- Revenue 2024
- $4,490,185
- Expenses 2024
- $5,347,918
Program services were 95.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H23Z
- Classification
- 1280
- Street
- 3 COLUMBUS CIRCLE 15TH FLOOR
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Other organizations at this address
4 other organizations in the IRS Business Master File list the same street address. matched by us
We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.
-
AMERICAN FRIENDS OF HAPPY HEARTS INC
EIN 88-3043673
-
CUMMINGS-GOLDMAN FOUNDATION
EIN 13-3642159
-
EQUITY GROUP FOUNDATION INTERNATIONAL
EIN 46-5606457
-
JEWISH DEFENSE FUND
EIN 88-0703290
Mission and programs · 2024
Mission
THE FOUNDATION DEVELOPS AND SPEARHEADS INITIATIVES DESIGNED TO CHANGE LIVES TODAY FOR PEOPLE WITH CEREBRAL PALSY THROUGH RESEARCH, INNOVATION, AND COLLABORATION.
-
THE FOUNDATION PROVIDES FINANCIAL SUPPORT TO RIGOROUSLY REVIEWED, SCIENTIFICALLY IMPORTANT RESEARCH RELEVANT TO CEREBRAL PALSY AND OTHER DEVELOPMENTAL DISABILITIES. THE FOUNDATION ALSO PROVIDES MEDICAL EXPERTISE, AS REQUESTED BY OTHER ORGANIZATIONS, AND SERVES AS A RESOURCE FOR THE INTERNATIONAL PUBLIC, CLINICIANS, AND POLICY-MAKERS ABOUT BEST HEALTH CARE PRACTICES, PREVENTION, AND CURATIVE STRATEGIES FOR CEREBRAL PALSY. THE FOUNDATION IS ALSO FOCUSING ITS ATTENTION ON RESEARCH DIRECTED AT ISSUES OF EARLY DIAGNOSIS, MECHANISMS OF NERVOUS SYSTEM INJURY AND REPAIR, REGENERATIVE TREATMENTS, NEUROLOGICAL REHABILITATION, ORTHOPEDIC REHABILITATION AND ENGINEERING SOLUTIONS, AS WELL AS RESEARCH TO PREVENT THE SECONDARY NEUROMUSCULAR, MUSCULOSKELETAL, AND CARDIOVASCULAR COMPLICATIONS SEEN IN ADULTS WITH CEREBRAL PALSY. THERE ARE APPROXIMATELY 1 MILLION CHILDREN AND ADULTS IN THE USA WITH CEREBRAL PALSY AND RELATED DEVELOPMENTAL DISABILITIES, MORE CLINICAL AND BASIC BIOMEDICAL RESEARCH IS URGENTLY NEEDED FOR IMPROVING NEUROLOGICAL FUNCTIONS, PREVENTING MEDICAL COMPLICATIONS, AND OPTIMIZING QUALITY OF LIFE IN THESE INDIVIDUALS FROM INFANCY THROUGH ADULTHOOD.
Expenses $5,121,556 · Grants $3,230,958 · Revenue $444,538
As filed on the 2024 return.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Ila EckhoffILA ECKHOFF
CHAIRMAN
- Total calculated
- $0
- Hours/week
- 1
-
James P VolckerJAMES P VOLCKER
V.P & SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
Patrick DownesPATRICK DOWNES
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
Rachel JordanRACHEL JORDAN
EXECUTIVE DIRECTOR
- Total calculated
- $236,529
- From this org
- $225,000
- From related orgs
- $0
- Other
- $11,529
- Hours/week
- 37.5
Schedule J breakdown matched by us
- Base
- $225,000
- Bonus
- $0
- Other
- $0
- Deferred
- $11,350
- Nontaxable benefits
- $179
- Filer's total
- $236,529
-
Dr Andrea DuncanDR ANDREA DUNCAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Dr Deborah Gaebler-SpiraDR DEBORAH GAEBLER-SPIRA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Eileen FowlerEILEEN FOWLER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Gerald DundonGERALD DUNDON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Kara BuckleyKARA BUCKLEY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Levee BrooksLEVEE BROOKS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Lily CollisonLILY COLLISON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Michelle KassnerMICHELLE KASSNER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Peter W ShapiroPETER W SHAPIRO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Cynthia FrisinaCYNTHIA FRISINA
VICE PRESIDENT OF PARTNERSHIPS
- Total calculated
- $147,000
- From this org
- $140,000
- From related orgs
- $0
- Other
- $7,000
- Hours/week
- 37.5
-
Rebecca LamREBECCA LAM
VP OF PROGRAMS AND OPERATIONS
- Total calculated
- $141,581
- From this org
- $122,526
- From related orgs
- $0
- Other
- $19,055
- Hours/week
- 37.5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $4,490,185
- Expenses
- $5,347,918
- Contributions
- $4,046,099
- Grants paid
- $3,230,958
-
2023
- Revenue
- $4,686,145
- Expenses
- $4,684,411
- Contributions
- $4,191,716
- Grants paid
- $2,763,136
-
2022
- Revenue
- $4,021,273
- Expenses
- $3,899,013
- Contributions
- $3,811,008
- Grants paid
- $2,237,407
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $2,151,754
- Expenses
- $2,116,457
- Assets (EOY)
- $2,336,868
-
2021 · 990
- Revenue
- $2,151,754
- Expenses
- $2,116,457
- Assets (EOY)
- $2,336,868
-
2020 · 990
- Revenue
- $2,014,685
- Expenses
- $1,771,078
- Assets (EOY)
- $2,728,061
-
2019 · 990
- Revenue
- $1,663,140
- Expenses
- $1,288,180
- Assets (EOY)
- $2,096,941
-
2018 · 990
- Revenue
- $1,811,369
- Expenses
- $2,519,062
- Assets (EOY)
- $2,057,211
-
2017 · 990
- Revenue
- $2,785,298
- Expenses
- $2,675,476
- Assets (EOY)
- $2,607,278
-
2016 · 990
- Revenue
- $1,319,777
- Expenses
- $1,808,965
- Assets (EOY)
- $2,313,912
-
2015 · 990
- Revenue
- $1,784,693
- Expenses
- $2,481,969
- Assets (EOY)
- $2,962,000
-
2014 · 990
- Revenue
- $2,824,935
- Expenses
- $3,691,522
- Assets (EOY)
- $3,430,754
-
2013 · 990
- Revenue
- $1,303,712
- Expenses
- $2,174,010
- Assets (EOY)
- $4,563,398
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
-
2023 RESEARCH
-
2024 RESEARCH
-
$326,682
2023 RESEARCH
-
$300,000
2022 RESEARCH
-
$227,890
2024 RESEARCH
-
2022 RESEARCH
-
Gillette Children's Healthcare
$150,000
2023 RESEARCH
-
GILLETTE CHILDREN'S HEALTHCARE
$117,046
2024 RESEARCH
-
2024 RESEARCH
-
2023 RESEARCH
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
$2,500,000
2024 UNRESTRICTED
-
$1,250,000
2023 UNRESTRICTED
-
2024 For grant recipient's exempt purposes
-
$225,000
2022 GENERAL SUPPORT
-
2022 For grant recipient's exempt purposes
-
2023 UNRESTRICTED GENERAL SUPPORT
-
2022 GENERAL SUPPORT
-
$40,000
2024 GRANT
-
$40,000
2023 Research/Subcontract
-
2024 GENERAL SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 11 November 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.