SJOGRENS FOUNDATION INC

As filed

Subsection

03

NTEE code

G40

Classification

1000

Street

10701 PARKRIDGE BLVD STE 170

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

• THE SJOGREN'S FOUNDATION AWARDED FOUR RESEARCH GRANTS UNDER THE ANNUAL SJOGREN'S FOUNDATION GRANT PROGRAM TO UNIVERSITY AFFILIATED RESEARCHERS IN JUNE 2025. THREE PILOT GRANTS WERE AWARDED AND ONE HIGH IMPACT GRANT AWARDED. THE SJOGREN'S FOUNDATION ALSO AWARDED A DYNAMIC GRANT TO THE UNIVERSITY OF UTAH FOR DEVELOPMENT OF INTERNATIONAL CLASSIFICATION CRITERIA FOR CHILDREN WITH SJOGREN'S DISEASE. THE FOUNDATION PAID THE THIRD PAYMENT TO SUPPORT THE FOUNDATION FOR THE NIH AMP AIM RESEARCH PROJECT ON SJOGREN'S AND OTHER AUTOIMMUNE DISEASES, AND THE FIRST PAYMENT OF THE NEW FOUNDATION FOR THE NIH SJOGREN'S BIOMARKERS CONSORTIUM PROJECT TO DISCOVER NEW BIOMARKERS FOR SJOGREN'S TO AID IN IMPROVED DIAGNOSIS AND TREATMENT.THE SJOGREN'S FOUNDATION ALSO WORKED CLOSELY WITH MULTIPLE PHARMA COMPANIES TO PREPARE FOR, AND BRING, PHASE 2 AND PHASE 3 CLINICAL TRIALS FORWARD. THE FOUNDATION SUPPORTED THESE PROGRAMS BY CONFERRING WITH PHARMA ON PROTOCOLS AND PATIENT NEEDS, CERTIFYING CLINICAL TRIAL INVESTIGATORS ON PROPER USE OF ESSDAI OUTCOME MEASURES, AND ENGAGING PATIENTS TO ENCOURAGE TRIAL ENROLLMENT, IN ORDER TO HELP BRING THERAPIES TO MARKET.

  Expenses $1,227,774 · Grants $636,789

• NEWSLETTER - THE FOUNDATION PRODUCES TWO NEWSLETTERS. "CONQUERING SJOGREN'S" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANIFESTATIONS. CS IS PRODUCED BI-MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.

  Expenses $254,954

• THE SJOGREN'S FOUNDATION INCREASED PATIENT SUPPORT AND EDUCATION PROGRAMS IN 2025 AS WELL AS HEALTHCARE PROVIDER EDUCATION AND AWARENESS ABOUT SJOGREN'S AND THE SYSTEMIC, MULTI-FACETED NATURE OF THE DISEASE. OF NOTE WAS THE EXPANSION OF PROVIDER OUTREACH THROUGH STATE OF SJOGREN'S AND THE FOUNDATION'S CME PROGRAM AS WELL AS PARTNERING WITH EXTERNAL CME PROGRAMS FOR SPECIALTIES AND PRIMARY CARE PROVIDERS. THE FOUNDATION ALSO INCREASED OUR ADVOCACY EFFORTS TO HIGHLIGHT THE IMPORTANCE OF CONTINUED AUTOIMMUNE DISEASE RESEARCH FUNDING, ESPECIALLY FOR SJOGREN'S AND TO HIGHLIGHT THE IMPORTANCE OF SUPPORTING THE OFFICE OF AUTOIMMUNE DISEASE RESEARCH. WE SUCCEEDED IN GETTING A NEW HOUSE RESOLUTION #245 TO AFFIRM APRIL AS SJOGREN'S AWARENESS MONTH WHICH INCLUDED MESSAGING ABOUT THE NEED FOR MORE RESEARCH AND WE HELD OUR FIRST CONGRESSIONAL BRIEFING ON SJOGREN'S. THE FOUNDATION ALSO CONTINUED OUR DIALOG WITH CENTERS FOR MEDICARE AND MEDICAID FOR DENTAL COVERAGE. WE CONTINUED TO ADVANCE OUR RELATIONSHIPS WITH CLINICIANS, RESEARCHERS, GOVERNMENT SCIENTISTS, AND CORPORATE SCIENTISTS WHO ARE INTERESTED IN SJOGREN'S. IN JUNE 2025, THE FOUNDATION WORK TO CHANGE THE DISEASE NAME FROM SJOGREN'S SYNDROME TO SJOGREN'S DISEASE WAS INTERNATIONALLY CONFIRMED BY THE PUBLICATION OF THE INITIATIVE IN A PEER-REVIEWED PUBLICATION NATURE REVIEWS RHEUMATOLOGY.

