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Nonprofiteer
← CEREBRAL PALSY FOUNDATION INC

Form 990 for tax year 2023

Filed by CEREBRAL PALSY FOUNDATION INC.

Totals

Total revenue
$4,686,145
Total expenses
$4,684,411
Contributions and grants received
$4,191,716
Grants paid
$2,763,136
Program service revenue
$489,336
Investment income
$66,921
Other revenue
-$61,828
Total assets, end of year
$2,792,533
Total liabilities, end of year
$258,325
Net assets or fund balances, end of year
$2,534,208
Program services expenses (Part IX)
$4,474,666
Management and general expenses
$157,298
Fundraising expenses
$52,447
Program service expenses (Part III)
$4,474,666

Program services were 95.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $14,459

  • 1c · Fundraising events

    $249,440

  • 1f · All other contributions, gifts and grants

    $3,927,817

  • 2a · Program service revenue: Training Fees

    total $489,336 · related or exempt $489,336

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $66,921 · excluded $66,921

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 7a · Gross sales of assets other than inventory

    securities $2,210,000

  • 7b · Less cost or other basis and sales expenses

    securities $2,210,000

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 7d · Net gain or loss

    total $0 · excluded $0

  • 8a · Fundraising events: gross income

    $21,300

  • 8a · Fundraising events: contributions included on line 1c

    $249,440

  • 8b · Fundraising events: direct expenses

    $83,128

  • 8c · Net income from fundraising events

    total -$61,828 · excluded -$61,828

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,251,724 · program services $1,251,724

  • 3 · Grants to foreign organizations and individuals

    total $1,511,412 · program services $1,511,412

  • 5 · Compensation of officers, directors and key employees

    total $232,387 · program services $209,149 · management and general $11,619 · fundraising $11,619

  • 7 · Other salaries and wages

    total $512,411 · program services $486,322 · management and general $8,615 · fundraising $17,474

  • 8 · Pension plan contributions

    total $26,598 · program services $25,228 · management and general $473 · fundraising $897

  • 9 · Other employee benefits

    total $46,563 · program services $44,625 · management and general $1,415 · fundraising $523

  • 10 · Payroll taxes

    total $55,787 · program services $52,395 · management and general $1,417 · fundraising $1,975

  • 11b · Fees: legal

    total $10,500 · management and general $10,500

  • 11c · Fees: accounting

    total $110,228 · management and general $110,228

  • 11g · Fees: other

    total $277,661 · program services $268,427 · management and general $937 · fundraising $8,297

  • 12 · Advertising and promotion

    total $249,206 · program services $248,951 · management and general $191 · fundraising $64

  • 13 · Office expenses

    total $25,195 · program services $13,596 · management and general $548 · fundraising $11,051

  • 14 · Information technology

    total $23,433 · program services $23,361 · management and general $54 · fundraising $18

  • 16 · Occupancy

    total $10,410 · program services $9,944 · management and general $349 · fundraising $117

  • 17 · Travel

    total $143,048 · program services $142,761 · management and general $215 · fundraising $72

  • 19 · Conferences, conventions and meetings

    total $157,995 · program services $157,950 · management and general $34 · fundraising $11

  • 22 · Depreciation, depletion and amortization

    total $2,352 · program services $2,247 · management and general $79 · fundraising $26

  • 23 · Insurance

    total $6,742 · program services $3,605 · management and general $3,095 · fundraising $42

  • 24a · Other expenses: MISCELLANEOUS EXPENSE

    total $30,759 · program services $22,969 · management and general $7,529 · fundraising $261

  • 24e · All other expenses

    total $0 · program services $0 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $129,881 · end of year $251,611

  • 2 · Savings and temporary cash investments

    beginning of year $1,625,006 · end of year $1,382,369

  • 3 · Pledges and grants receivable

    beginning of year $325,040 · end of year $450,614

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    end of year $11,077

  • 10a · Land, buildings and equipment: cost or other basis

    $32,876

  • 10b · Land, buildings and equipment: accumulated depreciation

    $26,283

  • 10c · Land, buildings and equipment, net

    beginning of year $8,945 · end of year $6,593

  • 11 · Investments: publicly traded securities

    beginning of year $4,376 · end of year $9,329

  • 12 · Investments: other securities

    beginning of year $0

  • 13 · Investments: program-related

    beginning of year $0

  • 15 · Other assets

    beginning of year $582,012 · end of year $680,940

  • 17 · Accounts payable and accrued expenses

    beginning of year $160,111 · end of year $98,325

  • 18 · Grants payable

    beginning of year $75,000 · end of year $150,000

  • 19 · Deferred revenue

    beginning of year $7,760 · end of year $10,000

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0 · end of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $252,691 · end of year -$14,367

  • 28 · Net assets with donor restrictions

    beginning of year $2,179,698 · end of year $2,548,575

Mission and programs · 2023

Mission

THE FOUNDATION DEVELOPS AND SPEARHEADS INITIATIVES DESIGNED TO CHANGE LIVES TODAY FOR PEOPLE WITH CEREBRAL PALSY THROUGH RESEARCH, INNOVATION, AND COLLABORATION.

