAELYN RICHARDS
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Jeb HaberJEB HABER
President
- Total calculated
- $0
- Hours/week
- 10
-
Glenn HaberGLENN HABER
Treasurer
- Total calculated
- $0
- Hours/week
- 8
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 6 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202533159349305678
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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