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PKU HOPE FOUNDATION

EIN 93-2255729 LEESBURG, VA

Revenue 2024
$704,494
Expenses 2024
$502,339

Program services were 66.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H12
Classification
1200
Street
40817 GREYHOUSE PL

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

The mission of the PKU Hope Foundation is to improve the quality of life for those with PKU by fostering community influencing and supporting research treatment therapies and easing the burden of managing the diet.

  • FOSTERING COMMUNITY FOR A RARE DISEASE PROVIDES A SUPPORT NETWORK FOR INDIVIDUALS AND FAMILIES FACING SIMILAR CHALLENGES FACILITIES INFORMATION SHARING AND RESOURCES RAISES AWARENESS ABOUT THE DISEASE PROMOTES ADVOCACY FOR RESEARCH AND FUNDING AND COMBATS FEELINGS OF ISOLATION OFTEN EXPERIENCED BY THOSE AFFECTED. ULTIMATELY IT HELPS EMPOWER INDIVIDUALS TO NAVIGATE THEIR JOURNEY WITH THE DISEASE MORE EFFECTIVELY.

    Expenses $52,492 · Grants $30,000

  • INFLUENCING AND SUPPORTING RESEARCH TREATMENT THERAPIES FOR THE RARE DISEASE COMMUNITY IS CRUCIAL TO HELP ACCELERATE THE DEVELOPMENT OF EFFECTIVE TREATMENTS AND THERAPIES TAILORED TO THE SPECIFIC NEEDS OF INDIVIDUALS WITH PKU. BY ADVOCATING FOR RESEARCH THE COMMUNITY CAN ATTRACT FUNDING INCREASE AWARENESS AMONG RESEARCHERS AND HEALTHCARE PROFESSIONALS AND FOSTER COLLABORATION BETWEEN STAKEHOLDERS. ADDITIONALLY IT OFFERS HOPE TO PATIENTS AND THEIR FAMILIES BY PROVIDING ACCESS TO POTENTIALLY LIFE-IMPROVING INTERVENTIONS. OVERALL ADVANCING RESEARCH AND TREATMENT OPTIONS IMPROVES THE QUALITY OF LIFE AND PROGNOSIS FOR THOSE LIVING WITH RARE DISEASES.

    Expenses $282,754 · Grants $282,754

  • EASING THE BURDEN OF MANAGING THE RESTRICTIVE PHENYLKETONURIA DIET IS ESSENTIAL TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AFFECTED BY THIS CONDITION. IT INVOLVES PROVIDING SUPPORT RESOURCES AND EDUCATION TO HELP PATIENTS AND THEIR FAMILIES NAVIGATE THE COMPLEXITIES OF THE DIET EFFECTIVELY. BY EASING THE BURDEN OF THE PKU DIET INDIVIDUALS CAN BETTER MAINTAIN THEIR HEALTH PREVENT COMPLICATIONS AND IRREVERSIBLE BRAIN DAMAGE AND LIVE MORE FULFILLING LIVES.

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Jill Elkins

    EXEC DIRECTOR BOARD VP TREASURER

    Total calculated
    $0
    Hours/week
    20

  • Jerry Elkins

    BOARD PRESIDENT

    Total calculated
    $0
    Hours/week
    3

  • Susan Anderson

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $704,494
    Expenses
    $502,339
    Contributions
    $704,494
    Grants paid
    $335,246
  • 2023
    Revenue
    $817,773
    Expenses
    $91,359
    Contributions
    $817,773
    Grants paid
    $42,930

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.