  • THE FOUNDATION PROVIDES FINANCIAL SUPPORT TO RIGOROUSLY REVIEWED, SCIENTIFICALLY IMPORTANT RESEARCH RELEVANT TO CEREBRAL PALSY AND OTHER DEVELOPMENTAL DISABILITIES. THE FOUNDATION ALSO PROVIDES MEDICAL EXPERTISE AS REQUESTED BY OTHER ORGANIZATIONS AND SERVES AS A RESOURCE FOR THE INTERNATIONAL PUBLIC, CLINICIANS AND POLICY-MAKERS ABOUT BEST HEALTH CARE PRACTICES, PREVENTION AND CURATIVE STRATEGIES FOR CEREBRAL PALSY. THE FOUNDATION IS ALSO FOCUSING ITS ATTENTION ON RESEARCH DIRECTED AT ISSUES OF EARLY DIAGNOSIS, MECHANISMS OF NERVOUS SYSTEM INJURY AND REPAIR, REGENERATIVE TREATMENTS, NEUROLOGICAL REHABILITATION, ORTHOPEDIC REHABILITATION AND ENGINEERING SOLUTIONS AS WELL AS RESEARCH TO PREVENT THE SECONDARY NEUROMUSCULAR, MUSCULOSKELETAL AND CARDIOVASCULAR COMPLICATIONS SEEN IN ADULTS WITH CEREBRAL PALSY. THERE ARE APPROXIMATELY 1 MILLION CHILDREN AND ADULTS IN THE USA WITH CEREBRAL PALSY AND RELATED DEVELOPMENTAL DISABILITIES, MORE CLINICAL AND BASIC BIOMEDICAL RESEARCH IS URGENTLY NEEDED FOR IMPROVING NEUROLOGICAL FUNCTIONS, PREVENTING MEDICAL COMPLICATIONS, AND OPTIMIZING QUALITY OF LIFE IN THESE INDIVIDUALS FROM INFANCY THROUGH ADULTHOOD.

    Expenses $4,474,666 · Grants $2,763,136 · Revenue $489,336

As filed on the 2023 return.

Listed in Part VII

  • Ila Eckhoff

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    1

  • James P Volcker

    V.P & SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • Patrick Downes

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Rachel Jordan

    EXECUTIVE DIRECTOR

    Total calculated
    $252,663
    From this org
    $239,313
    From related orgs
    $0
    Other
    $13,350
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $202,313
    Bonus
    $37,000
    Other
    $0
    Deferred
    $11,184
    Nontaxable benefits
    $2,166
    Filer's total
    $252,663

  • Dr Andrea Duncan

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Dr Deborah Gaebler-Spira

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Eileen Fowler

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Gerald Dundon

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Kara Buckley

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Levee Brooks

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Lily Collison

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michelle Kassner

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Peter W Shapiro

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Wendy Garfinkel

    DIRECTOR (UNTIL 11/2023)

    Total calculated
    $0
    Hours/week
    1

  • Cynthia Frisina

    VICE PRESIDENT OF PARTNERSHIPS

    Total calculated
    $150,063
    From this org
    $142,917
    From related orgs
    $0
    Other
    $7,146
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $140,000
    Bonus
    $2,917
    Other
    $0
    Deferred
    $7,146
    Nontaxable benefits
    $0
    Filer's total
    $150,063

  • Deborah Fink

    VP OF EDUCATION AND INCLUSION

    Total calculated
    $129,556
    From this org
    $109,482
    From related orgs
    $0
    Other
    $20,074
    Hours/week
    37.5

  • Rebecca Lam

    VP OF PROGRAMS AND OPERATIONS

    Total calculated
    $139,172
    From this org
    $118,927
    From related orgs
    $0
    Other
    $20,245
    Hours/week
    37.5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

Schedule J, Part I, Line 7 Non-fixed payments
During the tax year, the individuals reported on Part VII, Section A received a non-fixed discretionary bonus that was approved by the chair.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2023
Filed
14 August 2025
IRS schema version
2023v6.0
Source object
202512269349302506

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