- Revenue 2024
- $1,768,667
- Expenses 2024
- $1,387,351
Program services were 87.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Classification
- 1000
- Street
- PO BOX 43552
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
flok Health (the Organization), formerly National PKU News, is a nonprofit 501(c)(3) organization supporting individuals and families affected by inherited disorders of protein metabolism, including Phenylketonuria (PKU), Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Tyrosinemia, Organic Acidemias, and Urea Cycle Disorders (UCDs). These rare genetic conditions disrupt the bodys ability to process protein, which can lead to serious neurological and physical harmincluding developmental delays, seizures, coma, and deathif not carefully managed through lifelong treatment.
Activities or mission (Part I)
flok Health supports people with inherited metabolic disorders through research, education, and community. Its programs include the flok app for daily management, family camps and retreats, and patient-led research initiatives.
-
Daily Care: To improve everyday life with a low-protein disorder, flok Health develops and maintains tools and resources that support dietary management and health tracking: flok App: Publicly released in November 2024, the flok mobile app integrates dietary tracking, symptom and activity journaling, and biometric data collection for people managing flok conditions. It is designed to support individuals and their care teams in making informed decisions about health and nutrition. Cook for Love: A culinary education platform offering free, low-protein recipes and meal planning guidance. The website continues to serve over 13,000 registered users and remains a critical daily care resource. Pocket Books: The Organization publishes and distributes printed guides listing protein and amino acid values for common foods, tailored to individuals with specific metabolic conditions. These materials are widely used by families and clinicians to support medical nutrition therapy.
Expenses $737,748
-
Community: flok Health fosters connection and belonging through direct community engagement, including the planning and hosting of camps and retreats for children, adults, and families affected by low-protein metabolic conditions. These events offer safe, supportive environments to build relationships, share lived experiences, and practice key skills related to dietary care. Community programs are designed to empower individuals and strengthen a network of mutual support that spans generations and geographies.
Expenses $419,880
-
Research: While flok Health did not conduct original research in 2024, the organization focused significant effort on preparing the infrastructure, partnerships, and regulatory pathways to enable future community-led studies. This includes developing features within the flok app to capture real-world data, establishing ethical review processes, and convening stakeholders to shape a research agenda grounded in patient priorities. The ultimate goal is to fuel a natural history of these rare conditions and accelerate the development of better treatments and improved standards of care.
Expenses $48,754
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Sarah ChamberlinSARAH CHAMBERLIN
Executive Dir.
- Total calculated
- $143,625
- From this org
- $143,625
- From related orgs
- $0
- Other
- $0
- Hours/week
- 45
-
Michael SitlerMICHAEL SITLER
Dir. Operations
- Total calculated
- $122,500
- From this org
- $122,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Kristen VanagsKRISTEN VANAGS
Dir.Commnity Engmt
- Total calculated
- $108,100
- From this org
- $108,100
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Erin MacLeodERIN MACLEOD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 5
-
Brittany MurrayBRITTANY MURRAY
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Brenda WiniarskiBRENDA WINIARSKI
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Adrian Alan MaysADRIAN ALAN MAYS
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Ameya BhatawdekarAMEYA BHATAWDEKAR
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Jerry Elkins IIJERRY ELKINS II
Vice President
- Total calculated
- $0
- Hours/week
- 5
-
Jacqueline KellishJACQUELINE KELLISH
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
WHITTNEY McCOLLUM
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Daelyn RichardsDAELYN RICHARDS
Board Member
- Total calculated
- $0
- Hours/week
- 5
-
Jeb HaberJEB HABER
President
- Total calculated
- $0
- Hours/week
- 10
-
Glenn HaberGLENN HABER
Treasurer
- Total calculated
- $0
- Hours/week
- 8
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $1,768,667
- Expenses
- $1,387,351
- Contributions
- $1,557,455
- Grants paid
- $13,731
-
2023
- Revenue
- $799,498
- Expenses
- $746,565
- Contributions
- $594,615
- Grants paid
- $17,000
-
2022
- Revenue
- $369,785
- Expenses
- $714,938
- Contributions
- $216,530
- Grants paid
- $12,250
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $844,372
- Expenses
- $290,195
- Assets (EOY)
- $1,267,796
-
2020 · 990
- Revenue
- $697,122
- Expenses
- $294,262
- Assets (EOY)
- $696,740
-
2019 · 990
- Revenue
- $220,788
- Expenses
- $254,718
- Assets (EOY)
- $278,886
-
2018 · 990
- Revenue
- $322,687
- Expenses
- $201,241
- Assets (EOY)
- $333,825
-
2017 · 990
- Revenue
- $239,860
- Expenses
- $180,297
- Assets (EOY)
- $212,379
-
2016 · 990
- Revenue
- $232,194
- Expenses
- $173,986
- Assets (EOY)
- $152,816
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
SILICON VALLEY COMMUNITY FOUNDATION
$800,000
2024 Health
-
2023 FOR RECIPIENT'S EXEMPT PURPOSE
-
$307,754
2024 fostering community and supporting research
-
2022 FOR RECIPIENT'S EXEMPT PURPOSE
-
2023 For grant recipient's exempt purposes
-
$42,930
2023 FOSTER COMMUNITY INFLUENCE AND SUPPORT RESEARCH TREATMENT THERAPIES
-
2024 For grant recipient's exempt purposes
-
2022 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$28,750
2024 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$25,500
2023 HEALTH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 11 November 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.