- Revenue 2025
- $5,102,891
- Expenses 2025
- $4,440,540
Program services were 82.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G96
- Classification
- 2000
- Street
- 912 KILLIAN HILL RD SW STE 105
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
THROUGH OUTREACH, EDUCATION, AND RESEARCH,WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS.
Activities or mission (Part I)
THROUGH OUTREACH, EDUCATION, AND RESEARCH, WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS.
-
LEWY BODY DEMENTIA ASSOCIATION, INC. (LBDA) PROVIDES INFORMATION ON LEWY BODY DEMENTIAS TO CAREGIVERS, FAMILIES, PROFESSIONALS, AND THE GENERAL PUBLIC, AND ENCOURAGES SCIENTIFIC ADVANCEMENTS. LBDA PROGRAMS INCLUDE A NATIONAL SUPPORT GROUP NETWORK, EXTENSIVE WEBSITE AND ONLINE COMMUNITIES, EMAIL AND TOLL FREE TELEPHONE HELP LINES, AND INFORMATION PACKETS AND BROCHURES. LBDA REPRESENTATIVES ATTEND SCIENTIFIC CONFERENCES, HOST EXHIBITS AT NATIONAL MEDICAL CONFERENCES, AND SUPPORT THE LBDA SCIENTIFIC ADVISORY COUNCIL. THROUGH LBDA'S RESEARCH CENTERS OF EXCELLENCE GRANT PROGRAM, LBDA HELPS FUND ACADEMIC RESEARCH CENTERS DELIVERING CLINICAL CARE, OUTREACH, AND EDUCATION OF PUBLIC AND PROFESSIONALS.
Expenses $2,098,077
-
IN FURTHERANCE OF ITS MISSION TO SUPPORT THOSE WITH LBD, CAREGIVERS, AND RESEARCH RELATED TO THE DISEASE, THE ASSOCIATION ENTERS INTO CONTRACTS WITH OUTSIDE ENTITIES TO ASSIST THEM WITH EDUCATION, SUPPORT, SURVEYS, EMAIL CAMPAIGNS AND RESEARCH EFFORTS ADDRESSING THE DISEASE.
Expenses $1,555,411 · Grants $564,522 · Revenue $476,719
As filed on the 2025 return.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Carla AbdelnourCARLA ABDELNOUR
VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 5
-
Genell GreenbergGENELL GREENBERG
SECRETARY
- Total calculated
- $0
- Hours/week
- 5
-
Jeffrey JacobJEFFREY JACOB
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
Sarah SungSARAH SUNG
PRESIDENT
- Total calculated
- $0
- Hours/week
- 5
-
Angela LundeANGELA LUNDE
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Anitha Rao MDANITHA RAO MD
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Jeffrey BodingtonJEFFREY BODINGTON
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Jennifer GoldmanJENNIFER GOLDMAN
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Mary-Kay BolerMARY-KAY BOLER
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Rodney WitcherRODNEY WITCHER
MEMBER
- Total calculated
- $0
- Hours/week
- 2
-
Allison FeldmanALLISON FELDMAN
Executive Director
- Total calculated
- $238,478
- From this org
- $229,278
- From related orgs
- $0
- Other
- $9,200
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $229,278
- Bonus
- $0
- Other
- $0
- Deferred
- $9,200
- Nontaxable benefits
- $0
- Filer's total
- $238,478
-
Angela TaylorANGELA TAYLOR
Vice President of Strategic Partnerships
- Total calculated
- $122,052
- From this org
- $118,752
- From related orgs
- $0
- Other
- $3,300
- Hours/week
- 40
-
Julia WoodJULIA WOOD
Director of Professional & Community Education
- Total calculated
- $124,080
- From this org
- $122,566
- From related orgs
- $0
- Other
- $1,514
- Hours/week
- 40
-
Keith FargoKEITH FARGO
Director of Scientific Initiatives
- Total calculated
- $196,706
- From this org
- $189,140
- From related orgs
- $0
- Other
- $7,566
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $189,140
- Bonus
- $0
- Other
- $0
- Deferred
- $7,566
- Nontaxable benefits
- $0
- Filer's total
- $196,706
-
Lena FungLENA FUNG
Director of Development
- Total calculated
- $116,700
- From this org
- $113,500
- From related orgs
- $0
- Other
- $3,200
- Hours/week
- 40
-
Sudhir SivakumaranSUDHIR SIVAKUMARAN
Chief Scientific Officer
- Total calculated
- $143,462
- From this org
- $140,385
- From related orgs
- $0
- Other
- $3,077
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $5,102,891
- Expenses
- $4,440,540
- Contributions
- $4,332,106
- Grants paid
- $564,522
-
2024
- Revenue
- $4,977,169
- Expenses
- $4,040,700
- Contributions
- $4,587,955
- Grants paid
- $389,500
-
2023
- Revenue
- $3,641,562
- Expenses
- $3,055,794
- Contributions
- $2,932,041
- Grants paid
- $323,296
-
2022
- Revenue
- $4,183,987
- Expenses
- $2,648,788
- Contributions
- $4,151,470
- Grants paid
- $223,500
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $2,872,342
- Expenses
- $2,382,784
- Assets (EOY)
- $6,013,384
-
2020 · 990
- Revenue
- $3,748,830
- Expenses
- $2,037,647
- Assets (EOY)
- $5,554,767
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
$149,698
2025 Dementia Nomenclature Initiative Project
-
$50,000
2025 New Investigator Pilot Study Award Program
-
2023 RESEARCH CENTER OF EXCELLENCE AWARD
-
2024 NIPSA
-
2023 RESEARCH CENTER OF EXCELLENCE AWARD
-
MAYO CLINIC ROCHESTER MINNESOTA
$50,000
2024 RESEARCH CENTER OF EXCELLENCE AWARD
-
$50,000
2025 RCOE Coordinating Center
-
$50,000
2022 RCOE COORDINATING CENTER AWARD
-
2025 Research Centers of Excellence
-
Virginia Commonwealth University
$12,500
2025 Research Centers of Excellence
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
THE COMMUNITY FOUNDATION OF UTAH
$500,000
2024 General Support
-
2024 DISCOVERY RESEARCH (SCIENCE)
-
2023 For grant recipient's exempt purposes
-
2024 For grant recipient's exempt purposes
-
$95,272
2024 GENERAL SUPPORT
-
$95,000
2023 Grant to support Dementia Nomenclature Initiative pilot study
-
2022 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$60,704
2024 HEALTH
-
$58,250
2023 HUMAN SERVICES
-
$54,250
2024 HEALTH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 11 November 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.