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STXBP1 FOUNDATION

EIN 82-1439459 HOLLY SPRINGS, NC

Revenue 2024
$1,420,429
Expenses 2024
$1,268,147

Program services were 97.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G20
Classification
1280
Street
PO BOX 1148

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • CHARLENE SON RIGBY

    PRESIDENT

    Total calculated
    $0
    Hours/week
    20

  • MELISSA HIOCO

    DIRECTOR, COMMUNITY ENGAGEMENT

    Total calculated
    $0
    Hours/week
    25

  • JACQUELINE STEINBERG

    VICE PRESIDENT & SCIENTIFI

    Total calculated
    $0
    Hours/week
    10

  • HEATHER JONES

    TREASURER

    Total calculated
    $0
    Hours/week
    10

  • RUSS NOVY

    DIRECTOR, MARKETING & BRAND

    Total calculated
    $0
    Hours/week
    30

  • CRISTINA BRENNAN

    SECRETARY

    Total calculated
    $0
    Hours/week
    5

  • JARED BARNUM

    DIRECTOR, TECHNOLOGY

    Total calculated
    $0
    Hours/week
    10

  • DANIELE GREINER

    DIRECTOR, DEVELOPMENT

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $1,420,429
    Expenses
    $1,268,147
    Contributions
    $1,370,768
    Grants paid
    $828,992
  • 2023
    Revenue
    $735,527
    Expenses
    $1,323,859
    Contributions
    $694,492
    Grants paid
    $385,588
  • 2022
    Revenue
    $1,830,890
    Expenses
    $509,216
    Contributions
    $1,830,890
    Grants paid
    $130,333

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Form 990-N e-Postcard, tax year 2017

Tax period
1 January 2017 to 31 December 2017
Principal officer
Anne Johnson
Mailing address
2001 HAMILTON ST SUITE 917Philadelphia PA 19130
Website
stxdisorders.org

As filed, from the IRS e-Postcard file of 12 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The IRS Business Master File ingested 5 October 2026, which is when the registration facts above were last refreshed for every organization. Returns through tax year 2024, the newest we have parsed for this organization.