  Expenses $1,216,516

• OTHER PROGRAMS WITHIN THE FOUNDATION INCLUDE STRATEGIC GOVERNANCE PROJECTS; PATIENT MEMBERSHIP AND SUPPORT PROGRAMS FOR PEOPLE LIVING WITH SJOGREN'S; HEALTHCARE PROVIDER EDUCATION SUCH AS CREATING CLINICAL PRACTICE GUIDELINES AND ABSTRACTS, PARTNERING WITH EXTERNAL CME PROVIDERS TO CREATE SJOGREN'S COURSES, AND PRESENTING AT PROFESSIONAL CONFERENCES; INDUSTRY SUPPORT AND CO-AUTHORSHIP ON ABSTRACTS TO ENSURE ACCURATE UNDERSTANDING OF SJOGREN'S AND THE NEED FOR EARLY PATIENT INVOLVEMENT IN RESEARCH AND ENCOURAGING FURTHER DEVELOPMENT OF SJOGREN'S THERAPIES FOR ALL PATIENTS.

  Expenses $851,838 · Revenue $395,510

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $5,277,586

  Expenses

  $4,223,979

  Contributions

  $4,712,138

  Grants paid

  $636,789

• 2023

  Revenue

  $3,497,666

  Expenses

  $3,174,412

  Contributions

  $2,964,863

  Grants paid

  $390,313

• 2022

  Revenue

  $3,324,713

  Expenses

  $2,841,846

  Contributions

  $2,756,148

  Grants paid

  $275,678

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2024 · 990-T

  Revenue

  — not reported

  Expenses

  — not reported

  Assets (EOY)

  — not reported

• 2023 · 990-T

  Revenue

  — not reported

  Expenses

  — not reported

  Assets (EOY)

  — not reported

• 2022 · 990-T

  Revenue

  — not reported

  Expenses

  — not reported

  Assets (EOY)

  — not reported

• 2021 · 990

  Revenue

  $2,943,480

  Expenses

  $2,322,444

  Assets (EOY)

  $2,799,424

• 2021 · 990-T

  Revenue

  — not reported

  Expenses

  — not reported

  Assets (EOY)

  — not reported

• 2020 · 990

  Revenue

  $2,961,602

  Expenses

  $2,930,916

  Assets (EOY)

  $2,612,292

• 2020 · 990-T

  Revenue

  — not reported

  Expenses

  — not reported

  Assets (EOY)

  — not reported

• 2019 · 990

  Revenue

  $2,468,773

  Expenses

  $2,427,639

  Assets (EOY)

  $2,458,865

• 2018 · 990

  Revenue

  $3,416,389

  Expenses

  $2,342,283

  Assets (EOY)

  $2,009,972

• 2017 · 990

  Revenue

  $2,318,207

  Expenses

  $2,311,551

  Assets (EOY)

  $953,133

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

• OKLAHOMA MEDICAL RESEARCH FOUNDATION

  $200,000

  2023 · RESEARCH GRANT

• FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH

  $200,000

  2024 · RESEARCH GRANT

• OKLAHOMA MEDICAL RESEARCH FOUNDATION

  $150,000

  2022 · RESEARCH GRANT

• THE UNIVERSITY OF UTAH

  $120,000

  2024 · RESEARCH GRANT

• MASS GENERAL BRIGHAM

  $100,000

  2024 · RESEARCH GRANT

• THE CURATORS OF THE UNIVERSITY OF MISSOURI

  $75,000

  2022 · RESEARCH GRANT

• THE REGENTS OF THE UNIVERSITY OF CALIFORNIA

  $50,000

  2023 · RESEARCH GRANT

• NORTHEASTERN UNIVERSITY

  $50,000

  2023 · RESEARCH GRANT

• NATIONAL INSTITUTE OF DENTAL AND CRANIOFACIA

  $50,000

  2023 · RESEARCH GRANT

• THE REGENTS OF THE UNIVERSITY OF CALIFORNIA

  $50,000

  2024 · RESEARCH GRANT

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

• VANGUARD CHARITABLE ENDOWMENT PROGRAM

  $175,500

  2022 · FOR RECIPIENT'S EXEMPT PURPOSE

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $143,764

  2023 · For grant recipient's exempt purposes

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $135,415

  2024 · For grant recipient's exempt purposes

• DONOR ADVISED CHARITABLE GIVING

  $69,804

  2023 · HEALTH

• DONOR ADVISED CHARITABLE GIVING

  $69,454

  2024 · HEALTH

• AMERICAN ONLINE GIVING FOUNDATION INC

  $44,208

  2022 · GENERAL SUPPORT

• DONOR ADVISED CHARITABLE GIVING

  $39,214

  2022 · HEALTH

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $33,911

  2022 · For grant recipient's exempt purposes

• AMERICAN ONLINE GIVING FOUNDATION INC

  $31,286

  2024 · GENERAL SUPPORT

• AMERICAN ONLINE GIVING FOUNDATION INC

  $28,737

  2023 · GENERAL SUPPORT

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files